1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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New Exercise Study Brings Both Illumination and Questions
Simon McGrath looks at new objective evidence of abnormal response to exercise in ME/CFS patients, and the questions that researchers are still trying to answer ...
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Must see!!! Www.cdcchatter.net - pandora's box is open!!!

Discussion in 'General ME/CFS News' started by muffin, Jan 8, 2010.

  1. muffin

    muffin Senior Member

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    USA!
    All you guys are just adorable!

    And you all are indeed very special people. Funny how the CFIDS/ME sick seem to be the types of people that I like, admire, respect and bond with. It's not just a shared disease, but shared personalities, etc.

    I have been called weird all of my life for reasons unknown. But since the people calling me Weird were nasty anyway I paid them no attention. This disease has made some personality changes as diseases do cause personality changes = how can they not. BUT, the basic good qualities of us all are still there and I think even stronger. NOT that any of us needed to learn lessons in kindess or decency from this misearble disease.

    Anyway - You all are indeed special and I am very pleased to be with you all. Thank you all for your support and kind words when I have needed them. Hugs to you all - ME!
  2. JustJack

    JustJack put on yer dancin' shoes

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    Sacramento CA
    Thanks too

    Thanks girls, for being here.
    I find comfort in the ether...

    Wierd women unite....I have always been weird, eccentric, I guess, imaginative and driven. Always want to excel, even in ME/CFS. I have hit so many walls I am brused, spent 2008 in bed, cried alot. 2009, well, that's another lost year and I guess at the beginning of 2010, I am feeling rather melancholy, a bit directionless, drifting through the haze. Strange and weird, the world keeps going and here I sit. Can't even afford to get upset about it...cause I just make myself feel worse.

    Ah me, I do flare the dramatic. I probably am suffering from not getting to let it all out, like I used to.
    I am certainly calmer and much more boring.

    With affection,
    JJ in Sac:cool: (trying to stay away from Jackie cause there is one here already) LOL:victory:
  3. Koan

    Koan Be the change.

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  4. flybro

    flybro Senior Member

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    pluto
    My signature says it all

    We should put a sign over the forum door that reads :-

    Welcome home to all those that have an abundance of

    Courage Intelligence Endurance Compassion Empathy Humour Laughter Strength Patience Resiliance
  5. jace

    jace Off the fence

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    England
    CDC chatter glitch

    Looking to see if there was anything new on CDC chatter I clicked on the second item, head article of what looks like a long thread, about the 83 year lockdown of CFS papers in the UK. But the page was not there, so I tried the comments. All the same, pulled down. I'm curious as to what is happening here.

    jace x

    PS you may know already, but if not... on the left side is a search box, enter CFS and it'll take you to the page I'm talking about.
  6. Abraxas

    Abraxas Senior Member

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    Thanks jace, interesting. I find it diffcult to navigate that site. I found the comments about the 83 yr lockdown by clicking the link you provided / entering CFS in the search box / selecting the second link in the list (all as you suggested) then selecting 'flat' from the display at the top of that page Then you can see the comments you refer to if you scroll down near the bottom of that page I think.

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