1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
ME/CFS: A disease at war with itself
We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.
Discuss the article on the Forums.

Mother and son XMRV positive by culture- rest of family Negative! - Personal story

Discussion in 'XMRV Testing, Treatment and Transmission' started by ldhunter, Feb 7, 2010.

  1. Hope123

    Hope123 Senior Member

    Messages:
    1,141
    Likes:
    532
    Asus389, what is the normal range on your functional assay? I don't have it in front of me but I think my result is around your range but the normal range goes up to the 200s so mine is only low normal. I couldn't get a count for some reason with my tests.

    Funkster, it's just interesting to see if you and your son had similar exposures leading to this illness. And potentially the lead time to seeing symptoms emerge. I wonder if your son's EBV is a primary infection vs. a reactivation.
  2. subtr4ct

    subtr4ct Senior Member

    Messages:
    112
    Likes:
    0
    Might this new information warrant changing the thread title? It seems somewhat misleading now. An anecdote of possible mother-to-child transmission seems like important information to me.
  3. Katie

    Katie Guest

    I agree, I'll change the title.


    ldhunter, I hope your son remains asymptomatic for life. At least with this knowledge you can make informed decisions regarding things that might effect the immune system such as vaccines, diet, exercise and particular bugs that might be circulating at school. Good luck.
  4. aiden424

    aiden424

    Messages:
    68
    Likes:
    3
    So if your son is positive, but with no symptoms, how does that link XMRV to CFS if healthy people or children have it too? This seems really confusing to me.
  5. Hope123

    Hope123 Senior Member

    Messages:
    1,141
    Likes:
    532
    Ldhunter, you might want to think about testing the other members of your family if other tests are available in the future given that we don't know how sensitive the current tests are or the rate of false-positives.

    Aiden, there are many illnesses (infectious and not) where you need more than characteristic (e.g. certain gene and exposure) to get an illness. So it would not be surprising to me at all if there are folks with XMRV out there who never get sick.

See more popular forum discussions.

Share This Page