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MS patient - turns out she has Lyme

Discussion in 'Lyme Disease and Co-Infections' started by Nielk, Jun 18, 2013.

  1. Nielk

    Nielk

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    http://www.dailymail.co.uk/health/a...air-cured--discovered-symptoms-TICK-BITE.html

    Mother diagnosed with MS and facing life in a wheelchair is cured - after she discovered her symptoms were due to a TICK BITE

    • Julia Marshall-Wessendorf, 37, was diagnosed with multiple sclerosis in 2010
    • An MRI scan showed lesions on her brain and spinal cord consistent with MS
    • Was on expensive drug regime and thought she faced future in a wheelchair
    • Developed other symptoms inconsistent with MS so did some research
    • Went to doctor and asked for test for tick-borne Lyme disease
    • It came back positive so she was treated with a simple course of antibiotics
    xchocoholic, August59, golden and 2 others like this.
  2. Nielk

    Nielk

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    Could Lyme cause brain lesions?
  3. liquid sky

    liquid sky Senior Member

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  4. Nielk

    Nielk

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  5. Ema

    Ema Senior Member

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    Oh, yes. Indistinguishable from MS lesions. What they are called (MS or Lyme) depends on the specialist you see.
    merylg, snowathlete and Nielk like this.
  6. ukxmrv

    ukxmrv Senior Member

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    Wouldn't other MS patients have noticed this though? The Daily Mail report said that she felt better after a few days of AB's. No mention of die-off or a long course.

    If a few AB's put someone's MS into remission wouldn't that effect already be known. It wouldn't have been obvious from other PWMS having a course of AB's for an infection and then getting better in a short period of time?
  7. Nielk

    Nielk

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    Good question ukxmrv
    Have others heard of cases like this one? I know that there are ME/CFS patients who have been diagnosed with Lyme at some point and treated with AB's successfully but, with many this positive effect did not last long term or they still suffer with ME/CFS but to a lesser degree. This might point to a co-morbidity?
  8. beaverfury

    beaverfury beaverfury

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    I guess it depends what type of antibiotics they are on.
    It is unlikely they would chance upon a fully effective lyme protocol. It's hard enough when you already have a clear borrelia diagnosis.

    I wouldn't put absolute faith in the details of online medical reporting. They hardly get a thing right when they report on me/cfs.
    ukxmrv likes this.
  9. beaverfury

    beaverfury beaverfury

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    That's scary, whatever the cause!

    Does anyone know to what degree white matter lesions can heal in various parts of the pain?

    I have read that small white lesions are resolvable after time but i don't know if this results in returning function.
  10. Apple

    Apple

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    A notable part of that article is that the initial Lyme test done by her GP came back negative..
  11. liquid sky

    liquid sky Senior Member

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    I have read that in ME, the lesions can resolve, in some cases. I have many lesions, stable for years now, but not resolving.
  12. golden

    golden Senior Member

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    liquidsky ,

    was it an MRI or other type of scan that picked up the lesions ?
  13. liquid sky

    liquid sky Senior Member

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    Yes, an MRI showed the lesions.
    golden likes this.
  14. golden

    golden Senior Member

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    Thanks liquidsky ,

    I have been wanting to know for a while now if bog standard MRIs ever show up anything or if more advanced tech.is needed

    :)
  15. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    golden

    But sometimes the lesions can be there but too small to show up on an MRI.

    Sushi
  16. SOC

    SOC Moderator and Senior Member

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    An acquaintance of mine who has Lyme (along with 2 of her children) told me one day that a friend of hers was diagnosed with MS and given immune suppressants (I believe it was) as treatment. It turned out she actually had Lyme and suppressing her immune system made it worse. By the time they figured it out it was too late. My acquaintance was on her way to the hospital to visit the friend who was horribly ill. I believe the friend died. :eek:

    BTW, I suspect my acquaintance and her kids may have ME/CFS in addition to (or instead of) Lyme. They have been through multiple rounds of long-term antibiotics with some improvement, but not full recovery. The number of families in our homeschool group with mothers and children (now in their early 20's) with Lyme, FMS, ME/CFS, or atypical MS diagnoses is surprisingly high. We had a Parvo B19 outbreak in the group when these kids were 6 or 7, but no one got seriously ill until 5+ years later.
  17. golden

    golden Senior Member

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    Yes. This is what I thought . I was reading Dr.Hyde uses a SPECT scan and if that shows up normal a more advanced SPECT scan...

    But I dont know what model etc. It is certainly worth understanding.
    I think the best time to have one is when symptoms are bad, too.

    :)
  18. Nielk

    Nielk

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    It seems to me that there is a high percentage of us (ME/CFS) patients who are found at some point to suffer from Lyme. Why is that?
  19. xchocoholic

    xchocoholic Senior Member

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    My brain lesions went away after i eliminated gluten. That connection
    is documented on the web. I wonder is this person went gf too.

    Not gluten since she responded in 4 days. What antibiotic works that
    fas on lyme?
  20. Ema

    Ema Senior Member

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    I think it is because we have abnormalities and deficiencies in our immune system which allow Lyme to take hold and become a symptomatic problem. I bet Lyme is like EBV and other viral infections in that most people are exposed at some point but the immune deficiencies are what allow illness to flourish in some while others brush it off.

    Ema
    Tito and SOC like this.

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