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My List of SOME Causes of CFS

Discussion in 'General Treatment' started by xks201, Jun 26, 2012.

  1. xks201

    xks201 Senior Member

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    All of these can be genetically predetermined and some can be caused by a head injury or antibiotic use or virus etc etc-

    Inadequate Copper Utilization or Insufficiency

    Pyroluria

    Diabetes Insipidus or Insufficient or Resistant ADH secretion (me)

    Overgrowth of Lactic Acid Producing Bacteria

    Prostaglandin E2 excess, E1 Deficiency (treat with evening primrose and omega fish oil or eat oily fish) (take with fat)

    Sex Hormone Deficiency

    Elevated Sex Hormone Binding Globulin (Leading to Decreased Free Circulating Sex Hormones)

    Dopamine Resistance (treat with amphetamine like stimulants)

    Insulin Resistance (could be secondary to gut inflammation)

    Overgrowth of Bacteria Producing Enzymes that Destroy Vitamin B1 and B3

    Celiac Disease

    Other Food Allergies

    Brain Malfunction (NDMA/AMPA Receptor Dysregulation Leading to Neurotransmitter Malfunctioning)

    DHEA and or Cortisol Insufficiency

    Aldosterone Insufficiency

    Hypothyroidism

    Inability to Convert T4 to T3 in adequate amounts/thyroid hormone resistance (selenium deficiency possible)

    Gaba Deficiency (found in one study to have high excretion rate in CFS patients)

    Beta Alanine Deficiency (found in one study to have high excretion rate in CFS patients)

    Gallstones Leading to Digestive Enzyme Deficiency (blocking the bile duct and enzyme secretion from pancreas and gallbladder)

    Overgrowth of Iron Absorbing Bacteria

    Downregulation/Deficiency of Beta Adrenergic Receptors (Possibly from former or current Hypothyroidism)

    Inadequate Intake of Dietary Fat (Leading to cholesterol and hormone deficiency)

    Biotin Deficiency (causing malfunction of enzymes like Lactate Dehydrogenase and Partially Inhibiting the Krebs Cycle)

    HGH deficiency

    Opiate Deficiency/Beta Endorphin Deficiency (Shown in Studies to be Deficient in CFS patients)

    Genetic Deficiency of Any Neurotransmitter

    Elevated Angiotensin Converting Enzyme (Leading to Decreased Dopamine Levels) This was found to be elevated in majority of CFS patients.

    Oxytocin Deficiency


    By no means covers all of it. I'm sure West Nile Virus or Malaria could be thrown in there...but a lot of these are overlooked. The abnormal vasopressin secretion is an interest of mine because that's exactly what I have. I have diabetes insipidus as diagnosed by electrolyte concentration comparison of urine and plasma (and of course peeing and drinking all day without replacement therapy)..yet my ADH level supposedly was high on one test. That test could have been bad. Who knows.

    Add your own list these are just some of my observations. For me going without vasopressin is even worse than going without cortisol.
     
  2. nanonug

    nanonug Senior Member

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  3. xks201

    xks201 Senior Member

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    No doubt probably majority of CFS patients have that. The question is why do they have that? There is a theory floating around regarding calcium ion exchange increasing intestinal permeability...bacteria...food allergies. The hard part is finding the cause and then the treatment to it as not many people seem to have recovered their leaky gut. Raw cow milk may be useful for the colostrum and probiotics.
     
  4. xks201

    xks201 Senior Member

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    It is really ridiculous because everything I listed could potentially cause increased intestinal permeability. The detective work is what is ridiculous. For me it has been experimentation. I have been a science project for the past 3 years and that's the only reason I feel better. It is pretty scary how careless doctors are. My endocrinology won't even test t3 and t4 at the same time. Well I'm getting a new one. What is crazy is that I had virtually every one of those problems listed above. In my case a several head injuries made my pituitary quite lazy. I just was not the same after my snowboarding wreck.
     
    SickOfSickness likes this.
  5. nanonug

    nanonug Senior Member

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    Indeed!

    Right now, I am going through Pubmed identifying every single supplement or drug that helps heal intestinal hyperpermeability. There are quite a few things already that I am taking that are supposed to help. I will be happy to share the results once I feel comfortable enough with them.
     
    taniaaust1 and merylg like this.
  6. SickOfSickness

    SickOfSickness Senior Member

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    Anemia
    Vitamin D deficiency
    Adrenal burnout/fatigue
    Hypokalemia?
    Orthostatic intolerances?
     
  7. Nielk

    Nielk

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    These are symptoms - not causes.
     
    Tito, taniaaust1, Sushi and 2 others like this.
  8. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Most of that looks secondary to me.

    Sushi
     
  9. dannybex

    dannybex Senior Member

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    I agree mostly with Sushi. Some could be 'co-factors' or 'triggers', but most look like downstream results of ME/CFS.

    I do appreciate someone attempting to post a list of 'causes' or 'triggers' however, as there seem to be so many who think or are waiting for that "one" cause, which IMO, doesn't exist.
     
  10. redrachel76

    redrachel76 Senior Member

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    A lot of those things sound like secondary to me too.

    I would put reactions to vaccines for some people in the list. Let's face it, we do not really know yet. I got this after not resting after catching Epstein Barr Virus.
    With Rituximab helping 2/3 people we know the cause must be autoimmune or something wrong with the immune system for those 2/3 people.

    My own gut feeling is that this illness has something wrong with the immune system and mitochondria.
     
  11. nanonug

    nanonug Senior Member

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    From "Leaky Gut and Autoimmune Diseases":

    "Abstract Autoimmune diseases are characterized by tissue damage and loss of function due to an immune response that is directed against specific organs. This review is focused on the role of impaired intestinal barrier function on autoimmune pathogenesis. Together with the gut-associated lymphoid tissue and the neuroendocrine network, the intestinal epithelial barrier, with its intercellular tight junctions, controls the equilibrium between tolerance and immunity to non-self antigens. Zonulin is the only physiologic modulator of intercellular tight junctions described so far that is involved in trafficking of macromolecules and, therefore, in tolerance/immune response balance. When the zonulin pathway is deregulated in genetically susceptible individuals, autoimmune disorders can occur. This new paradigm subverts traditional theories underlying the development of these diseases and suggests that these processes can be arrested if the interplay between genes and environmental triggers is prevented by re-establishing the zonulin-dependent intestinal barrier function. Both animal models and recent clinical evidence support this new paradigm and provide the rationale for innovative approaches to prevent and treat autoimmune diseases."
     
    redrachel76 likes this.
  12. Enid

    Enid Senior Member

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    Late delay of thyroid problems here - good health before - missing something these Docs obviously - like one thing leads to another despite my genes at healthy 60 years old.
     
  13. Hip

    Hip Senior Member

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    There is a list of leaky gut supplements, along with PubMed refs, here.
     
  14. Tito

    Tito Senior Member

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    I don't understand that list of CAUSES of CFS. Celiac disease is not a cause of cfs, it is a disease in its own right that MIMICS cfs but it does not cause it. Otherwise you would also put aids, ms, etc. in the list too.
     
    redrachel76, justy and taniaaust1 like this.
  15. Ian

    Ian Senior Member

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    most procedures in dentistry can cause CFS

    extraction, failure to remove periodontal ligaments - cavitation with gangrene infection
    root canal - gangrene grows in the dentine tubules spreads to adjacent bone
    implant - open access hole from oral cavity to deep into the bone guaranteed infection
    amalgam - extreme toxicity
    crowns/bridges/braces - metal allergy potential for full blown auto immune disease
     
    EastTenn likes this.
  16. baccarat

    baccarat Senior Member

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    Not always easy to separate causes from symptoms, it's not that black and white.

    Anyhow causes must certainly include

    Stress and traumas
    Heavy metals, including dental amalgams
    Lyme disease and other nasty intracellular infections often misdiagnosed
    Parasites
    Yeast
    Mold
     
    EastTenn likes this.
  17. Mimi

    Mimi Senior Member

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    Yeah, good list baccarat. I was wondering if anyone would mention parasites. And xks201, glad you mentioned head injuries. Most people don't realize they can last for decades.
     
  18. Mimi

    Mimi Senior Member

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    FODMAP diet to stop feeding your SIBOs and allow your gut to heal.

    N-acetyl glucosamine (NAG) for repairing the glycocalyx that lines the intestines. Someone on the forum mentioned he took this, along with Glucasamine HCl and it healed his gut.

    See: http://www.ncbi.nlm.nih.gov/pubmed/11121904 for an interesting study on this.
     
  19. taniaaust1

    taniaaust1

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    add chemicals to that list too. Several kinds of chemicals esp stand out and have been know to be ME/CFS triggers.
     
  20. Rand56

    Rand56 Senior Member

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    hi Ian

    I can relate to this as a possible cause of me feeling worse. Some time ago I had to have a tooth extracted, and for some reason I can't even remember, he had a hard time extracting it. Not too long after that, I felt worse and the only possible cause I could relate it to was from the dental procedure. Did some reading up on it and I read where some dental procedures can put a lot of stress on the adrenals. To this day I have a fear of going back to the dentist, so I try to atleast maintain the health of my teeth with some occasional oil pulling and just recently started with some Cistus tea to help with keeping tartar off my teeth.
     

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