Discussion in 'Millions Missing Campaign' started by AndyPR, Jun 17, 2016.
From the #MEAction Facebook feed;
Click to view on Facebook
If anybody has the mail list to newspapers and tv I can send the invitation with time. We need more wide ranges coverage. Also we need people to register in tweeter just using the # will put the news in the top. If you cannot go, by posting you can help from home A LOT.
Awesome! The millions missing march on!
I am not on Facebook or Twitter. Has an address for sending shoes been given? With this much lead time, I should be able to get some sent.
The date is all the information that has been given so far that I've seen. I'm sure @JaimeS will correct me if I'm wrong
pleased to see this going to the next level. I think we saw with round 1 that we can be noticed, I hope this encourages more people to get involved in one way or another.
@AndyPR -- That is correct, Andy. More official information is going out tomorrow on #MEAction though, so stay tuned!
...and by that I mean Tuesday!
The survey is taking up all my brainspace right now!
Here you are, everyone!
Rats, just realised we are on holiday that week, any chance of rescheduling @JaimeS ???
You can always send shoes and write things!
Seems to be stuff going on behind the scenes, and there was just an announcement that the Holland group has got permission to demonstrate at The Hague - the seat of the Dutch parliament.
Nice going, that group!
I really hope this one will be massively successful.
The UK is set to go in MANY cities this time around -- very proud of our UK brethren!
Is there anything we can do to help advocate for doctor awareness of ME/CFS? If the CDC says we have a real illness, why is there no doctor/medical personnel training or continuing education for ME in the US (this second question is rhetorical)?
If this was the case, at least our symptoms could be documented or even, *gasp*, treated.
I have to make my best efforts to earn a living while being mostly bedbound, but maybe I can do a little to help.
@Comet -- I'm working on something like this, maybe you can help? PM me.
@Comet, @JaimeS - did you guys see this?
Yes! I saw that late last night on Twitter. Wonderful news.
You can also try a Google Site Search
Separate names with a comma.