Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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"My GP just asked me if I'd seen the news that ME/CFS 'isn't real'" (Twitter post)

Discussion in 'General ME/CFS News' started by Dolphin, Nov 3, 2015.

  1. Dolphin

    Dolphin Senior Member

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    MEMum, SB_1108, alkt and 8 others like this.
  2. SilverbladeTE

    SilverbladeTE Senior Member

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    Somewhere near Glasgow, Scotland
    should ask the dumb bastard if the pay cut for junior doctors isn't real, either...and whether they'll soon be cutting pay and conditions for GPs...

    see how smart the sod is then! :p
     
    alkt, ukxmrv, Chrisb and 1 other person like this.
  3. *GG*

    *GG* Senior Member

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    Wow, great Dr! :(:)bang-head:

    GG
     
    CantThink likes this.
  4. minkeygirl

    minkeygirl But I Look So Good.

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    My pcp still uses a flip phone so I'm safe.
     
    jimells, alkt, Kina and 6 others like this.
  5. alex3619

    alex3619 Senior Member

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    The problem is, in part, that there is definitional blurring here, and the psychogenic brigade is blurring the lines a lot.

    I think we need to start with something like "every expert agrees that people with CFS are really suffering". Then maybe "CFS is such a broad diagnostic category that misdiagnosis might be on the order of 40% even if the doctor is careful, at least if they use the general CFS criteria". Then "however if you use ME criteria the misdiagnosis rate goes way down, and you can objectively measure most of the major symptoms". Point out that while CFS definitions may only be accurate, somewhat, less than 60% of the time, ME definitions using cutting edge technology seem to be accurate to 95% of the time.

    The problem is the diagnostic category of CFS is invalid. Doctors mostly kind of get that I think. Some then go on to conflate the diagnostic category, which like many diagnoses is man-made, with the disease the patients have. Its more about diagnostic accuracy, but some take that too far and go into denial mode.

    However as I pointed out in a recent blog, if you go from "this category is invalid" to "this disease does not exist", its such a leap of logic that if you believe it then you have to throw the DSM in the bin, as none of those are real either. Its a fallacy. Real disease, mislabelled, is still real disease. The people still deserve respect and care, its just the category that needs to be treated as speculative.
     
    Sea, alkt, Valentijn and 5 others like this.
  6. Snow Leopard

    Snow Leopard Hibernating

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    Just plain nasty! Why would a doctor say this to their patients?
     
  7. *GG*

    *GG* Senior Member

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    Job security is not an issue? They are just an ass?

    GG
     
    jimells, Marco and maryb like this.
  8. aimossy

    aimossy Senior Member

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    I had this happen sort of regarding a doctor saying to me that CFS wasn't a real illness. I asked her if she was a real doctor.
     
    MEMum, jimells, Art Vandelay and 21 others like this.
  9. maryb

    maryb iherb code TAK122

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    You're just a techno snob, nothing wrong with flip phones:) now your doc??that's a different story...
     
    ghosalb and Valentijn like this.
  10. maryb

    maryb iherb code TAK122

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    The doctor needs asking please find out the cause of my symptoms after giving me the wrong diagnosis. Over to you.....what an absolute a*se.
     
    CantThink likes this.
  11. lnester7

    lnester7 Seven

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    BecuAse the psy have a campaign and succeeding. We need to amp the education and amounts or articles all the good work in the last year is burried now with all the series of well placed and thought out articles.
     
    SilverbladeTE likes this.
  12. skipskip30

    skipskip30 Senior Member

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    Id be tempted to put in a formal complaint if your GP is basing their diagnosis on a newspaper headline.
     
    voner and Maria1 like this.
  13. SilverbladeTE

    SilverbladeTE Senior Member

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    this is one reason why we NEED a criminal or civil court case against them, whether people believe it or not
    because not until they are destroyed in court, will it HAMMER the message into the Public and Professional conscience.
     
    jimells, ghosalb, Ritto and 2 others like this.
  14. lnester7

    lnester7 Seven

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    @SilverbladeTE I think as CFS organization we can open a case for defamation of character: :rofl::rofl::rofl::rofl::rofl: literally.
     
    SilverbladeTE and ghosalb like this.
  15. BurnA

    BurnA Senior Member

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    Would there be anything wrong in asking sickandtiredcfs to name their Dr. on Twitter ?
     
  16. Sea

    Sea Senior Member

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    Further to the blurring is that different doctors have different ideas about diagnosis. Some will use ME criteria but diagnose CFS "because that's what ME is called in Australia", and at the other end of the spectrum some doctors will diagnose anyone who has chronic fatigue with CFS with no regard to criteria or exclusions.
     
    SOC likes this.

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