The 12th Invest in ME Research Conference June, 2017, Part 2
MEMum presents the second article in a series of three about the recent 12th Invest In ME International Conference (IIMEC12) in London.
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Millions Missing Advance Coverage

Discussion in 'Action Alerts and Advocacy' started by Old Bones, Sep 23, 2016.

  1. Old Bones

    Old Bones Senior Member

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    shannah Senior Member

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    mango Senior Member

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  4. Old Bones

    Old Bones Senior Member

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    Sweden:
    https://eposten.se/asikter/2016/09/26/miljontals-saknas

    English translation (Google):

    Millions missing
    OPINIONS: Empty shoe stalls
    Tuesday, 27 September is empty shoes on squares and public places all over the world to show how many people are missing due to disease ME / CFS.

    "Millions missing" - that is, millions of people are missing - is an international campaign to draw attention to the disease ME / CFS.In Sweden alone, about 40 000 people are affected.The disease is chronic and severe debilitating.Onset often occurs suddenly and is usually associated with a severe bacterial or viral infection, and the disease has never recovered even if the infection has cleared.

    It affects men, women and even children.Some people with ME / CFS are completely bedridden while others are housebound because of ME / CFS.Formerly called the chronic fatigue syndrome.Fatigue is the wrong word, it is a total exhaustion aggravated by calling effort.Overall physical and mental exhaustion.One can compare it to run a marathon a day with the flu in the body simultaneously.Researchers have found that nervous, immune and endocrine system are affected by the disease.

    Increasingly, research suggests that ME / CFS is an autoimmune disease.

    The disease ME / CFS affects men, women and even children.Some people with ME / CFS are completely bedridden while others are housebound because of ME / CFS.

    Increased knowledge about ME / CFS needed among health professionals, policy makers, authorities and the public that ME / CFS patients to receive appropriate care and treatment.

    Self I became ill 15 years ago.I dream to walk, bike and get back to work.There are many of us with ME / CFS who dream about, to get our fill empty shoes again.

    Increased research funding especially to biomedical research would bring us ME / CFS sufferers closer to that goal.

    Facts and quotes are taken from RMEs writings.RME stands for National Association for ME patients, which is a non-profit organization.

    Agneta Karlsson
     
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  5. AndyPR

    AndyPR Senior Member

     
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  6. worldbackwards

    worldbackwards A unique snowflake

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    Earth
     
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  7. worldbackwards

    worldbackwards A unique snowflake

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    Earth
     
  8. Old Bones

    Old Bones Senior Member

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  9. daisybell

    daisybell Senior Member

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    New Zealand
    She did a great job, and John Darvall is very sympathetic to our plight and supportive.
     
  10. AndyPR

    AndyPR Senior Member

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    Old Bones Senior Member

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