1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
The ePatient Revolution
Ryan Prior shares his experience and his thoughts from attending the Stanford Medicine X Conference as he contemplates the rising of the ePatient Revolution ...
Discuss the article on the Forums.

My experience with Valtrex

Discussion in 'Antivirals, Antibiotics and Immune Modulators' started by mikipe2, Feb 28, 2010.

  1. heapsreal

    heapsreal iherb 10% discount code OPA989,

    Messages:
    7,246
    Likes:
    4,570
    australia (brisbane)
    hi mike, you know that song, sitten onthe dock of the bay watching the time roll away, well that sums up how i got over this flu/bug, a letter from my doc and a week off work vegitating helped alot. Yes crunching on vit c like lollies for a few days helps, i was taking 5000-10000mg a day throughout the day.I also take a strong vit d supplement i get from the prohealth board, its 50000mg so i take it once a fortnight and it took my vit d levels from the low range up to the top pretty quick, have i noticed a diiference, not really but the science behind is convincing so i take it. Keep us posted on your progress as i find it interesting and im sure its helping others too.

    cheers!
  2. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

    Messages:
    4,044
    Likes:
    885
    Concord, NH
    LDN=Low Dose Naltrexone
  3. heapsreal

    heapsreal iherb 10% discount code OPA989,

    Messages:
    7,246
    Likes:
    4,570
    australia (brisbane)
    How are u traveling Mike? U still improving on valtrex??

    cheers!
  4. mikipe2

    mikipe2

    Messages:
    65
    Likes:
    2
    Australia
    Sorry for the delay, heapsreal. I'll make sure to give monthly updates (around the 26th-ish), but I'll probably just leave it at that in general. But anyway, here's my next entry :).


    (Almost) 6 Months

    FINALLY!!!

    After 2.5 months of on and off relapses, it seems that I’ve managed to completely shake this infection. I’ve been free from it for at least 2.5 weeks, and the last 1.5 weeks have been really wonderful health-wise. It seems that I’ve had another bump up in health compared to 4 months.

    I had a social night last night and was so clear-headed that I was able to completely keep up with the conversation for about 3 hours! I’d forgotten how much I like to talk in certain situations!

    Still spending most of my time on the couch, but I’m enjoying how easy basic errands and basic physical tasks are now (in moderation).

    I’m trying some light exercise again, which is probably a bad idea, but I think I’ll be ok if I go easy.
  5. heapsreal

    heapsreal iherb 10% discount code OPA989,

    Messages:
    7,246
    Likes:
    4,570
    australia (brisbane)
    good to hear. If u feel the urge to exercise then go for it, i wouldnt do more then twice a week though. Believe it or not i find weight training easier to recover from them mild aerobic stuff like walking, i think its because its easier to control more variables when weight training and i try not to get too out of breath from these, they last 20-30 mins on a good day.

    keep it up,
    cheers!!!
  6. mikipe2

    mikipe2

    Messages:
    65
    Likes:
    2
    Australia
    I'm the same, I find weights much more enjoyable, and more acheivable. I'm sure a number of factors come into play,

    1) Using the anaerobic (short burst) energy system is much more achievable in people with CFS (aerobic energy system is broken apparantly)
    2) You can take regular breaks while still achieving meaningful exercise
    3) No need for lengthy standing/walking (I stilll have orthostatic intolerance, although it's noticably less on good days, compared to before Valtrex)

    But I'm definitely going easy, I'm loving my reduced symptoms too much to ruin it from over-exercise. If I overdo the weights, I used to need about 3 days recovery, with the first day being particularly severe. I'm not yet brave/stupid enough to see how severe it is now, but I'm sure it's still not a good idea.

    I'm also very keen to strengthen my knee supporting muscles a bit, as my knee popped out a couple of times earlier this year and resulted in ongoing knee pain. This has cleared up now, but comes back if I go up, or particularly down, stairs too quickly.
  7. heapsreal

    heapsreal iherb 10% discount code OPA989,

    Messages:
    7,246
    Likes:
    4,570
    australia (brisbane)
    its good to feel almost normal again, some light at the end of the tunnel. Im glad ive gone back on famvir, i think it has better effect against cmv which i also have. yes, have to be careful not to push to hard to soon. sounds like u know how to read your own body.
    Your dr was abit skeptical, whats his views on your treatment now?

    cheers!!!!
  8. mikipe2

    mikipe2

    Messages:
    65
    Likes:
    2
    Australia
    I haven't actually seen him in a while, he was away last appointment so I saw someone else in the same clinic.

    Last time I saw him, and told him how much better my brain fog (in particular) was, he just typed it in the computer and didn't really say much. I'm not too worried what he thinks, he's very happy to give me the prescriptions, and keep checking my liver function, which is the main thing.

    How are you going anyway? Do you mean you're feeling almost normal again after the bad patch you had recently?
  9. Shirley33

    Shirley33

    Messages:
    1
    Likes:
    0
    Congratulations! I have been using Valtrex initially 8years ago and then to fight relapses. I like site Dr Daniel C Dantini, Florida. I hinitially took 1000mg three times a day following meals. However it was recommended to use300mg of Zantac one hour prior to breakfast and dinner. Dr Dantini also treats DELAYED food allergies and this has cleared up IBS,sinus, skin allergies, asthma, headaches etc. They're gone for good and I am eating a normal diet agin. Wonderful help! Highly recommended.
  10. muffin

    muffin Senior Member

    Messages:
    940
    Likes:
    5
    USA!
    Three months of Valtrex and not feeling much of anything. Still sleeping odd hours, still exhausted.
    Glad that others are doing well on the med. Those on Valtrex please continue to keep us updated. Cheers.
  11. heapsreal

    heapsreal iherb 10% discount code OPA989,

    Messages:
    7,246
    Likes:
    4,570
    australia (brisbane)
    try famvir muffin, it has a broader range of effects on different viruses. Many are finding famvir is lowering there titres to hhv6 cmv and ebv. i think if u have straight ebv valtrex is fine but if u have the other infections valtrex is ineffective against them and possibly bacterial co-infections too
  12. grant107

    grant107 Jean

    Messages:
    92
    Likes:
    0
    Ormond Beach, Fl
    I have been on Valtrex 4 months. I do not crash as often but other than that I see no difference. Maybe I'll try famvir.
  13. mikipe2

    mikipe2

    Messages:
    65
    Likes:
    2
    Australia
    Hi muffin and grant107,

    Thanks for sharing your experiences! I've actually gone ahead and copied your updates to Post 1 so that people can follow your progress more easily, I hope that's ok.

    Also, are you happy to tell us which of EBV/CMV/HHV6 you've tested positive for? I only ask because Dr Lerner primarily recommends Valtrex for those with EBV but not the other two.

    Thanks again for sharing your experiences. I'm so sorry that you're not having the same kind of experience/response as I am (although I still have a long way to go, and am anticipating that the improvement will plateau at some point).
  14. heapsreal

    heapsreal iherb 10% discount code OPA989,

    Messages:
    7,246
    Likes:
    4,570
    australia (brisbane)
    good on ya mike!! all sounds good your end. as far as ebv go's i have tested positive and negative but positive to cmv, famvir definately helps, i found valtrex didnt help, maybe only useful for ebv. but yes im starting to feel good gain. what dose of valtrex do u take??
  15. Jenny

    Jenny Senior Member

    Messages:
    1,225
    Likes:
    182
    London
    Can I ask - when people say they are positive for EBV, CMV etc, does this mean a high IgM or just a high IgG?

    Jenny
  16. ukxmrv

    ukxmrv Senior Member

    Messages:
    3,456
    Likes:
    1,968
    London
    I my case a high IGM that persists over decades.
  17. heapsreal

    heapsreal iherb 10% discount code OPA989,

    Messages:
    7,246
    Likes:
    4,570
    australia (brisbane)
    just positive to cmv with chronic elevated lymphocytes
  18. xrayspex

    xrayspex Senior Member

    Messages:
    659
    Likes:
    72
    u.s.a.
    does anyone know of the best test for ebv and hhv6, ones that a regular clinic could do but that wouldnt be lame.......?
  19. mikipe2

    mikipe2

    Messages:
    65
    Likes:
    2
    Australia
    I take 1g, 4 times a day (so 4g/day). Thanks for reminding me, that was the other thing I meant to ask grant107 and muffin.

    @Jenny. When I say I've tested positive for EBV, I mean just the antibodies test, not acute infection. I don't know which is which with IgM or IgG. In Australia we don't have any tests available to test for titres.
  20. mikipe2

    mikipe2

    Messages:
    65
    Likes:
    2
    Australia
    7 Months

    Still going great. I’ve maintained the improvement from 6 months, and improved again! Up until now the improvement has allowed me to do more low energy activities through-out the day/week (eg being on the computer), but I think I’m starting to get to a point where my ability to do medium/high energy activities might be increasing.

    I’ve been trying to do walking, and recently managed a ~30 minute walk 4 days in a row and actually feeling quite good during them(!), although I didn’t do anything else active on those days. I was quite rundown on the 5th day after over doing it on the 4th, but it resulted more of a ‘couch day’ rather than a ‘bed day’ which I used to often need.

    I used to absolutely love walking (the freedom, exploration and endorphins mainly, I think) when I was well, so I hope this isn’t just a big tease, and I’ll really be able to get back into going for longer walks eventually.

See more popular forum discussions.

Share This Page