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#Millions Missing 27 Sept 2016 - post coverage, videos, pix, tweets here

Discussion in 'Millions Missing Campaign' started by Sasha, Sep 26, 2016.

  1. Sasha

    Sasha Fine, thank you

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    It's almost on us! There was some amazing live video footage etc. in the May protest. Now it's going to be an incredible 25 cities in a one-day, global protest!

    The first protest looks to be in Melbourne, Australia - and as the sun comes up on the rest of the world it's South Africa, Europe, the UK, Argentina, Canada and the United States.

    It's already Tuesday the 27th in Melbourne - gone 1 a.m. - by the time I get up in the morning here in the UK, they'll be well under way (if not finished! I don't know when they're on).

    Post the coverage here, folks! :)

    Good luck to all those attending in person - don't wear yourselves out.
     
    Tom Kindlon, Yogi, Ben H and 11 others like this.
  2. Cheshire

    Cheshire Senior Member

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    Yogi, Kati, Jennifer J and 4 others like this.
  3. Sasha

    Sasha Fine, thank you

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    A little bump for this, since its time has nearly come...
     
  4. Effi

    Effi Senior Member

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  5. Kalliope

    Kalliope Senior Member

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  6. Kalliope

    Kalliope Senior Member

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    (From Norway) ME- movie made by Kristina Vedel Nielsen. This is a personal story about how it feels to be ill with a serious illness. ME- MYALGIC ENCEPHALOMYELITIS.

    Photo: Tom Lund, www.tomlundphotography.com
    Music: Frode Meland

    This movie is supported by Norwegian ME association in Vestfold
    and #MillionsMissing, www.millionsmissing.org

     
    ghosalb, Chezboo, Lindberg and 5 others like this.
  7. CFS_for_19_years

    CFS_for_19_years Hoarder of biscuits

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    Very moving.
     
    Kalliope likes this.
  8. Sasha

    Sasha Fine, thank you

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    It's protest day!

    Anything from Melbourne?
     
  9. charles shepherd

    charles shepherd Senior Member

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    Millions Missing demos on September 27th - UK media coverage

    OXFORD

    Feature in the Oxford Mail:

    http://www.oxfordmail.co.uk/news/14...erers_of_debilitating_condition/?ref=mr&lp=16

    Nicki Strong (MEA trustee who is helping to organise the Oxford event) and I have recorded interviews for BBC radio and TV on Monday 26th

    These interviews should be going out on BBC Oxford Radio today (Tuesday 27th) and on BBC TV South - lunchtime news and evening news

    And it may be possible for other BBC local stations where protests are taking place to make use of the medical interview, which concentrates on the key issues - medical education, research and treatment - rather than the Oxford event which Nicki has covered
     
    ahimsa, BurnA, Comet and 2 others like this.
  10. Sasha

    Sasha Fine, thank you

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    AndyPR likes this.
  11. Sasha

    Sasha Fine, thank you

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    luludji, Comet, RL_sparky and 6 others like this.
  12. Cheshire

    Cheshire Senior Member

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    Excellent article in The Guardian by Nathalie Wright:
    ME affects four times as many women as men. Is that why we’re still disbelieved?


    https://www.theguardian.com/comment...four-times-women-men-chronic-fatigue-syndrome
     
    ahimsa, harveythecat, Hutan and 13 others like this.
  13. Sasha

    Sasha Fine, thank you

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    Starting to see pix of shoes, including some individual pairs from demos, such as from Bristol:

     
    Comet, RL_sparky, Valentijn and 3 others like this.
  14. Ben H

    Ben H OMF Correspondent

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    My good friend has taken my shoes along to Bristol MM, UK. He is also a photographer so I've asked him to keep me updated and will post here when he manages to.

    B
     
  15. AndyPR

    AndyPR Senior Member

    If you have a social media account of any type, please use it to share any coverage, along with the #MillionsMissing hashtag - the idea, along with the Thunderclap, is to get the hashtag trending, which will then increase the level of interest. I'm normally reluctant to spam my Facebook feed with ME 'stuff' but today I'm adopting the "fuck it, my life is ruined by this so I'm going to virtually shout about it all day" attitude. ;)
     
    Tom Kindlon, MEMum, Snowdrop and 9 others like this.
  16. worldbackwards

    worldbackwards A unique snowflake

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    Cracking line to take in The Graun!
     
  17. Yogi

    Yogi Senior Member

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    Ben H and AndyPR like this.
  18. Effi

    Effi Senior Member

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    The Dutch team on Dutch National Radio this morning!! (a patient + cardiologist Dr Visser who sees a lot of ME patients)
    http://www.nporadio1.nl/gemist

    Great interview! A mentioning (as per usual) of the CBT/GET movement in the Netherlands, but Dr Visser did a pretty good job explaining that that is generally not helpful (at least not for the patients he sees).

    Short article from the radio's website:
     
    trishrhymes, Comet, Kati and 5 others like this.
  19. AndyPR

    AndyPR Senior Member

    Ah man, at least I had most of a life :cry:
     
    luludji, Tom Kindlon, Hutan and 7 others like this.
  20. Sasha

    Sasha Fine, thank you

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    Holy shit! Look at The Hague! 1,000 shoes!



     

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