August 8th, 2016: Understanding and Remembrance Day for Severe Myalgic Encephalomyelitis
Jody Smith joins with other ME voices in honor of Understanding and Remembrance Day for Severe Myalgic Encephalomyelitis.
Discuss the article on the Forums.

Mirror: Experience what it's like to suffer from CFS in free video game

Discussion in 'General ME/CFS News' started by Kalliope, Aug 14, 2016.

  1. Kalliope

    Kalliope Senior Member

    Messages:
    353
    Likes:
    3,347
    Norway
    Mirror has an article about a free video game which enables players to understand more about living with ME.

    "In the game, free to download for PC via GameJolt , you play as sufferer Robin in an attempt to get through day-to-day life with chronic fatigue syndrome.

    It's up to you what you do over the course of the 3 days in-game, but although there are 3 possible endings, the developers explain that 'there is no such thing as a perfect ending' - accentuating the troubles of dealing with the illness."

    Anyone tried it? What did you think?
     
  2. L'engle

    L'engle moogle

    Messages:
    1,552
    Likes:
    2,326
    Canada


    Here's a playthrough. Seems like a good effort to me but some shortcomings do arise. I don't like to be too critical of the makers good effort, the game does get across the basic idea of limited energy and not being able to do things.

    They kind of lost me at the end where the character had spent the weekend doing chores and was therefore "ready for the coming week of work". I don't think those of us who can work ever feel that they are recharged and ready to go back to work after the weekend. I certainly never did in the earlier phases of illness when I could work part time.

    Still a good effort and I think it will educate more than obfuscate over all!
     
  3. L'engle

    L'engle moogle

    Messages:
    1,552
    Likes:
    2,326
    Canada


    This other playthrough has the other two endings for the game.
     
    Kalliope likes this.
  4. MikeJackmin

    MikeJackmin Senior Member

    Messages:
    132
    Likes:
    447
    If you download a program from GameJolt, you are trusting them not to include spyware or adware or any other sort of invisible nastiness. Some download sites pay their bills that way. I would't trust it myself, sorry.
     
  5. L'engle

    L'engle moogle

    Messages:
    1,552
    Likes:
    2,326
    Canada
    The playthroughs run through the entire game anyway. It's a project by some college students so it is mostly a demo.
     
  6. Snow Leopard

    Snow Leopard Hibernating

    Messages:
    4,578
    Likes:
    12,176
    South Australia
    I think they mean the coming week of rest!
     
  7. taniaaust1

    taniaaust1

    Messages:
    11,870
    Likes:
    12,565
    Sth Australia
    its a very pity about the end, it spoils what would be a good education game on this.
     
    L'engle and Kalliope like this.
  8. Effi

    Effi Senior Member

    Messages:
    1,491
    Likes:
    4,548
    Europe
    I think this gives a pretty good idea of how it is to live with CFS. What would make it even more realistic (but maybe unfeasible from a game writer's perspective?) would be if the increments per activity were more random. Like one day taking a shower is fine (smaller increment of red in the circle), and the other day it wipes you out for most of that day (half your day is red).
     
    Mel9, Hutan, mango and 6 others like this.
  9. TiredSam

    TiredSam The wise nematode hibernates

    Messages:
    2,547
    Likes:
    19,708
    Germany
    Nice idea and good first version. I wonder if "ready for the coming week of work" was meant ironically? It would be easy to improve this program following feedback from ME patients, but it's pretty good already.
     
    Mary, Hutan, mango and 6 others like this.
  10. Bob

    Bob

    Messages:
    9,846
    Likes:
    33,923
    England (south coast)
    Actually, i didn't mind the "ready for the coming week of work" bit (when she's clearly not ready for a week of work!); I thought it actually might even help 'healthies' relate to the patient. The patient is blatantly extremely unwell, but the illness is hidden and only seen at the patient's home; then, during the week, when visible to the public, she struggles on, trying to keep up. After a week at work, at the weekend, she collapses. That is the case for many patients. And I think it helps to show that the illness can hit anyone, including you and your colleagues who are involved in perfectly ordinary activities. It shows that she's not a skiver or malingerer, because she's working. And it shows that she's a perfectly normal person, and not one of those strange disabled people who we read about but don't actually know or relate to. In other words, I think it helps to normalise the patient and to battle ignorance and unconscious prejudice. ME/CFS fluctuates, and I think that was demonstrated nicely in the game. It doesn't show the extreme levels of disability that some of us experience, but apart from that I think it's a really great introduction to the illness. So it gets my thumbs up. I think it's nicely helpful.
     
    Last edited: Aug 15, 2016
    TigerLilea, Woolie, Mary and 10 others like this.
  11. AndyPR

    AndyPR Tired Sam ate all the cookies!

    Something else to bear in mind I think, is that the Mirror article is pretty good. Not quite as accurate as perhaps we'd like but when it includes statements like this
    then I'm quite prepared to forgive a little inaccuracy.

    If anybody on Twitter wants to give some support to the makers then their contact details are;

    TWITTER:

    https://twitter.com/RobinSummersEXE

    CONTACT:

    robinsummersgame@gmail.com

    ABOUT US:

    Robin was made by a group of 2nd year game design students at Media Design School.

    @AnnalieseBevan

    @pixecology

    @JFernandoGracia

    @yzibelle
     
    taniaaust1, Woolie, Hutan and 5 others like this.
  12. TiredSam

    TiredSam The wise nematode hibernates

    Messages:
    2,547
    Likes:
    19,708
    Germany
    Hutan, L'engle, Ben Howell and 6 others like this.
  13. A.B.

    A.B. Senior Member

    Messages:
    3,579
    Likes:
    21,720
    I didn't play it, just watched some of the video, but I think exhausting your energy reserves should result in having noticable less energy on the following day. To get the point across that trying harder is counterproductive. If the game already does that, then good job :)

    A game like this can really contribute to raising awareness on ME/CFS.
     
    Woolie, mango, L'engle and 9 others like this.
  14. Ben Howell

    Ben Howell OMF Correspondent

    Messages:
    710
    Likes:
    7,979
    U.K.
    Really glad you posted this.

    What an ingenious idea, and one that potentially could really help in explaining to others. Lots of my friends like videogames, so its an easy sell per se, despite it probably not being as exciting as The Witcher 3 :)

    I havnt played it yet, so hopefully it is accurate.

    EDIT (It seems to get the point across reasonably well, but clearly not representing severe patients).


    B
     
    Last edited: Aug 15, 2016
    Woolie, Bob, L'engle and 1 other person like this.
  15. Ben Howell

    Ben Howell OMF Correspondent

    Messages:
    710
    Likes:
    7,979
    U.K.
    At the end do the physical therapists arrive prescribing a magical GET/CBT routine and the patient is thus made better? ;)


    B
     
    Last edited: Aug 15, 2016
    Mary, Bob, L'engle and 2 others like this.
  16. adreno

    adreno PR activist

    Messages:
    4,738
    Likes:
    9,902
    Brilliant idea. A mobile game would be even better.
     
    Kalliope likes this.
  17. frog_in_the_fog

    frog_in_the_fog Test Subject

    Messages:
    253
    Likes:
    497
    California
    Nice post @Kalliope! We play this game IRL everyday. Back in the day I wrote an Apple][ graphical text adventure about the drudgery of programming a robot to make a sandwich.

    I wish I had a robot to make me sandwiches.
     
    Mary and Kalliope like this.
  18. Kalliope

    Kalliope Senior Member

    Messages:
    353
    Likes:
    3,347
    Norway
    Thank you, @frog_in_the_fog. I spotted it in a tweet by @Tom Kindlon

    I´ve now tested the game and automatically clicked on the bed after each task in order for Robin to get some obviously much needed rest also during the day.

    Speaking of that, there's a recent Norwegian qualitative study on robot-avatars as classroom stand-ins for young ME-patients (that trial was another discovery from @Tom Kindlon ´s tweets).
    Maybe sandwich-making robots will be next!
     
    Tom Kindlon and frog_in_the_fog like this.
  19. frog_in_the_fog

    frog_in_the_fog Test Subject

    Messages:
    253
    Likes:
    497
    California

    I can't wait for the future...​
     
    halcyon and Kalliope like this.
  20. AndyPR

    AndyPR Tired Sam ate all the cookies!

    Neither can I ;)
    Soylent_Green_quad_movie_poster_l.jpg
     
    Snow Leopard and Woolie like this.

See more popular forum discussions.

Share This Page