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More Demonstrations Being Planned in Washington D.C. for the week of Jan. 26th (2014)

Discussion in 'Upcoming ME/CFS Events' started by Wally, Jan 8, 2014.

  1. Wally

    Wally Senior Member

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    Just wanted to give you a heads up that Wally is headed back to Washington D.C. for round two of "David and Goliath". I will be stopping by for a visit from Jan. 24th through Jan. 31st. This will be a rain, snow or shine appearance. :)
    (See, 1) http://forums.phoenixrising.me/inde...-2013-and-washington-d-c-on-12-10-2013.26686/,
    2) http://forums.phoenixrising.me/index.php?threads/david-and-goliath-—-or-the-sick-and-the-bureaucracy.26857/, 3) http://www.mecfsforums.com/index.php/topic,18501.0.html and 4) http://www.mecfsforums.com/index.php/topic,18602.0.html)

    If you would like to participate in the upcoming demonstrations either in person or online, please contact Wally via this posting on the Phoenix Rising Forum, the posting on the MECFS Forum (http://www.mecfsforums.com/index.php ) or by e-mail at WallaceAlvinCleaver@gmail.com.

    I definitely feel like the tide may be turning for the "outside voices" of ME/CFS patients to be heard in Washington and around the world.

    Hang tough Canaries. I promise not to give up on this fight! :ninja::)





    Last edited: Jan 9, 2014
  2. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    I would like to participate online. Thank you for doing this!
    beaker likes this.
  3. Nielk

    Nielk

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    How does participation online work?
    beaker and lnester7 like this.
  4. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

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    @Wally Me too, and perhaps in person. So you plan on doing something on a Sunday, right?

    GG

    PS Perhaps we can carpool?
  5. Wally

    Wally Senior Member

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    Yes, I will order a red Ferrari for our carpool. :D
  6. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

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    Is a Ferrari even a 4 seater? But we could get there real fast!, doesn't sound practical?

    GG
  7. Wally

    Wally Senior Member

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    This is where duct tape comes in handy. We can just tape any extra riders on to the roof and the trunk. :wide-eyed:

    [​IMG]

    [​IMG]
    rosie26 likes this.
  8. apogan

    apogan

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    For all who are planning to attend, God bless you and thank you for efforts. It means so much.
    knackers323, ahimsa and rosie26 like this.
  9. Wally

    Wally Senior Member

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    Here is a list of contacts for anyone who might be interested. Some additional editing will be needed, but I wanted to get these up this morning (1 minute) to spare. Additional information to follow later this afternoon explaining when and how you can help to get the word out about ME/CFS. For right now, this information is just provided for your review.

    Contact List

    1) How to contact elected officials in the U.S.? http://www.usa.gov/Contact/Elected.shtml and http://www.ifamericansknew.org/about_us/congress.html

    2) How to contact to members of the U.S. House of Representatives? http://govsm.com/w/House

    3) How to contact members of the U.S. Senate? http://govsm.com/w/Senate

    4) How to contact the U.S. President (Barack Obama)? http://www.wikihow.com/Contact-the-President-of-the-United-States

    5) How to contact the U.S. Vice President (Joe Biden)?
    http://www.whitehouse.gov/administration/vice-president-biden and http://www.whitehouse.gov/contact

    6) How to contact the U.S. Health and Human Services Department – Secretary Kathleen Sebelius? http://answers.usa.gov/system/templates/selfservice/USAGov/#!portal/1012/article/4599/United-States-Secretary-of-Health-and-Human-Services and https://twitter.com/HHSGov

    7) How to contact the media? http://www.ifamericansknew.org/about_us/congress.html
    and http://www.bitesizepr.com/how-to-contact-the-media/ and
    http://www.acs.org/content/acs/en/v...s-of-media-outlets-and-how-to-reach-them.html

    National Television News

    ABC NEWS:
    47 W. 66 St. New York, NY 10023
    Phone: 212-456-7777
    D.C. Bureau phone: 202-222-7777
    General e-mail: netaudr@abc.com
    http://abcnews.go.com/Site/page/contact-abcnewscom-3068843
    Facebook and Twitter – Check local ABC station affiliates for contact info.

    ABC World News with Diane Sawyer:
    Phone: 212-456-4040
    Fax: 212-456-2795
    E-mail: netaudr@abc.com
    http://abcnews.go.com/Site/page/contact-abcnewscom-3068843
    Facebook and Twitter: https://www.facebook.com/WorldNews
    and https://twitter.com/DianeSawyer

    Nightline:
    1717 DeSales St., NW, Washington, DC 20036
    Phone: 202-222-7000
    E-mail: niteline@abc.com
    http://abcnews.go.com/Site/page/contact-abcnewscom-3068843
    Facebook and Twitter: https://www.facebook.com/nightline and https://twitter.com/Nightline

    20/20:
    147 Columbus Ave., 10th Floor, New York, NY 10023
    Phone: 212-456-2020
    Fax: 212-456-0533
    E-mail: 2020@abc
    http://abcnews.go.com/Site/page/contact-abcnewscom-3068843

    ABC's Good Morning America:
    147 Columbus Ave., New York, NY 10023
    Phone: 212-456-5900
    Fax: 212-456-7257
    E-mail: netaudr@abc.com
    http://abcnews.go.com/Site/page/contact-abcnewscom-3068843
    Facebook and Twitter: https://www.facebook.com/GoodMorningAmerica and https://twitter.com/GMA and https://twitter.com/RobinRoberts

    CBS News
    524 W. 57 St., New York, NY 10019
    Phone: 212-975-4321
    Fax: 212-975-1893
    D.C. Bureau phone: 202-457-4385
    http://www.cbsnews.com/htdocs/feedback/fb_news_form.shtml
    Facebook and Twitter: https://www.facebook.com/CBSNews and https://twitter.com/CBSNews

    CBS Evening News with Scott Pelley
    524 West 57th St.
    New York, NY 10019
    Phone: 212-975-3691 or 202-457-4385
    Fax: 212-975-1893
    E-mail: http://www.cbsnews.com/htdocs/feedback/fb_news_form.shtml
    Facebook and Twitter:

    CBS This Morning:

    Phone: 212-975-2824
    Fax: 212-975-7133 or 212-975-2033
    E-mail: http://www.cbs.com/feedback
    Facebook and Twitter: https://www.facebook.com/CBSThisMorning
    and https://twitter.com/CBSThisMorning

    60 Minutes:
    555 W. 57th St., New York, NY 10019-2985
    Phone: 212-975-2006
    Fax: 212-757-6975
    E-mail: http://www.cbsnews.com/htdocs/feedback/fb_news_form.shtml
    Facebook and Twitter:

    Primetime:

    E-mail:
    Facebook and twitter: https://www.facebook.com/nightline and https://twitter.com/Nightline

    CNBC: http://www.cbsnews.com/news/contact-information-509333
    900 Sylvan Avenue
    Englewood Cliffs, New Jersey 07632
    Phone: (201) 735-2622
    Fax: (201) 583-5453
    Email: info@cnbc.com
    https://register.cnbc.com/email/EmailSupport.jsp

    CNN
    One CNN Center, Box 105366, Atlanta, GA 30303-5366
    Phone: 404-827-1500
    Fax: 404-827-1906
    E-mail: cnn.feedback@cnn.com
    http://www.cnn.com/feedback/forms/form5.html?106
    Facebook and Twitter:

    CNN Washington Bureau
    820 First St. N.E., Washington, DC 20002
    Phone: 202-898-7900
    Fax: 202-898-7923
    E-mail: http://www.cnn.com/feedback/
    Facebook and Twitter:

    Crossfire

    Phone: 202-898-7655
    Fax: 202-898-7611
    E-mail: http://www.cnn.com/feedback/
    Facebook and Twitter:

    Larry King Live

    Phone: 202-898-7690
    Fax: 202-898-7686
    E-mail: http://www.cnn.com/feedback/
    Facebook and Twitter:

    Fox News Channel
    1211 Ave. of the Americas
    New York, NY 10036
    Phone: (212) 301-3000
    Fax: (212) 301-4229
    Email: comments@foxnews.com
    Facebook and Twitter:

    MSNBC
    One MSNBC Plaza
    Secaucus, NJ 07094
    Phone: (201) 583-5000
    Fax: (201) 583-5453
    Email: world@msnbc.com
    Facebook and Twitter:

    NBC
    30 Rockefeller Plaza, New York, NY 10112
    Phone: 212-664-4444
    Fax: 212-664-4426
    E-mail:
    Facebook and Twitter:

    Washington Bureau
    4001 Nebraska Ave. NW, Washington, DC 20016
    Phone: 202-885-4200
    Fax: 202-362-2009
    E-mail:
    Facebook and Twitter:

    NBC Nightly News with Brian Williams

    Phone: 212-664-4971 or 202-885-4259
    Fax: 202-362-2009
    E-mail: nightly@nbc.com
    http://www.nbcnews.com/id/29104230-nbc_nightly_news_with_brian_williams/#.Ut0qIbSIZLM
    Facebook and Twitter:

    NBC News' Today

    Phone: 212-664-4602 or 202-885-4231
    Fax: 212-664-4426
    E-mail: today@nbc.com
    http://www.today.com/id/29041920/ns/today/#.Ut0wQbSIZLM
    Facebook and Twitter:

    Dateline NBC

    Phone: 212-664-7501
    Fax: 212-664-7864
    E-mail: dateline@nbc.com
    http://www.nbcnews.com/id/10285339
    Facebook and Twitter
    ________________________________________

    Public Broadcasting

    PBS
    1320 Braddock Place, Alexandria, VA 22314
    Phone: 703-739-5000
    Fax: 703-739-8458
    E-mail:
    Facebook and Twitter

    The News Hour with Jim Lehrer
    3620 South 27th St., Arlington, VA 22206
    Phone: 703-998-2150
    E-mail: newshour@pbs.org
    Facebook and Twitter:

    National Public Radio
    635 Massachusetts Ave. NW, Washington, DC 20001-3753
    Phone: 202-513-2000
    Fax: 202-513-3329
    E-mail: Jeffrey Dvorkin, Ombudsman ombudsman@npr.org
    Facebook and Twitter:

    All Things Considered

    Phone: 202-513-2110
    E-mail: atc@npr.org
    Facebook and Twitter

    Morning Edition

    Phone: 202-513-2150
    Fax: 202-513-3329
    E-mail: morning@npr.org
    Facebook and Twitter:
    ________________________________________

    National Newspapers

    Los Angeles Times
    202 West First Street, Los Angeles, CA 90012
    Phone: 800-528-4637 or 213-237-5000
    Fax: 213-237-4712
    E-mail: letters@latimes.com
    Facebook and Twitter:

    New York Times
    229 W. 43rd St., New York, NY 10036
    Phone: 212-556-1234
    Fax: 212-556-3690
    D.C. Bureau phone: 202-862-0300
    E-mail: letters@nytimes.com
    Facebook and Twitter

    USA Today
    1000 Wilson Blvd., Arlington, VA 22229
    Phone: 800-872-0001 or 703-276-3651
    Fax: 703-247-3108
    E-mail: editor@usatoday.com
    Facebook and Twitter

    Wall Street Journal
    200 Liberty St., New York, NY 10281
    Phone: 212-416-2000
    Fax: 212-416-2658
    E-mail: editors@interactive.wsj.com
    Facebook and Twitter

    Washington Post
    1150 15th St., NW, Washington, DC 20071
    Phone: 202-334-6000
    Fax: 202-334-5269
    E-mail: ombudsman@washpost.com
    Facebook and Twitter

    Associated Press
    50 Rockefeller Plaza, New York, NY 10020
    Phone: 212-621-1500
    Fax: 212-621-7523
    D.C. Bureau phone: 202-776-9400
    Facebook and Twitter

    San Francisco Chronicle
    901 Mission St.
    San Francisco, CA 94103
    Local: (415) 777-1111
    USA Toll Free: (866) 732-4766
    E-mail: metro@sfchronicle.com
    Facebook and Twitter:


    ________________________________________

    Magazines

    Newsweek
    251 W 57th Street, New York, NY 10019
    Phone: 212-445-4000
    Fax: 212-445-5068
    E-mail: letters@newsweek.com
    Facebook and Twitter

    Time
    Time & Life Bldg., Rockefeller Center, New York, NY 10020
    Phone: 212-522-1212
    Fax: 212-522-0323
    E-mail: letters@time.com

    U.S. News & World Report
    1050 Thomas Jefferson St., Washington, DC 20007
    Phone: 202-955-2000
    Fax: 202-955-2049
    E-mail: letters@usnews.com
    Last edited: Jan 20, 2014
  10. Little Bluestem

    Little Bluestem Senescent on the Illinois prairie, USA

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    Wow! That is an impressive contact list. :wide-eyed: Maybe it should be put into a separate thread and pinned in the Advocacy Forum.
  11. Wally

    Wally Senior Member

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    Hi! Just checking back in on this thread to let you know that work is still in progress getting ducks canaries in a row for all the activities happening this week in D.C. Working hard on the preparations. Does anyone know if there is a "Demonstrations R Us" here in D.C."??? :rofl: Lots of last minute details to work through. The :devil: is always in the details. ;)

    I have been sequestered in my hotel room since Friday evening working away on preparations for events happening this week in D.C. - i.e. demonstrations, IOM meeting and lobbying Congress. There are many patients and patient advocates working quietly and diligently behind the scenes. If other patients and/or their supporters would like to lend a helping hand to keep the ball rolling to try to get this illness a spot front and center on the national news stage (and hopefully international stage) your support would be very welcome and appreciated. Full instructions on how you can help in this effort will be published later today (1/26 - EST) on this and other ME, ME/CFS and CFS Forums, Websites and Facebook pages.

    Sure hoping everyone will be rested up because Monday is going to be a very busy day. ;)

    Last edited: Jan 27, 2014
    Christopher, catly and Nielk like this.
  12. Wally

    Wally Senior Member

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    Yes. It is now past the witching hour that I said I would be posting and I still have a few more things to tweak. Busy, busy day with some additional plates added to the performance tomorrow. But is all good, we just wish we could clone about 100 more bodies with fully functioning brains and motor skills.

    What you will be asked to do in a few hours when the sun comes up over D.C. Is to consider sending out an e-mail, a fax, a tweet or a Facebook post to let the world hear your voice and show that we are not invisible. We are real people with a real illness and we need help from the public, our medical communities and our governments to recognize ME/CFS as a Neuro Endocrine Immune Disorder /Disease that needs the workd's attention and support to help solve this illness.

    Rest now my canaries - in a few hours the gates will open and you will be able to participate in our virtual demonstration. We had planned to be able to stream "live" the demonstration(s) that will happen in D.C. tomorrow before the ME/CFS - IOM meeting. But we have run into some technical difficulties with getting a live stream up and functional, but we will let you know as soon as we can if this will be an option for you to join in on. Even if a live feed is not possible in the morning, the demonstrations will be captured on film for patients to view. We will also be working to set up a platform, such as google chat, so the patient community can come share how their day of advocacy took flight.

    Good night for now. Talk to you again in a few hours.
  13. roxie60

    roxie60 Senior Member

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    Wow this sounds wonderful. Just saw this thread. So many voices being ignored, mental health, CFS/ME, Lyme and so many others.....have to be loud and make them hear, we need to ROAR....good luck with eveything today and thanks for what you are doing.

    catly likes this.
  14. Wally

    Wally Senior Member

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    PR Forum members - I know that a lot of you may be watching the IOM meeting right now, but I wanted to try to post something as soon as I was able to. I apologize for not communicating prior to now, but I have not had Internet access since last night due to a problem with wi-fi connection at the hotel where I am staying and I after a long night trying to figure out what happened it appears that my computer was infected with a virus.

    I have been able to get some sporadic connection on another mobile device and tried to get an earlier message up on the Forum, but I was kicked off several times and then needed to travel to the IOM meeting here in D.C. I am here at the meeting now and stepped outside to send this message once my backup mobile device was charged.
    It has been a rough day made a little worse by the frustrations of dealing with technology that is not as reliable as one would expect. :(

    Thanks for your understanding in why Wally disappeared from the planned on-line virtual demonstrations. Perhaps a rescheduling of this event can occur at a later date when all the unplanned technological setbacks have been addressed.

    Headed back into the meeting right now.
  15. knackers323

    knackers323 Senior Member

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    Thanks for all your effort wally

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