I love my GP, I really do. She is the first to admit she hasnt got a clue as to what's wrong with me, but she'll be damned if she'll stop looking. She keeps sending me to different specialists in the hope that one of them will have that EUREKA moment that has been missing for a fair few years now. I've always had energy issues.....being unable to do what my peers did, but I muddled through. From time to time it bothered me enough to check in with Dr's but their solution was usually valium or anti depressants. This went on from about 17 till 35. And I have always had digestive issue. IBS if you will. Since then I have been getting more and more sensitive to foods, got tired more easily.....and 2 years ago started losing hair, gaining weight, had shocking fatigue and muscle pains. My Dr started investigating everything. I am so healthy it's not funny. lol At least I know I dont have the major nasties, or strange exotic rarities. First specialist diagnosis - I am a highly strung housewife in need of a happy pill...oh yeah, and I have fibromyalgia. Charming. Second specialist diagnosis - CFS. Definitely CFS. Yes I know ESR cant be high with CFS but that is what you have anyway. Change diet, take anti depressants and exercise with a physio. Next! Third, and most recent, specialist - Unspecified immune disorder,, no wait, sleep disorder, asthma and costochondrosis..... Working with this one. He has potential, but we have to talk some more. The few things I do have...... I wear a pain suit daily. From my shoulders to my toes, I hurt. When I first get up in the morning I have to hold onto things as I literally stagger to the bathroom. It does get better, but after every rest I have to get those muscles going again. Sometimes the pain gets worse in areas. My hands and feet in particular...other times my rib cage wants to strangle me. I am tired. I dont sleep exceptionally well becuse of the pain, and I dont wake rested. I have found however that if I take a sleeping tablet that not only do I sleep better, but I hurt less in the mornings. I assume that may be a muscle relaxant thing? I itch. All over. It drives me nuts. Sometimes it gets so bad it turns into hives, but mostly not. I have burning welts on my cheeks....red and hot like a chemical burn. Very unpleasant. My eyes swell and get gritty. All these are allergic symptoms, but what i may be allergic to I have no idea. I take mass amounts of anti histamines. I am losing my hair still. (not to mention my marbles) Labs ..... Eratic B12 - Sky high after an injection, 6 weeks later down low low. Elevated CRP - not hugely around low 20's Elevated ESR - again not huge at 48 My IgG is down at times, but not always Blood pressure is high when it was always low Iron is high I think my DHEAS is on the low side, still having trouble figuring that one out. What I have found helpful are a very strange combination of things..... As I said, sleeping tablets help first thing in the morning. I move much easier and my mood is lighter because of it. Powerade. The isotonic sports drink. I kno it's nuts and I dont even like them, but some days (many days actually) I can be lying on the couch barely motivated to move because of pain and brain fog, when one or two bottles of Powerade can have me up and doing things within 30 minutes. It's crazy. I looked at the ingredients...salt, sugar, two potassiums. But y potassium levels are fine according to blood tests. I dont get it. It doesnt fix me. I still hurt and everything but it makes things better. No idea why. Pain wise I combine paracetamol and ibuprofen and a smidge of caffeine. Since I react terrible to anything stronger I try to make do with these for pain. Except that my present specialist has me trying Fentanyl Transdermal patches atm, and I really dont like them. Eating lots of small meal for energy. Probably another reason I've put on weight. I try to keep it healthy but I fade if I dont eat every couple of hours. I am still sure that this is a malabsorption issue.....biut how to prove it is the question. My gut has been tested back to front, and is fine. Not sure if I expect you guys to have any answers, you all have your own battles to fight. But thanks for listening anyway......I get so frustrated. Crying a lot these days. Just want a break, you know? I'd like to play with my kids, socialise with friends, or heavens forbid, do some work.