International ME/CFS and FM Awareness Day Is On May 12, 2018
Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world.
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Mindy Kitei: Play it again, and again and again

Discussion in 'General ME/CFS News' started by Ember, May 18, 2012.

  1. Ember

    Ember Senior Member

    Thursday, May 17, 2012

    San Antonio news segment:
  2. taniaaust1

    taniaaust1 Senior Member

    Sth Australia
    POTS thou it is common in ME... is also actually not that uncommon in a teen group who develop POTS and only do have POTS. (it seems to be the most common age group to develop non ME POTS).
    There has been quite a bit of research done on non ME teens who have only POTS (this patient group who develop POTS as teens, also often recovers from the POTS too in time).

    Those symptoms can actually be just POTS symptoms (people who only have POTS due to the various symptoms that can give due to the autonomic dysfunction and low blood volume etc in that illness, can easily be wrongly diagnosed with ME/CFS!!)..
    thou I do think it sounds more likely they have ME (along with maybe having POTS) seeing it is an outbreak situation.

    This kids probably dont have CFS but rather have ME. (seizure like incidents are common in ME) and glad if the authorities there arent thinking these kids as having CFS.
  3. Enid

    Enid Senior Member

    Play it again and again - how long do we have to reinvent the wheel. ME/CFS has been around an awful long time (and pathology findings).
  4. Desdinova

    Desdinova Senior Member

    Would anything good come of it if they did?

    Yep she should be careful if she does go or she may really need help.
    Can't help but remembering how Marc Iverson founder of the CFIDS Association of America was quoted as saying In Oslers Web that the only thing he received from going to the Mayo Clinic was of Wallet-ectomy.

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