Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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More disappointing Canadian news

Discussion in 'General ME/CFS News' started by Old Bones, Feb 23, 2017.

  1. Old Bones

    Old Bones Senior Member

    Today, I received an email from Margaret Parlor, President, National ME/FM Action Network. It described the lack of government action taken to address the needs of the ME/FM community in Canada as communicated by Margaret during her meeting last year with Carla Qualtrough, Minister of Sport and Persons with Disabilities.

    Here's the text of Margaret's February 22, 2017 letter to Minister Qualtrough:

    "RE: Follow-up from February 22, 2016 meeting

    One year ago, we met to discuss disability issues facing Canadians with Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia (FM), or both. Statistics Canada's Canadian Community Health Survey 2014 found 800,000 Canadians with one or both diagnoses. The survey data showed that these Canadians had a high degree of disability, disadvantage, and unmet needs.

    At that meeting, I identified five federal programs where people with ME/CFS and FM did not have full and fair access: CPP-Disability, the Disability Tax Credit, home care, workplace accommodations and voting in elections. We also talked generally about improving relationships between government and the ME/FM community.

    In a follow-up letter to that meeting, I indicated that our organization would update you on progress every few months. I have postponed these updates until now, hoping for something positive to report. With the passage of a year, I have completed the update, inserting comments into the description and status report which was attached to that letter. There have been a few glimmers of hope, but there have been no tangible changes in the past year that address the accessibility issues experienced by the ME/FM community."

    Here's a table from the above link:

  2. *GG*

    *GG* senior member

    Concord, NH

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