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Money maker. game changer for CFS research, insurance, codex, etc...

Discussion in 'Action Alerts and Advocacy' started by markmc20001, Jan 7, 2010.

  1. markmc20001

    markmc20001 Guest

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    research fund raiser. game changer for CFS research, insurance, codex, etc...

    I just had my disability benefits cut off for (for no objective proof), and they LIED about any things in thier notes. I received the cut off notice on christmas eve. Perfect, and of course y cobra has exired so I would have to pay for espensive tests out of pcket to proove anything. I'm under the bus. Of course the insurance company is regulated by some law they helped write which allows them to get away with impunity.

    Now after reading a little about Oslers Web, Codex, and how the CDC has interfered with any kind of meanful CFS research for all these years. It is obvious the people's rights/freedoms are being railroaded on a daily basis.

    What needs to change, at least here in the US, is to get lobbying and business out of reach from elected officials.

    I'm going to propose a money maker, and potential life changer for anybody here who has the energy and mental clarity to get it done.

    This is just a concept and I hope somebody grabs it, improves it and runs with it. :sofa:

    THe idea would be to create an viral awareness campaign. Started thru the internet, but also made main stream with bumper sitckers, shirts, and hats with a logo that would send a message. The message being, stop fascism, or regain your freedom, get business out of governent, or something to that effect. BUt just a logo with maybe some choice words. BUt the idea would be simple/cool/fun that many people would adapt without shame or embarassment, so that people in the know would understand and put on their cars, shirts, houses, hats, whereever to get the message out. SO a I have XMRV ay be a bit extreme. BUt "freedom rules", or soething like that, would be cool. Have walks, runs, or sofa races for fundraisers. Get money, and control back to the people. SO those like WPI can execute find solutions, and put energy towards research. Instead of wasting effort and time on public relations battles.....

    We need to take control of our freedom before it is too late...

    Mark
  2. markmc20001

    markmc20001 Guest

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    very nice post

    Sarah,

    Thanks for taking to express the nuts and bolts of what is REALLY required to make change happen government. I never knew that money was considerd free speech. OUCH. no wonder why we are getting steam rolled, business has the dang courts ruling in there favor when it comes to the consitution!

    Ok, so Sarah is on the legal/strategy team!

    Now we need an artist to create a logo....:tongue:

    website manager/ creator anybody?:D

    I'll be a grunt/donator fabricator. I can help figure out how to design/physically build the props stickers etc, where to buy etc...

    then we need other armchair imput... ideas, donations...

    ok out of energy, fun to dream about, but like moving a mountain......well then, back to my station :sofa:
  3. Tammie

    Tammie Senior Member

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    Woodridge, IL
    Mark, I'm so sorry to learn about your loss of benefits, was that disability thru a former job or SSDI? if it was thru the job, what about applying for SSDI? If it was SSDI, are you going to try to appeal? Though SSDI pays me less than enough to live off I would be completely lost w/o it, so I truly feel for you.

    Now as to your other idea.....sounds interesting. I don't have much ability to work on it myself, at least not rt now - crashing quite badly.....but when i read about the slogan part, I immediately thought of "Keep America Free".....short, easy to remember, not embarrassing, and gets to the point you are trying to address (our country is in serious danger of losing the very freedoms it was founded on)......anyway, if you like it, you are more than welcome to use it....and if not, that's cool, too
  4. CJB

    CJB Senior Member

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    Yes-- very well said. The idea of corporate "personhood" is insane and is killing the middle class. There are serious efforts in Congress to change this. Do you know Thom Hartmann from Air America? He has written a lot about this. It's the kind of fundamental change that's going to be very difficult to accomplish.
  5. CJB

    CJB Senior Member

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    I'm so sorry you've lost your benefits. I paid for disability insurance my whole working life, and because I got sick with something that wasn't easily and clearly defined, they got away with paying me a small settlement. I don't know what the answer is, but we just can't allow people to fall under the bus when they're sick.

    Hang in there.

    :hug:
  6. markmc20001

    markmc20001 Guest

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    I guess this logo message idea goes along with the brochure idea. so it is kind of a duplicate thread. But it is all good for brainstorming and something good may come of it someday!

    Hey Tammie, CJ (love that big hug smiley)

    , I do have SSDI, and have food. Other people here are much worse off than I am. It's just brutle. I shouldn't complain, just my dogs are tired of hearing it.

    I am really so blindsided by the fact that the whole disability insurance thing is a scam set up for attorneys and business; How contracts mean nothing. How corrupt government is with the CDC/CFSAC dog and pony show. How the business lobby writes our laws....How business is messing with our food supply, and now how business is taking away our access to vitamins? credit derivatives..., etc,etc

    I would guess most of the population knows things are "wrong". BUt it would be good if the average guy was reminded (from a clear/concise slogan) what needs to happen. Get right to the crux of the mess, and change it maybe....

    SO yeah, I like "KEEPING AMERICA FREE" with a little education campaign to explain what everybody is loosing that they may not realize.

    Or Maybe something kicks congress right in the balls :

    "STOP LETTING CEO"S WRITE YOUR LAWS"

    "NO MORE LOBBYISTS ELECTED TO SENATE"

    "HAVE GOVERNMENT SERVE THE PEOPLE, NOT BANK OF AMERICA"

    sarahg? "PUBLIC FUNDING FOR ELECTIONS"

    Ya, bummer we are all so tired. But good to think about, and brainstorm on. aybe somebody will run with it. I think a person could make a fortune doing tee-shirts ike that....Al takes a little energy. Maybe I need to post this in the MANIC, and not the CFS forum?
  7. Tammie

    Tammie Senior Member

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    Mark, I am so glad to know that you do have SSDI and food....and don't worry about complaining - I think we all understand and venting can be a good use of the forums at times, too ; )

    I actually like all the slogans that you listed....probably the lobbyists one the most....I wish I had the energy to help out with this - I think it's a great idea (the info itself may not be new to people, but so many are so compacent about it and we cannot a fford to be)
  8. markmc20001

    markmc20001 Guest

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    Here is a one liner...

    "HAVE CONGRESS SERVE PEOPLE. NOT LOBBYISTS" ....persuade congress to have publicly funded elections.

    It is only when we stop business from writing our laws will we have the interests of the people in mind......:worried:

    :thumbsup:

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