The Real ME: A Stock Photography Resource for the Media
We’ve all seen them in the news stories about ME/CFS: the guy in a suit at the office, yawning; the beautiful woman sitting at her desk with her immaculate make-up and elegantly coiffed hair, hand to her head and looking slightly pained.
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'My life got taken away from me' - what it's really like to suffer from Chronic Fatigue Syndrome

Discussion in 'General ME/CFS News' started by Ysabelle-S, Sep 5, 2017.

  1. Ysabelle-S

    Ysabelle-S Highly Vexatious

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    Article by Hannah Radenkova in the Daily Telegraph.

    The rest of the article is here: http://www.telegraph.co.uk/health-f...way-from-me---what-its-really-like-to-suffer/
     
  2. TiredSam

    TiredSam The wise nematode hibernates

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    Germany
    5th Sept 2016
     
  3. Ysabelle-S

    Ysabelle-S Highly Vexatious

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    Oh, sorry, someone tweeted it today, and I didn't notice the year date. There's probably another copy of it up here so I'll contact Sushi.
     
    TiredSam likes this.
  4. AndyPR

    AndyPR Senior Member

    MeSci likes this.
  5. Ysabelle-S

    Ysabelle-S Highly Vexatious

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    AndyPR likes this.
  6. Montana NAR

    Montana NAR

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    Why merge it? The story is still valid... and guess what? It's a year later and nothing has changed!

    Of course, this disease could have been around for over 35 years and "they" still wouldn't know what it is.

    Can you say "cover-up" and "denial"?
     
    Ysabelle-S likes this.
  7. MargUK

    MargUK

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    Aberdeen, Scotland
    I followed the link to her blog from the article - it's good - read all her entries in one sitting!
     
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  8. Joh

    Joh Inactivist

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    Yes, it's one of my favorite ME blogs, too (although it's sometimes a little sad because she has an amazing 100% supportive family and friends).

    Hannahs drawings are also wonderful, she was/is an illustrator. When I see her drawings I always think that it's unbelievable how much talent this disease keeps locked up at home worldwide.

    She also made a little doll that looks like her (little Hannah) and that attends weddings and birthdays and vacations instead of her. Little Hannah has a wardrobe (to be dressed appropriately at every occasion) and little accessoires and a lot of fotos from her adventures. It's so creative, funny and heartbraking sad at the same time.

    Hannahs article was quite heavily edited in the Telegraph and this is the original version:
    http://superpooped.blogspot.de/2017...spot.de/2017/09/pre-edit-telegraph-piece.html
     
  9. MargUK

    MargUK

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    Aberdeen, Scotland
    Yes I felt the same - she had such a promising career ahead of her. She's the same age as my daughter and I just couldn't imagine what it must be like to have so much of your life taken away from you at that age. I thought the idea of Little Hannah was brilliant but it must make her so sad at the same time not to be able to be there herself.
     
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