A disease with two faces? Re-naming ME/CFS
Persuasion Smith covers the bases on the misleading and disreputable name for our disease we've all been saddled with ...
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Misinformed article - please comment

Discussion in 'Action Alerts and Advocacy' started by Min, Jan 30, 2010.

  1. Min

    Min Senior Member

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    http://www.timesonline.co.uk/tol/life_and_style/health/article7008824.ece

    'ME is a diagnosis only reached by excluding other possibilities


    a misinformed article on M.E. in the UK Times by Dr Martyn Lobley, comments can be left or you can send a letter to the editor (enclosing your address & phone no) at letters@thetimes.co.uk


    "Doctors use the descriptive term CFS chronic fatigue syndrome: a syndrome defined by a collection of symptoms and signs." :confused:

    "...Hopes were raised by headlines last year proclaiming that the retrovirus XMRV had been found in a cluster of cases in the US only to be dashed when it wasnt found anywhere else. XMRV may have caused a local epidemic of fatigue but it wasnt the answer. " :Retro mad:
     
  2. JayS

    JayS

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  3. sproggle

    sproggle Jan

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    Teesside, England UK
    Thanks for the link I've commented, not sure if will be shown..
     
  4. Frickly

    Frickly Senior Member

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    Texas
    Ouch....My son has aspergers and yes...suicide and depression is a common symptom as they enter the teenage years. It sickens me that she is trying to make a connection between her son and the life and death of this girl who was in constant pain for years and had no life and no hope. It makes my stomach turn. Thats all I can say as I don't think I can "stomach" a response to this article.

     
  5. Min

    Min Senior Member

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  6. Nina

    Nina Senior Member

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    Exactly my thoughts and feelings, Frickly. How dare she??
     

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