Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
Discuss the article on the Forums.

My CFS/CFSAC Testimony for 10/2009 Meeting

Discussion in 'Action Alerts and Advocacy' started by LaurelB, Sep 27, 2009.

  1. shiso

    shiso Senior Member


    Such a great job on the video - so eloquent, and moving in its simplicity and straightforward truth and grace - and congratulations that it will be viewed at the October meeting!

    Just creating it must have been a lot of work and it must have been great to get the feedback from fellow patients, but it must also be satisfying at another level that your voice will now reach a government advisory committee and researchers. You've done great for so many of us who can't be at the meeting and who haven't been able to express ourselves as effectively.

    I echo everyone else's comments and thank you!
  2. LaurelB

    LaurelB Senior Member

    Thanks for all the congrats and all the wonderful comments, everyone! Can't tell you what it means to me. I've been really so touched by it all. Thank you.

See more popular forum discussions.

Share This Page