May 12, 2017 Is International ME/CFS and FM Awareness Day
International ME/CFS and FM Awareness Day is May 12th, 2017. Jody Smith shares some information about upcoming events and ways you can be heard ...
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#MillionsMissing - Round 2 - Sept 27th 2016

Discussion in 'Millions Missing Campaign' started by AndyPR, Jun 17, 2016.

  1. AndyPR

    AndyPR Senior Member

    Valentijn, Ritto, duncan and 17 others like this.
  2. lnester7

    lnester7 Seven

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    If anybody has the mail list to newspapers and tv I can send the invitation with time. We need more wide ranges coverage. Also we need people to register in tweeter just using the # will put the news in the top. If you cannot go, by posting you can help from home A LOT.
     
  3. Mark

    Mark Former CEO

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    Awesome! The millions missing march on! :):):):thumbsup::thumbsup::thumbsup:
     
    JaimeS, Valentijn, A.B. and 9 others like this.
  4. Comet

    Comet I'm Not Imaginary

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    Woohoo! :balloons: :star: :balloons:
     
    MEMum, panckage and AndyPR like this.
  5. Little Bluestem

    Little Bluestem All Good Things Must Come to an End

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    I am not on Facebook or Twitter. Has an address for sending shoes been given? With this much lead time, I should be able to get some sent.
     
    AndyPR likes this.
  6. AndyPR

    AndyPR Senior Member

    The date is all the information that has been given so far that I've seen. I'm sure @JaimeS will correct me if I'm wrong :)
     
    MEMum and Little Bluestem like this.
  7. snowathlete

    snowathlete

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    pleased to see this going to the next level. I think we saw with round 1 that we can be noticed, I hope this encourages more people to get involved in one way or another.
     
    Kati, ScottTriGuy and Sasha like this.
  8. JaimeS

    JaimeS Senior Member

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    @AndyPR -- That is correct, Andy. More official information is going out tomorrow on #MEAction though, so stay tuned!
     
  9. JaimeS

    JaimeS Senior Member

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    ...and by that I mean Tuesday! ;)

    The survey is taking up all my brainspace right now!
     
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  10. JaimeS

    JaimeS Senior Member

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  11. AndyPR

    AndyPR Senior Member

    Rats, just realised we are on holiday that week, any chance of rescheduling @JaimeS ??? ;)
     
  12. JaimeS

    JaimeS Senior Member

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    You can always send shoes and write things!
     
    AndyPR and PennyIA like this.
  13. Sasha

    Sasha Fine, thank you

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  14. Horizon

    Horizon Senior Member

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    I really hope this one will be massively successful.
     
    Little Bluestem and Comet like this.
  15. JaimeS

    JaimeS Senior Member

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    The UK is set to go in MANY cities this time around -- very proud of our UK brethren!
     
    Comet, Sasha and Bob like this.
  16. Comet

    Comet I'm Not Imaginary

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    Is there anything we can do to help advocate for doctor awareness of ME/CFS? If the CDC says we have a real illness, why is there no doctor/medical personnel training or continuing education for ME in the US (this second question is rhetorical)?

    If this was the case, at least our symptoms could be documented or even, *gasp*, treated.

    I have to make my best efforts to earn a living while being mostly bedbound, but maybe I can do a little to help.
     
    Jennifer J likes this.
  17. JaimeS

    JaimeS Senior Member

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    @Comet -- I'm working on something like this, maybe you can help? PM me. :)
     
    Jennifer J and Comet like this.
  18. Sasha

    Sasha Fine, thank you

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  19. Comet

    Comet I'm Not Imaginary

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    Sasha likes this.
  20. Comet

    Comet I'm Not Imaginary

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    Will do! :)
     

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