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And don't forget the disability benefits.MUS services (and CBT) have been "sold" to government health agencies and to commissioners as a means of saving the NHS £millions
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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And don't forget the disability benefits.MUS services (and CBT) have been "sold" to government health agencies and to commissioners as a means of saving the NHS £millions
And don't forget the disability benefits.
Been reflecting on this...given the notorious demands of junior doctor training (long hours, no sleep), there's very little chance that a person with a chronic condition would get to become a doctor. Wonder what the stats would be on young medics with disabilities? Fewer than in the general working population? Fewer than among other young professionals? Almost certainly. This is a real problem and a good reason for patient experience as described by patients themselves to be a major part of medical training, medical conferences, and guideline decisions.I think, basically, the whole thing is now a huge racket. It's that, or stupidity and/or gullibility is now a prerequisite for medical school or studying psychology. The main thing that bugs me is that well and largely non-disabled people are sticking us all under a metaphoric microscope to see what is wrong with us and their perceptions of what is wrong with us are hugely rooted in widespread societal prejudices against the ill and disabled, prejudices that medical training or studying psychology appear to leave untouched at best, or even magnify at worst. Especially if there's a career to be made out of exploiting these prejudices. Their constant attempts to treat us as psychologically flawed are just another manifestation of long-held beliefs about the ill. There is a really nasty whiff coming off this BPS crowd. What all these illnesses need is proper biomedical research and better funding, but some of the so-called professionals who've hitched a ride on our backs are not actually qualified to treat these diseases. They'll be out of a job come the time science moves on.
Yes, thank you so much, @Dx Revision Watch. They would love all their activities to slip quietly under the radar!@Dx Revision Watch Thank You so much for putting all this in the "PR Domain". I have been unable to bring myself to like some of the posts, but your dedication and persistence is appreciated.
Been reflecting on this...given the notorious demands of junior doctor training (long hours, no sleep), there's very little chance that a person with a chronic condition would get to become a doctor. Wonder what the stats would be on young medics with disabilities? Fewer than in the general working population? Fewer than among other young professionals? Almost certainly. This is a real problem and a good reason for patient experience as described by patients themselves to be a major part of medical training, medical conferences, and guideline decisions.
Doubt this recent Muppets conference had any patients or carers to speak - wonder how common that is at these events? What are they learning if they're not learning how patients feel about treatment?
Gawd, she makes Cruella de Vil look warm hearted in comparison! Particularly like her attempt at 'empathy'!CBT for CFS : warning you might explode
And this from the NHS:
Hrm, aren't lifetime achievement awards given at the end of someone's career?The Award in memory of Alison Creed for life time achievement in the field of Psychosomatic Medicine/ Consultation Liaison Psychiatry.
Awarded to: Prof. Per Fink, Aarhus
The quacks believe that certain symptoms which can be influenced by thoughts or feelings are always due to psychosomatic factors: tachycardia, pain, fatigue, etc. If everyone with a genetic disease has those symptoms, it accordingly must be psychosomatic, in their warped little world. They won't allow for the possibility that those symptoms can be caused by purely physiological factors.Joint hypermobility/EDS is psychosomatic?
Really?
Hrm, aren't lifetime achievement awards given at the end of someone's career?
The quacks believe that certain symptoms which can be influenced by thoughts or feelings are always due to psychosomatic factors: tachycardia, pain, fatigue, etc. If everyone with a genetic disease has those symptoms, it accordingly must be psychosomatic, in their warped little world.
They won't allow for the possibility that those symptoms can be caused by purely physiological factors. So they will claim that the research, while showing that EDS affects collagen, also shows that EDS causes psychosomatic symptoms. Their conclusion is basically that the gene which damages collagen also causes the same people to imagine symptoms. EDS goes from being a genetic collagen disorder to a genetic collagen disorder + genetic psychiatric disorder (which is somehow still magically fixed with CBT).
This is why you don't let quacks conduct genetic research. Ever.
@lilpink would it be a good idea to put the WEA group card in a separate thread to alert people to sign. I suspect some find this thread too depressing to plough thro'.
I was puzzling about why hypothyroidism would be on that list. I suffer from a number on that list, hypothyroidism included (diagnosed long before ME/CFS).Somatic illnesses include irritable bowel, dysfunctional esophagus, multiple chemical sensitivity, dizziness or unsteadiness (central vestibular pattern), chronic fatigue, fibromyalgia, glossodynia, vulvodynia, hypothyroidism, asthma, migraine, temporomandibular dysfunction, and intolerances or food and drug hypersensitivity.
@lilpink would it be a good idea to put the WEA group card in a separate thread to alert people to sign. I suspect some find this thread too depressing to plough thro'.
@Dx Revision Watch Thank You so much for putting all this in the "PR Domain". I have been unable to bring myself to like some of the posts, but your dedication and persistence is appreciated.
I cannot currently locate the thread where you have summarised CMRC info on its charter. I came across a printed version of the CMRC charter, dated 25 Feb 2013, which I could scan or possibly find on downloads, if that helps.
Been reflecting on this...given the notorious demands of junior doctor training (long hours, no sleep), there's very little chance that a person with a chronic condition would get to become a doctor. Wonder what the stats would be on young medics with disabilities? Fewer than in the general working population? Fewer than among other young professionals?
If everyone with a genetic disease has those symptoms, it accordingly must be psychosomatic, in their warped little world. They won't allow for the possibility that those symptoms can be caused by purely physiological factors.
Here is more from the presenter et al:
https://www.intechopen.com/books/a-...chosomatics-the-new-neuroconnective-phenotype
Chapter 8
Joint Hypermobility, Anxiety, and Psychosomatics — The New Neuroconnective Phenotype
By Guillem Pailhez, Juan Castaño, Silvia Rosado, Maria Del Mar Ballester, Cristina Vendrell, Núria Mallorquí-Bagué, Carolina Baeza- Velasco and Antonio Bulbena
DOI: 10.5772/60607
Abstract: In this chapter, after summarizing the concept and diagnosis of the Joint Hypermobility (Hyperlaxity), we review case control studies in two directions: Anxiety in Joint Hypermobility and Joint Hypermobility in Anxiety disorders, studies in nonclinical samples, review papers, and one incidence study. Collected evidence tends to confirm the strength of the association described two and a half decades ago. Common mechanisms involved include genetics, autonomic nervous system dysfunctions, and interoceptive and exteroceptive processes. Considering clinical and nonclinical data, pathophysiological mechanisms, and present nosological status, we suggest a new Neuroconnective phenotype in which together around a common core Anxiety-Collagen hyperlaxity, it includes five dimensions: behavioral, psychopathology, somatic symptoms, somatosensory symptoms, and somatic illnesses. Somatic illnesses include irritable bowel, dysfunctional esophagus, multiple chemical sensitivity, dizziness or unsteadiness (central vestibular pattern), chronic fatigue, fibromyalgia, glossodynia, vulvodynia, hypothyroidism, asthma, migraine, temporomandibular dysfunction, and intolerances or food and drug hypersensitivity. It is envisaged that new descriptions of anxiety disorders and also of some psychosomatic conditions will emerge and different nosological approaches will be required.
Keywords: Anxiety disorders, joint hypermobility, hyperlaxity, psychosomatic medicine, phobic disorders
Full chapter is Open Access and there is also aPDF.
I'm going to do the same. Even though I've started having abnormal blood results I will not be going to them about anything related to my tiredness and weakness. I have such a nice GP but I'm cautious due to the degrading treatment I've experienced in the NHS plus this new scheme they are rolling out. It's very triggering to know that this is how they are treating vulnerable people. I wish I could do more but I feel like it's too late..Well said.
Crazy isn't it — I'm spending a lot of time at the moment thinking about ways I can shield myself from the attentions of the health service when it comes to ME. I'm seriously considering telling my GP I've had a full recovery (I can fake it for 15 minutes) so I no longer have the diagnosis. Then I can just see the GP for unrelated things. I don't want these fools coming anywhere near me.
This whole thing is going to make the read code system for medical records even more useless and inaccurate than it already is if all that's going to be listed is MUS...