Invisible Illness Awareness Week 2016: Our Voices Need to Be Heard
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#Millions Missing 27 Sept 2016 - post coverage, videos, pix, tweets here

Discussion in 'Millions Missing Campaign' started by Sasha, Sep 26, 2016.

  1. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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  2. Janet Dafoe (Rose49)

    Janet Dafoe (Rose49) Board Member

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    Ben H, BurnA and Sushi like this.
  3. Old Bones

    Old Bones Senior Member

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  4. leela

    leela Slow But Hopeful

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    Couchland, USA
    @Rose49--you, Jose, Ron, and Eric were amazing! I feel so hopeful and so grateful.
    Thank you for being so steadfast, diligent, persistent and strong.
    Love you all :heart::star::heart:
     
    Johannawj, Comet, Daisymay and 12 others like this.
  5. JenB

    JenB

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    Comet, leela, Daisymay and 9 others like this.
  6. AndyPR

    AndyPR Senior Member

    If someone can upload them to YouTube that would really speed up the ability for me to get a transcript done. I would do it, or at least try, but I'm not at home this week so haven't got access to my half decent computer and unlimited fibre broadband.
     
    Comet, aimossy, Ben H and 3 others like this.
  7. AndyPR

    AndyPR Senior Member

    Just wanted to say thank you to Jen and all the rest of the team who have worked so hard on these events, great job. :)
     
  8. AndyPR

    AndyPR Senior Member

     
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  9. AndyPR

    AndyPR Senior Member

     
    Comet, leela, Ben H and 1 other person like this.
  10. AndyPR

    AndyPR Senior Member

    A promo video for Millions Missing that I hadn't seen before.
     
    Comet, Cornishbird, aimossy and 7 others like this.
  11. AndyPR

    AndyPR Senior Member



    Let the name flame wars commence!! ;)
     
    Comet, leela, Yogi and 3 others like this.
  12. AndyPR

    AndyPR Senior Member

  13. AndyPR

    AndyPR Senior Member

     
  14. Sasha

    Sasha Fine, thank you

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    That's very kind of you, Andy! I hope you're using oTranscribe? It cuts down transcription time enormously. You can do it via a YouTube link or an audio file.

    Thank you for all your posts - it made it really easy to pick out the good stuff from a sea of coverage!
     
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  15. paul80

    paul80 Senior Member

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    Ron says something about testing drugs in the lab and not needing patients. Says they can scan thousands of coompounds in a day. Love to hear more about this.
     
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  16. Ben H

    Ben H OMF Correspondent

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    Not sure what happened as was working yesterday. As im sure you've seen @Rose49 has posted the same video from facebook :)


    B
     
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  17. AndyPR

    AndyPR Senior Member

    To be fair I'm bored, I'm on holiday with my wife, mother and mother-in-law but I'm not well enough to go do anything with them. If the videos are on YouTube I can cheat and just download the subtitles that YouTube generates and then work on that. But thank you for your thanks, I may not have been able to get to a protest but my shoes were there and I was able to add to the effort a little bit by helping to update this thread.
     
  18. aimossy

    aimossy Senior Member

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    Great talks in San Francisco!

    The NYC live protest video was posted:

    "Thank you Jennifer Johnson Avril and Terri Wilder for posting video!
    #MillionsMissingLive #MECFS New York City Protest! You can catch Dr. Mady Hornig speaking at about 25 Minutes in. We will work on transcribing Dr. Hornig and Dr. Levine's talks for people."

    You can see the FB posted video here.

    I am starting to feel a little excited because it seems to me personally that Ron Davis and Mady Hornig are sort of converging in their thoughts. There seems to be similarities.
     
    Last edited: Sep 28, 2016
    Comet, leela, Daisymay and 4 others like this.
  19. Yogi

    Yogi Senior Member

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    I was wondering if I should put this up yesterday and who this was.

    Well it is this very brave young lady who did this yesterday.



    She is a journalist who has written for the Guardian and Times.
    And a member of the forum.



    I have mentioned this as she said she does not mind being identified. I hope it is OK.

    Thank you @JanetME for your bravery and for making ME visible!:thumbsup::heart::thumbsup::heart::thumbsup::heart:

    Hope the police did not give you any hassle?







    https://mobile.twitter.com/JanetEastham/status/781117915915513856
    https://mobile.twitter.com/JanetEastham/status/781118696039276544

    https://mobile.twitter.com/JanetEastham/status/781119724818145284
    https://twitter.com/JanetEastham/status/781120303934169088
     
    Last edited: Sep 28, 2016
  20. Effi

    Effi Senior Member

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    Another Dutch newspaper article. An interview with the same patient who did the interview on national radio. http://www.rd.nl/vandaag/binnenland/schoenen-als-stille-getuigen-van-een-slopende-ziekte-1.1130544

    OK-ish Google Translate version here.
     

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