The 12th Invest in ME Research Conference June, 2017, Part 2
MEMum presents the second article in a series of three about the recent 12th Invest In ME International Conference (IIMEC12) in London.
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My New Video - The CDC vs CFS/ME

Discussion in 'Action Alerts and Advocacy' started by caledonia, Sep 4, 2010.

  1. caledonia

    caledonia

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    The CDC vs CFS/ME....or How NOT To Find A Retrovirus

    The sordid history of the CDC's involvement with CFS/ME.

    http://www.youtube.com/watch?v=M6QHLMi_mgY

    A good primer for anyone who hasn't read Osler's Web, newbies to this disease, or anyone not familiar with how the CDC has mistreated us.
     
  2. Sunshine

    Sunshine Senior Member

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    What a fantastic video, really tells it like it is!
     
  3. Wayne

    Wayne Senior Member

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    Hi Caledonia,

    Great video; great title!!! I just e-mailed it to a friend who doesn't have the stamina to come to message boards, but I know she'll very much appreciate this. Thank you.

    Wayne
     
  4. sensing progress

    sensing progress Senior Member

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    Very nicely done. Good job!
     
  5. gregf

    gregf Senior Member

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    This is good. Very good.

    If you are open to suggestions, I would add that :-
    - based on the CDCs psychiatric cover up, the Wessley school in UK compounded the problem,
    - that ME/CFS being treated as a psychiatric illness, has gone around the world and ruined the lives of millions,
    - that towards the end, return to using the correct name of ME or at least ME/CFS, so that the name CFS does not succeed.

    ME/CFS is our compromise, the psychs seem to be pushing CFS/ME as compromise and the former is also
    just easier to say.

    If this was so, I would use this video for an important pressentation I am going to make.
    A few other bits confused me, but cannot remember now.
     
  6. Dreambirdie

    Dreambirdie work in progress

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    Fantastic Video! So well done. Concise and straight to the point. Loved the title! The music is perfect, too.

    I especially enjoyed the rainbow shot at 7:18, about the Valentine's Day transfer of Reeves out of the CFS division of CDC.

    Great job Caledonia!
     
  7. Frank

    Frank Senior Member

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    perfect stuff
     
  8. jimbob

    jimbob ME/CFS84-XMRV+

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    good job caledonia! If we could just get the news media to watch all these videos?
     
  9. Dreambirdie

    Dreambirdie work in progress

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    I am working on this actually. I am sending my video on disk this week to Anderson Cooper at CNN and hoping Caledonia will send hers as well.
    (I am also sending it to other media, and my local and federal representatives.)

    You can all help by posting a comment on my CNN I report page.

    I encourage Caledonia to create a CNN I report page with her video too.


    http://ireport.cnn.com/docs/DOC-484879
     
  10. Otis

    Otis SeƱor Mumbler

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    Great stuff caldonia. I slapped this on facebook and to my (little) Twitter following as I did with DBs. Great work!
     
  11. caledonia

    caledonia

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    Wow. I'm glad people like it. I spent the better part of a month on it.

    For gregf - it was pretty hard to tell the whole history in under 10 minutes, so a lot of stuff obviously had to be cut out. So I decided to concentrate on the US only for this one.

    There are a lot of stories to be told regarding the UK and Wesseley, so maybe I can work that into my next one somehow.

    Dreambirdie, I'll look into the CNN thing.
     
  12. Dreambirdie

    Dreambirdie work in progress

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    I know EXACTLY what you're talking about!

    PLease do! We need to get this messsage beyond "the choir."
     
  13. onebush

    onebush Guest

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    The CDC vs CFS/ME

    Good job Caledonia! Keep those videos coming.

    Margaret
     
  14. gregf

    gregf Senior Member

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    That's sensible, I can understand.

    Explaining the names is important as that will be part of a law suit. By including the name issue you make your videos useful for those of us preparing for justice. Well done.

    Perhaps an international version and a US version is feasible. :)

    Greg.
     
  15. Gemini

    Gemini Senior Member

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    caledonia,

    Nice job! Thank you for doing all that work.

    The October CFSAC meeting...would you consider submitting it as
    testimony on behalf of patients to get its content in the official record?
     
  16. Dolphin

    Dolphin Senior Member

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    Excellent stuff, caledonia. Thanks.

    Ok, thanks very much for putting in so much effort. I was thinking to myself I would find it very very difficult to try to do something like that - it is comforting in one way to know it took you a while.
    But my main point is to thank you.
     
  17. Frickly

    Frickly Senior Member

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    Well Done Caledonia!
     
  18. muffin

    muffin Senior Member

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    Fantastic!!!!!

    I think this video is just so darn good that I am going to send it to Dr. Frieden at the CDC!!
    Like to keep Tom up to date on things going on with CFS and the CDC.

    Post this video everywhere possible!!! This tells our story!!!!
     
  19. BEG

    BEG Senior Member

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    Good job, Caledonia! Thanks.
     

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