vision blue
Senior Member
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Hi. I am new to this forum. I have had AI diagnosis for many years - BUT - the more I look, the closer everything looks to CFS as the true cause of the worst symptoms. One of the things I have is the "overexcited" thing with seeming autonomic problems; that is in fact how I found this site - someone's post of their story i swear I could have written myself.
These are my numbers for recent catecholomine etc. testing. Its from Labrix. I'd like to repeat using conventional lab, but navigating and begging from the medical system is such a pain. I'd like to know if anyone else has elevations on any of these.
(This is urine testing. The units are ug per gram of creatinine)
Shown is my value followed by the upper limit the range they gave
serotonin 142.9 H upper limit: 111
GABA 5.1 upper limit 6.74
dopamine 379 H upper limit 208.7
Nor epi 80 H upper limit 42.11
epinephrine 28 H upper limit 5.05
glutimate 129 H upper limit 78.51
I do not think I have a pheochromocytoma, and it appears as if when you don't have that, conventional docs don't care that your brain is being eaten by excitotoxic soup. (and if i do have POTS, which I do not think so, its the hyperandrenergic kind, but its not a perfect fit either)
For those with autonomic symptoms (impossible temperature control, blood pressure problems, heart rate problems, cold extremities, night sweats, hot flashes, sound light and smell sensitivity, migraine type head pain, feeling way overstimulated, dizzy and or vertigo), are any of your catecholomines or other related neurotranmitters etc. elevated? Anyone else have this or similar testing? (alot of different labs offer them under different names). My pattern look strange to anyone else too ? Am sort of stuck on the next steps so those who have been down this road or have numbers to compare would be very helpful
Thanks much. Input greatly appreciated.
These are my numbers for recent catecholomine etc. testing. Its from Labrix. I'd like to repeat using conventional lab, but navigating and begging from the medical system is such a pain. I'd like to know if anyone else has elevations on any of these.
(This is urine testing. The units are ug per gram of creatinine)
Shown is my value followed by the upper limit the range they gave
serotonin 142.9 H upper limit: 111
GABA 5.1 upper limit 6.74
dopamine 379 H upper limit 208.7
Nor epi 80 H upper limit 42.11
epinephrine 28 H upper limit 5.05
glutimate 129 H upper limit 78.51
I do not think I have a pheochromocytoma, and it appears as if when you don't have that, conventional docs don't care that your brain is being eaten by excitotoxic soup. (and if i do have POTS, which I do not think so, its the hyperandrenergic kind, but its not a perfect fit either)
For those with autonomic symptoms (impossible temperature control, blood pressure problems, heart rate problems, cold extremities, night sweats, hot flashes, sound light and smell sensitivity, migraine type head pain, feeling way overstimulated, dizzy and or vertigo), are any of your catecholomines or other related neurotranmitters etc. elevated? Anyone else have this or similar testing? (alot of different labs offer them under different names). My pattern look strange to anyone else too ? Am sort of stuck on the next steps so those who have been down this road or have numbers to compare would be very helpful
Thanks much. Input greatly appreciated.