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Mini mast cell attack

Discussion in 'Mast Cell Disorders/Mastocytosis' started by nanonug, Oct 27, 2012.

  1. nanonug

    nanonug Senior Member

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    Virginia, USA
     
    merylg likes this.
  2. Shell

    Shell Senior Member

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    England
    I get this! I get it worse on my left side - up my neck, face and ears.
    When I was busy having seizures in July the ambulance crew commented on the "rash".

    I wondered if it was POTs thing (if I have hyperadrenal-whatd'ycallit POTS)
    I have exactly the same BP and pulse thing too!

    This is interesting.
     
  3. nanonug

    nanonug Senior Member

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    This might be useful then: The UK Mastocytosis Support Group. They may be able to refer you to a specialist to get tested.

    Good luck!
     
    Shell likes this.

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