nanonug
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Mini mast cell attack
- Thread starter nanonug
- Start date
I get this! I get it worse on my left side - up my neck, face and ears.
When I was busy having seizures in July the ambulance crew commented on the "rash".
I wondered if it was POTs thing (if I have hyperadrenal-whatd'ycallit POTS)
I have exactly the same BP and pulse thing too!
This is interesting.
When I was busy having seizures in July the ambulance crew commented on the "rash".
I wondered if it was POTs thing (if I have hyperadrenal-whatd'ycallit POTS)
I have exactly the same BP and pulse thing too!
This is interesting.
nanonug
Senior Member
- Messages
- 1,709
- Location
- Virginia, USA
This might be useful then: The UK Mastocytosis Support Group. They may be able to refer you to a specialist to get tested.
Good luck!