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My complete protocol - recovering well from bad 7 years+ CFS

Discussion in 'General Treatment' started by Carter Burke, Dec 16, 2009.

  1. andreamarie

    andreamarie Senior Member

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    I skimmed the thread and will take the time to read it carefully.
    But I have one simple question: how did you include activities of daily living, e.g. showering, making meals, phone calls etc. in your activity level?
    Also, how did you deal with doctor's appts. and necessary outings? They really do me in. I've cut out many things by doing things online.
    I need a wife (I'm a woman)
    I am being sent to a mito specialist who is really interested in CFS patients. my doc said some people improve with him, some don't.
     
  2. Daffodil

    Daffodil Senior Member

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    maybe following a strict, non-inflammatory diet early on in the illness can lead to significant improvement, since the inflammation in this disease seems to be coming from the microbiome.

    it might be a little more complicated with later-stage illness.
     
  3. triffid113

    triffid113 Day of the Square Peg

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    Michigan
    Does anyone know if PQQ helps? It helps you grow new mitochondria (idk how fast, nor how well they function with existing problems like inflammation). I read a sports magazine which said the point of not exercising at the same intensity each day is to enable generating more mitochondria on less intensity days and that made me wonder if we could get the benefits of working out by popping a pill??!) I have never tried these seriously because they are expensive and I already take so many pills. But - how cool if a pill could replace exercising-?! Just putting it out there for anyone who can afford to experiment.
     
  4. knackers323

    knackers323 Senior Member

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    Very interested in this thread
     
  5. Xhale19991

    Xhale19991

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    Great thread
     
  6. jann1033

    jann1033 Senior Member

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    I'm happy this seems to be helping you. However I am curious as to how long you have been feeling better. Wondering as after 10 yrs of CFS I began pacing , making sure I took care of other health problems etc. After 12 yrs of that thought I was OK to take a very part time job (maybe by then 50% of pre CFS energy with things like tremors that never really left) 3 + years ago) but eventually it took its toll. I'm not in relapse but serious flare, back to where I was 15 yes ago.. Personally I wonder if CFS ever truly goes away or just is more manageable sometimes. I hope you don't have a similar crash. I never got to the point of any but the most minor (IE a short walk with lots of rest stops) exercise and always had post ex malaise.
     
  7. Sirshocking

    Sirshocking

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    Carter, can you PM me please?
     
  8. Wayne

    Wayne Senior Member

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    Ashland, Oregon
    Hi Sirshocking,

    It looks like Carter is no longer an active member on this forum. Unfortunately, this seems to happen all too often when someone posts that they've significantly improved or recovered. Fortunately, he left this most interesting thread behind before departing.
     
    Sirshocking likes this.

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