Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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#Millions Missing 27 Sept 2016 - post coverage, videos, pix, tweets here

Discussion in 'Millions Missing Campaign' started by Sasha, Sep 26, 2016.

  1. Yogi

    Yogi Senior Member

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  2. Yogi

    Yogi Senior Member

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  3. Yogi

    Yogi Senior Member

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  4. mfairma

    mfairma Senior Member

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    It's nice to see this snowballing. Good on the organizers. While I have not been crazy about some of the approaches, maybe I've been wrong.
     
    AndyPR likes this.
  5. AndyPR

    AndyPR Senior Member

    Nothing wrong with disagreeing with an approach but, personally, I think one of the successful things about #MEAction, to date, is that it's taking more than one approach, which it's been able to do by getting more people on board. But I can imagine people will disagree with doing things that way, and there can be times when an ultra-focused approach is more successful. It's just trying to find the successful approach to each problem, and that is easier to write than to actually do. :)
     
    flybro, Valentijn, dannybex and 3 others like this.
  6. leela

    leela Slow But Hopeful

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    Couchland, USA
    This is the most widespread, global, informative, awareness-raising, powerful movement that has occurred to date in ME history!
    Total gratitude and awe to @JenB and the worldwide team of patients and supporters that have made it such a success :angel:
     
    flybro, Hutan, Rooney and 16 others like this.
  7. Keela Too

    Keela Too Sally Burch

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    Little bit of video in this short article
     
    Yogi, Sushi, Comet and 1 other person like this.
  8. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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    ahimsa, Valentijn, Comet and 7 others like this.
  9. Sushi

    Sushi Senior Member Albuquerque

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    [​IMG]
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    Dr. Ron Davis, Dr. Laurel Crosby to the right​

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    Dr. Eric Gordon, Dr. Jose Montoya, Dr. Janet Dafoe, Dr. Ron Davis​
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    Dr. Ron Davis​
    [​IMG]
    Linda Tannenbaum, CEO/President, Open Medicine Foundation​
     
    Last edited: Sep 28, 2016
    ahimsa, Valentijn, Comet and 8 others like this.
  10. BurnA

    BurnA Senior Member

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  11. Sushi

    Sushi Senior Member Albuquerque

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    [​IMG]
    Dr. Eric Gordon​
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    Dr. Ron Davis (photo of son Whitney in front)​
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    Linda Tannenbaum, Dr. Ron Davis, Dr. Janet Dafoe, Ashley Davis​
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    (from left to right) in blue shirt--Julie Wilhelmy (Dr. Davis's research assistant), Dr. Laurel Crosby (shading eyes), Dr. Janet Dafoe (back to camera​
     
    Last edited: Sep 28, 2016
    ahimsa, Comet, daisybell and 6 others like this.
  12. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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    If you click on the link I posted you can see labels below some of the photos saying who the people are. One notable photo is of Eric Gordon, Jose Montoya, (me) and Ron Davis.
     
    Valentijn, Sushi, Comet and 5 others like this.
  13. Jill

    Jill Senior Member

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    Auckland, NZ
    Thank you for your wonderful speech Janet, after the hectic day prior with Whitney. I think I love your family. Look after yourselves now, and I pray the NIH steps up to help Ron xxxxx
     
  14. Yogi

    Yogi Senior Member

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  15. worldbackwards

    worldbackwards A unique snowflake

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    Earth
    Astonishingly, Kate Hoey in "not a complete waste of space" shocker!

     
  16. AndyPR

    AndyPR Senior Member

    Coverage of the Cardiff demo
     
    CFS_for_19_years likes this.
  17. Effi

    Effi Senior Member

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    Another one from the Dutch team! At night on the 27th they made the news section on a national commercial tv channel. The (soft) news section is called Hart van Nederland (Heart of the Netherlands). They interviewed one of the patients who was at the protest in The Hague. I'll post the link here, although the video can only be watched in the Netherlands: http://www.hartvannederland.nl/video/uitzendingen/2016/27-september-2016-laat/

    Someone was so kind to make a transcript of the interview:
     
    Sasha, Lindberg, Hutan and 7 others like this.
  18. AndyPR

    AndyPR Senior Member

    San Francisco - Linda Tannenbaum
     
  19. Keela Too

    Keela Too Sally Burch

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    N.Ireland
    Video coverage of Belfast demo - our bit starts at 2:11
     
    mango, -Jessie-, Comet and 5 others like this.
  20. adreno

    adreno PR activist

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    Huffington Post:

    http://m.huffpost.com/us/entry/12184042
     
    Last edited: Oct 1, 2016
    Comet likes this.

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