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Mount Sinai ME/CFS Center

Discussion in 'General ME/CFS News' started by Klmrav, Nov 4, 2011.

  1. Klmrav

    Klmrav

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    ((((Ila Singh relocated to NY to join the center!)))))


    The Mount Sinai School of Medicine, in collaboration with Dr. Derek Enlander, has launched the Mount Sinai ME/CFS Center.

    Mt. Sinai, a premier medical facility located in New York City, has hired both Eric Schadt and Ila Singh to join the research team. Below are links to their bios:

    http://prescriptions.blogs.nytimes.com/2011/05/16/schadt-joins-mount-sinai-medical-school/

    http://www.path.utah.edu/research/cbi/ila-singh-md-phd

    The group has announced that they are now recruiting participants for their first research cohort investigating genes involved in ME/CFS to further the work completed by Jonathan Kerr. Potential candidates include twins (where one or both are ME/CFS patients). There is NO need to travel to NYC to participate. If you know of any possible candidates, please direct them Dr. Enlander at denlander@aol.com.

    Please distribute widely.
     
    Sing likes this.
  2. ixchelkali

    ixchelkali Senior Member

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    Wow, that's exciting news. It seems we're beginning to attract top-notch researchers into the field. I'm glad that they're also working with experienced ME/CFS clinicians, who recognize ME/CFS when they see it, in recruiting patient cohorts.

    I'm also glad to hear that someone is going to continue Jonathan Kerr's work. So often in the field of ME/CFS we have seen small studies with potentially important results, and then they just fade away because no one does any follow-up research (usually because of lack of funding). Then 5 or 10 years later someone comes along and "discovers" the same thing, and then it languishes again, and so on, so that we don't make much forward progress. Maybe we are witnessing the winds of change beginning to blow.
     
    Sing and justinreilly like this.
  3. SpecialK82

    SpecialK82 Senior Member

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    Excellent!
     
  4. taniaaust1

    taniaaust1

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    Great news :) ..so good more things seem to be nowdays being followed up.
     
  5. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    A patient has made a $1M matching grant to the Mt. Sinai ME Center!


    From European Society for ME on Facebook:

    http://www.facebook.com/pages/ESME-European-Society-for-ME/326113349124

    News from Dr Enlander:

    The Mount Sinai Medical Center has opened an ME/CFS clinical and research center in New York. This has been funded by a patient of Dr Derek Enlander who donated a matching grant of $1,000,000. We encourage ESME members and patients to contribute to the fund. Contact Dr Enlander at denlander@aol.com

    Of course we encourage this as ESME Team to contribute funding to this new ME center in New York.
     
    Sing likes this.
  6. shrewsbury

    shrewsbury member

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    Hi klmrv,

    I can't find the Mount Sinai ME/CFS Center anywhere online or a link to the announcement about Singh/Schadt - very exciting news if it is so. Could you provide us with the link?

    thanks
     
  7. Enid

    Enid Senior Member

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    How good it is to see "the winds of change" gathering pace now. Great news.
     
  8. shannah

    shannah Senior Member

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    Dr. Enlander just posted some encouraging news on his FB.

    "Dr David Bell and I will attempt to replicate the Rituximab study. David is enthusiastic in doing this as he retired from active practice and will come to New York to work with us in the new ME/CFS center."
     
    justinreilly and ixchelkali like this.
  9. Nielk

    Nielk

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    Also from Dr. Enlander:

    DR Ila Singh from Salt Lake City was recruited by Mount Sinai and will
    work with the Mount Sinai ME/CFS Center, as will Eric Schadt a renown
    geneticist and Dr Merron an immunologist
     
  10. shrewsbury

    shrewsbury member

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    Hi Nielk,

    This sounds so exciting. Can you tell me where you got this information and hopefully give me a link to it?

    thanks
     
  11. Morgaine

    Morgaine

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    I've already signed up for the twin study, & am really pleased to hear it is following up on Jonathan Kerr's work.
     
    ixchelkali, justy and anne_likes_red like this.
  12. Nielk

    Nielk

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    Great! Keep us posted. You might make history yet.
     
  13. Klmrav

    Klmrav

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    that's terrific Morgaine!
     
  14. Morgaine

    Morgaine

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    Let's hope so Nielk, fingers crossed!

    I'll definitely report back & let you know what happens.
     
  15. Nielk

    Nielk

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    Mount Sinai ME/CFS Center

    ME CFS Research Meeting for Patients and Doctors

    New Methods of Diagnosis and Treatment Sunday 20 nov 11 am

    including treatment summary of GcMaf, Maf314, Retuximab, CMX 001,
    Ampligen, Nexavir, Immunoprop etc

    Registration $30 in advance, $40 at door

    contact Dr Enlander denlander@aol.com

    Seminar Room,
    first floor
    Icahn Institute
    Mount Sinai research Building
    1425 Madison Avenue (at 98thStreet),
    New York NY
     
  16. Klmrav

    Klmrav

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    That's terrific Nielk! I've been back and forth with Dr. E to get the details down...Thank you for posting!!!! I wish I could go :(
     
  17. Sing

    Sing Senior Member

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    Any chance someone could record or take notes at this meeting? It would be great to find out what they know, hypothesize and where they want to head. Even scanty notes could be helpful. Some of us here can understand the details of what they are looking at, and help the rest of us to understand.
     
  18. Nielk

    Nielk

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    Unfortunately, I won't be able to make it. I wonder if someone can videotape it?
     
  19. Nielk

    Nielk

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    Speakers will include:

    David Bell MD,
    Derek Enlander MD,
    Kenny deMeirleir MD,
    Eric Schadt PhD
     
  20. Sing

    Sing Senior Member

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    I wonder if Dr. Enlander and the group of doctors would accept someone videotaping this meeting and posting it online? Anyone know? I could ask--not that I could do it.
     

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