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My AZT + RAL Trial

Discussion in 'XMRV Testing, Treatment and Transmission' started by ladybugmandy, Mar 25, 2010.

  1. ladybugmandy

    ladybugmandy *****

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    xxxxxxxxxxxxxxxxxx
  2. Kati

    Kati Patient in training

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    Good luck Sue, let us know how you're doing and am glad you have a doctor that follows you.
  3. SunnyGal

    SunnyGal Senior Member

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    Good luck, Sue, and thanks so much for keeping us posted on how you do. Hope you get significant help from this.

    Sunny
  4. subtr4ct

    subtr4ct Senior Member

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    Best of luck. Please do keep up posted not only on your AZT experience but on your XMRV status as well. I'm sure reports of your AZT experience will be greatly appreciated by many here.
  5. Navid

    Navid Senior Member

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    sue:

    i hope, hope, hope the azt helps you feel a bit better. all my thoughts are with you. good luck. keep us posted.

    lisa
  6. Esther12

    Esther12 Senior Member

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    Surely you should at least get tested for XMRV first?

    This all seems really premature, and I'm sorry you feel so desperate that you're willing to try this. I think it's a bad idea, but I know we all have to make our own decisions. Hopefull you'll feel better soon.
  7. Nina

    Nina Senior Member

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    Sue, I think only the very, very ill might be able to understand. And maybe not even all of them. Different people don't always make them same choices given the same circumstances.

    I totally understand what it feels like to try ANYTHING.

    I wish you the best of luck that this treatment will help you!! Keeping you in my thoughts.
  8. garcia

    garcia Aristocrat Extraordinaire

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    Hi Sue,
    many thanks for keeping us updated.
    Do we have any info on what level of improvement the CFS patients on AZT experienced?
  9. omerbasket

    omerbasket Senior Member

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    Sue,
    Good luck with AZT - hope it will make you feel much better. Your case would not be any kind of a study (because it's a single case), but it will surely be very interesting for me - and moreover, if that drug do works for you, I think it might say that it works against XMRV and that XMRV is the cause of ME/CFS.
  10. ukxmrv

    ukxmrv Senior Member

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    Wishing you all the best, Sue!
  11. Hope123

    Hope123 Senior Member

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    Sue, my best wishes to you!

    AZT, like all drugs, has side effects but if you have someone knowledgeable following you, that makes a big difference. As with everything, risk and benefits must be weighed individually.

    If you do get better and feel up to it at some point, please ask your doc to publish a case report in the medical literature. If he doesn't want to do it, ask if someone at the WPI would be interested. One person does not make a study but case reports are what can initiate formal studies.
  12. Kati

    Kati Patient in training

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    Thank you Sue, you make my day!!!
  13. kat0465

    kat0465 Senior Member

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    Sue,
    Im keeping my fingers crossed also! hope you have an easy time with the med and it does the trick for you.
    just remember theres a lot more meds to try if this one isn't right for you. your a tough woman, and i appreciate you putting yourself out there to try that med!
    whatever happens, it will benefit all of us! Thank You.
    Kat
  14. leaves

    leaves Senior Member

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    Thinking of you and wishing you all the best
  15. Forebearance

    Forebearance Senior Member

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    I second what leaves said. Thinking of you and wishing you the best, Sue!
    Forebearance
  16. serenity

    serenity Senior Member

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    best of luck - really really hoping for the best for you.
  17. bluebonnet

    bluebonnet

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    I'm pulling for you, Sue!! Good luck!! :Retro smile:
  18. Hope123

    Hope123 Senior Member

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    Well, let's just say I can't say anything right now.
  19. glenp

    glenp "and this too shall pass"

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    Vancouver Canada suburbs
  20. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    All the best, cheers!!!!
    Dan

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