New Atmosphere, New Vision: Gibson and Whittemore Kick Off Invest in ME Conference 2016
Mark Berry reports on Dr. Gibson's introduction and Dr. Whittemore's keynote speech, at the 11th Invest in ME International ME Conference in London.
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MUS, PPS services and integration into NHS primary care - what's happening across the UK?

Discussion in 'General ME/CFS Discussion' started by Dx Revision Watch, Jan 11, 2017.

  1. Cheshire

    Cheshire Senior Member

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    Wow, the art of transforming a vague and unprovable hypothesis into a marketing concept...

    This is so obviously exagerated and oversold, both bombastic and sufficiantly vague to mean anything to anybody. I'm speechless...

    Thanks @Dx Revision Watch for putting all that together in a dedicated thread.

    Helen Payne seems particurlarly "creative" in the way she presents things, and as all the rest of the clique, does not hesitate to hide things and lies.
    I started to listen to the video you linked to in @Countrygirl thread and to her big study presentation, and everything is so obviously biased in her demonstration.
    That's desperating that such a bad work is promoted in such a way, with terrible consequences for patients.

    For example, the criteria for entering the study (p.14) makes a MH diagnosis mandatory:
    But whenever she speaks, she generalises her results to anyone with "MUS", with or without MH problems. That is so wrong and dishonest and unscientific...
     
    suseq, Valentijn, Jan and 7 others like this.
  2. user9876

    user9876 Senior Member

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    I think one of the reasons they talk about patients doing this subconsciously is so that they don't feel guilty about blaming patients.
     
    Valentijn, Jan, trishrhymes and 3 others like this.
  3. Dx Revision Watch

    Dx Revision Watch Suzy Chapman, Dx Revision Watch

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    (Some of these links will have appeared on other PR threads.)

    Pathways2Wellbeing

    http://www.pathways2wellbeing.com/

    Pathways2Wellbeing is a spin-off company from the University of Hertfordshire.

    Prof Helen Payne ( Profile ) seeks to "embed" pathways2wellbeing into primary care and drag ME, CFS, IBS, FM kicking and screaming to her ‘The BodyMind Approach’ (TBMA®) therapy sessions.

    She's targeting the Netherlands, too:

    Here's a flyer for prospective facilitators to deliver the ‘The BodyMind Approach’ (TBMA®) - "derived from authentic movement, dance movement, psychotherapy, experiential learning methods, mindfulness practices and group analysis":

    PDF Flyer: http://t.co/Ky4whyCIYh

    A taster from the Netherlands flyer:

    [​IMG]

    She's hawking it in Slovenia, too:

    http://www.napovednik.com/dogodek390285_ples_kot_terapija_pogovor_s_prof_dr_helen_payne


    There's a training overview here for group facilitators:

    http://www.pathways2wellbeing.com/v6 overview.pdf


    She also does this stuff at intensive retreats:

    http://admp.org.uk/2016/06/

    "UKCP accredited psychotherapist; MBACP; ADMP UK Snr. Reg. movement psychotherapist. Helen is one of the leading international experts in the field of Body/Movement Psychotherapy.

    "...Authentic Movement (AM) will be the method used during this intensive. Pioneered by Mary Starks Whitehouse in California, AM enables a direct connection to the depths of our unconscious, accessing the rich resources of our intuitive wisdom expressed through the embodied word, image, sensation and relationship as well as through natural, rejuvenating movement. Founded on Jung’s concept of the active imagination and the collective unconscious, authentic movement also derives from dance movement therapy, play therapy, groupwork and spiritual practice where symbolic meaning is seen in physical expression. As practised with Helen it has a safe, self-directed, non-judgemental and empathic framework. Participants learn to dwell more easily in their bodies, and to engage creatively with a direct experience of the self beyond words and concepts. It can assist in developing body awareness, body-mind-spirit connections and kinetic meditation where mindfulness is crucial to practice. The roles of witness and mover are explored in dyadic, triadic and group formations with the four phase process. The retreat will provide ritual, witnessing and movement experiences, silence, verbal and symbolic reflective processes, as well as small teaching seminars. Due to the environment we will explore participatory consciousness which can emerge through engaging in authentic movement in relationship with all aspects of the sentient world. Be inspired in a setting with wildlife up close, beautiful landscapes, places to explore, good food and friendly faces. Studio sessions will be interspersed with reflection time in silence, opportunities to experience nature and artwork periods. Seminars will address questions arising from your explorations in studio time as well as those relevant to your professional practice..."


    For those who haven't already seen it, here is Prof Helen Payne hawking her BodyMind Approach’ (TBMA®) stuff at a presentation. The video is 8 minutes long:




    2:35mins: "This is why the GPs like it..."

    ''...so they just keep going back to the GP, every day - every single day, these patients go back..."

    Every single day? Really?

    At one point, she stumbles over the term "Bodily stress syndrome". I have pointed out to her that ICD-11 has not yet approved the Goldberg group's proposals for the Primary Care version of ICD-11 and that there are two work groups making recommendations for the revision of the somatoform disorders.


    Prof Payne has another presentation, here:




    Hard-to-control Unexplainable Medical Symptoms: Wellbeing for Body and Mind’ - Professor Helen Payne

    This one is 54 mins long and I have not yet listened to it. But I'm told that at 8.44 in from the start, a slide lists "Chronic Fatigue" and "ME".

    There's a PowerPoint presentation here:

    http://www.eoescn.nhs.uk/index.php/download_file/force/2008/261/

    Complementing IAPT for people with medically unexplained symptoms (MUS) unable to access services
    Professor Helen Payne, University of Hertfordshire Susan Brooks,
    Pathways2wellbeing east of England IAPT conference 1 July 2015
    copyright pathways2wellbeing IAPT and MUS


    A short YouTube advert, here:



    Pathways2Wellbeing Manor Pharmacy
    7 Aug 2015


    A paper published here (only the Abstract available):

    http://www.sciencedirect.com/science/article/pii/S0197455615300435

    The Arts in Psychotherapy
    Volume 47, February 2016, Pages 55–65

    Clinical outcomes from The BodyMind Approach™ in the treatment of patients with medically unexplained symptoms in primary health care in England: Practice-based evidence

    Helen Payne, MPhil, PhD, UKCP Reg. Psychotherapist, ADMP UK, AVRa
    Susan D.M. Brooks, BSc, MA, MA, MBAb


    A manuscript which can be downloaded in full, here:

    http://researchprofiles.herts.ac.uk...eaks_its_Mind_2015_The_Arts_in_Psychother.pdf

    Accepted Manuscript

    Title: The Body speaks its Mind: The BodyMind Approach® for Patients with Medically Unexplained Symptoms in Primary Care in England

    Author: Helen Payne
    PII: S0197-4556(14)00136-1
    DOI: http://dx.doi.org/doi:10.1016/j.aip.2014.12.011
    Reference: AIP 1302



     
    Last edited: Jan 16, 2017
  4. Countrygirl

    Countrygirl ME is not MUS

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    [QUOTE="Dx Revision Watch, post: 801639, member: 338
    Clay modelling to examine the symptoms purpose, anyone?

    I'll be posting more on Prof Helen Payne's Hertfordshire University spin-off, tomorrow.[/QUOTE]

    It just beggars belief!

    I am trying to screw up courage to see my GP......................but I am still worried that I will blow on all four cylinders if I am greeted by this nonsense.
     
    meandthecat, TiredSam, Jan and 4 others like this.
  5. Countrygirl

    Countrygirl ME is not MUS

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    Which in translation means when referring to ME : We haven't bothered to read the science for the last 30 years, we have no respect for the experience and knowledge of our patients and we find it convenient to label them with personality flaws as that let's us off the hook and keeps us on our gravy train.

    If they don't possess the intellect to grapple with a complex illness why don't they just get themselves a proper job like stacking shelves in Tesco where at least they won't be inflicting harm on people?

    There.............I feel better for that.
    :p

    (Clay modelling indeed.:lol:)

    (I have a hunch that I am still not ready to keep my cool in a GP's appointment:aghhh: )
     
  6. Dx Revision Watch

    Dx Revision Watch Suzy Chapman, Dx Revision Watch

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    With the proliferation of MUS and PPS services in some parts of the country, I wonder how long it will be before some of the dedicated CFS/ME services are decommissioned in favour of MUS/PPS services or MUS/PPS embedded within primary care?


    Notes from EACLPP Workgroup meeting in Budapest July 2011


    PDF: https://dxrevisionwatch.files.wordp...ically_unexplained_symptoms_budapest_2011.pdf

    Report from Working group meeting on MUS/somatisation/bodily distress, Budapest July 1st 2011

    Extracts:

    [​IMG]
     
    Last edited: Jan 19, 2017 at 5:36 AM
  7. Countrygirl

    Countrygirl ME is not MUS

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    I think we already have it. Isn't that what Mary Whitehouse is introducing round the UK's surgeries?
     
    Invisible Woman and trishrhymes like this.
  8. Countrygirl

    Countrygirl ME is not MUS

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    :jaw-drop:

    She cannot be serious??!!

    Do doctors really accept this rubbish?

    Hard to believe.

    Have they lost their collective mind?
     
    Solstice, TiredSam, Jan and 7 others like this.
  9. Dx Revision Watch

    Dx Revision Watch Suzy Chapman, Dx Revision Watch

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    For any readers who haven't started at the beginning of the thread:

    Please add to this thread, now, or in the future:
    • if there are MUS or PPS services or GP managed MUS services or IAPT services implemented or piloting in your own NHS Trust area;
    • if you come across other examples of MUS or PPS services or GP managed MUS or IAPT services in other areas of the country;
    • if you have been told by your GP that your ME, CFS, FM or IBS is now being managed as a MUS or PPS or under mental health disorders;
    • if you have been referred to a MUS or PPS service;
    • if your GP has recently expressed a change of views on the management of ME, CFS or has been pressuring you to accept a referral for CBT or for other psychological therapies.
    • if your GP has recently reviewed your prescription med regime and is proposing to reduce or withdraw any medications that were specifically prescribed for managing your ME, CFS symptoms.
     
    Last edited: Jan 19, 2017 at 5:37 AM
  10. Cheshire

    Cheshire Senior Member

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    What strucks me about the whole MUS concept is that it is essentially an English (and a bit Dutch too) thing. Nearly nothing in France, very few in the USA...

    Not to say that psychosomatic theories do not exist in other countries, but do someone have an idea why this specific form of psychosomatic view is so widespread in the UK?
     
  11. A.B.

    A.B. Senior Member

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    https://en.wikipedia.org/wiki/Divination

    Divination (from Latin divinare "to foresee, to be inspired by a god",[2] related to divinus, divine) is the attempt to gain insight into a question or situation by way of an occultic, standardized process or ritual.[3] Used in various forms throughout history, diviners ascertain their interpretations of how a querent should proceed by reading signs, events, or omens, or through alleged contact with a supernatural agency.

    Nowadays the supernatural entity is the psyche. Invisible and mysterious, only a select few can hope to understand it. Certainly not the patients themselves.
     
    Solstice, TiredSam, Jan and 4 others like this.
  12. Dx Revision Watch

    Dx Revision Watch Suzy Chapman, Dx Revision Watch

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    "...A person will meet the criteria for SSD by reporting just one bodily symptom that is distressing and/or disruptive to daily life and having just one of the following three reactions to it that persist for at least six months:
    1) 'disproportionate' thoughts about the seriousness of their symptom(s); or 2) a high level of anxiety about their health; or, 3) devoting excessive time and energy to symptoms or health concerns.

    "Unless DSM-5 changes these incredibly over inclusive criteria, it will greatly increase the rates of diagnosis of mental disorders in the medically ill – whether they have established diseases (like diabetes, coronary disease or cancer) or have unexplained medical conditions that so far have presented with somatic symptoms of unclear etiology.

    "The diagnosis of mental disorder will be based solely on the clinician's subjective and fallible judgment that the patient's life has become 'subsumed' with health concerns and preoccupations, or that the response to distressing somatic symptoms is 'excessive' or 'disproportionate,' or that the coping strategies to deal with the symptom are 'maladaptive'.

    "These are inherently unreliable and untrustworthy judgments that will open the floodgates to the overdiagnosis of mental disorder and promote the missed diagnosis of medical disorder.

    "The DSM-5 Work Group is taking a flying leap into the unknown. There are no published research data on the likely prevalence rates, clinical characteristics or treatment of 'Somatic Symptom Disorder,' or its validity and safety as a construct. Decisions to code or not to code will hang on the arbitrary and subjective perceptions of DSM end-users who often spend very little time with the patient and lack training in psychiatry etc"


    Extract from Allen J Frances M.D. with Suzy Chapman
    DSM5 in Distress
    Mislabeling Medical Illness As Mental Disorder
    The eleventh DSM 5 mistake needs an eleventh hour correction.
    Posted Dec 08, 2012
     
    Last edited: Jan 12, 2017
  13. Dx Revision Watch

    Dx Revision Watch Suzy Chapman, Dx Revision Watch

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    You might come home with a tub of PlayDoh.
     
    Solstice, Ritto, antherder and 5 others like this.
  14. Countrygirl

    Countrygirl ME is not MUS

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    Yes, yes, yes and yes.

    Devon has been invaded by the psychobabblers.
     
  15. Dx Revision Watch

    Dx Revision Watch Suzy Chapman, Dx Revision Watch

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    That extract came from the Intensive Retreats - which are not the Pathways2Wellbeing sessions for MUS - but I wonder how many GPs buying into Pathways2Wellbeing will have scrutinized the group facilitators' literature.

    Perhaps they get no further than:

    "Potential savings
    The potential savings per GP per year from using Pathways2Wellbeing groups for all medically unexplained symptoms patients is 383 hours in consultation time and includes savings of:

    • £70,757 for consultations;
    • £22,537 for prescriptions;
    • therefore the total savings for medically unexplained symptoms patients per GP per year is £93,294; and
    • GPs have an increased capacity – approximately 383 hours per year per GP – and hospital referral letters, tests, scans and appointment costs are saved amounting to approximately £133,000 for every 30 patients.
     
    Last edited: Jan 12, 2017
  16. MEMum

    MEMum Senior Member

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    antherder, Countrygirl, Jan and 2 others like this.
  17. Dx Revision Watch

    Dx Revision Watch Suzy Chapman, Dx Revision Watch

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    In the Members Only thread, Countrygirl highlighted these extracts from

    http://researchprofiles.herts.ac.uk...eaks_its_Mind_2015_The_Arts_in_Psychother.pdf

    Title: The Body speaks its Mind: The BodyMind Approach® for Patients with Medically Unexplained Symptoms in Primary Care in England

    So that's all right, then....
     
  18. Dx Revision Watch

    Dx Revision Watch Suzy Chapman, Dx Revision Watch

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    Love it. It has to be "Okay With Clay".
     
    trishrhymes, Invisible Woman and Sean like this.
  19. Snow Leopard

    Snow Leopard Hibernating

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    It's bizarre that they simultaneously try to eliminate alternative medicine practises, while simultaneously accepting this sort of woo!
     
  20. Dx Revision Watch

    Dx Revision Watch Suzy Chapman, Dx Revision Watch

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    Indeed. And why isn't Ben Goldacre all over this?
     

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