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Mikovits speaking at UCLA on XMRV on Oct. 8

Discussion in 'Media, Interviews, Blogs, Talks, Events about XMRV' started by Daffodil, Sep 22, 2010.

  1. Daffodil

    Daffodil Senior Member

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    dont have a link
     
  2. urbantravels

    urbantravels disjecta membra

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  3. Otis

    Otis Señor Mumbler

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    Sounds interesting. The title of the talk is:

    MLV related viruses in neuroimmune disease and cancer: Is XMRV or PMRV the pathogenic variant or does it take two to tango?
     
  4. Andrew

    Andrew Senior Member

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    Anyone going?
     
  5. urbantravels

    urbantravels disjecta membra

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    It sounds interesting but it would be a roll of the dice for me as to whether I could make it that day. Haven't been in great shape lately.
     
  6. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

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    From Co-cure email:

    UCLA AIDS Institute - CFAR Center For AIDS Research - University of
    California Los Angeles
    Special Lecture

    Judy Mikovits, Ph.D.
    Research Director
    Whittemore Peterson Institute (WPI) for Neuro-Immune Disease

    “MLV related viruses in neuroimmune disease and cancer: Is XMRV or
    PMRV the pathogenic variant or does it take two to tango?”
    Friday October 8, 2010 12:00pm to 1:00pm 23-105 CHS

    Hosted by the Basic and Translational Research Program Section
     
  7. August59

    August59 Daughters High School Graduation

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    Has anyone heard what the contents of this lecture by Dr. Mikovits was? Did anyone go??

    Moderator: There are two threads referencing this lecture, but neither one is very long so you might merge the two or delete one of them
     
  8. August59

    August59 Daughters High School Graduation

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    No one has heard anything from this seminar with Dr. Mikovits??

    It seems as if someone might of at least received a "tweet" or something from the seminar. Especially since the title seems suggestive of a link between XMRV needing to be in the presence of another virus to cause problems. It just seems that is implying something, but it could just be me. Thanks
     
  9. urbantravels

    urbantravels disjecta membra

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    Sorry to say, the timing was all wrong for me to get over to UCLA on Fri. - on a good day, I could possibly have managed it, but I had had important business to conduct Thurs. which involved lots of driving and other exertions, leaving me badly PEM'ed.

    My hope would be that the WPI would post something about the talk, at least a press release? But I don't see anything yet on their Facebook page or website.
     
  10. August59

    August59 Daughters High School Graduation

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    I was wondering for obvious reasons and there was some conversation on another forum. There was interesting theories, but nothing sourced directly from seminar. I know what you mean about taking care of business, my "To Do" list keeps getting longer and longer. We have to keep the "Pace" to avoid the dreaded crash.

    Thanks and maybe something will pop up soon as I'm sure somebody was taking notes. If there was any big news there would have probably been something publicly announced.

    Cort may know something or get some info on Monday.
     
  11. Andrew

    Andrew Senior Member

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    A friend of mine said he was going. I asked him to take notes, and he said he would. But I have not been able to get in touch with him to find out if he went. I hope he did, and I hope he can give us some insights. And, of course, I'll report here with what I find.
     
  12. Daffodil

    Daffodil Senior Member

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    from yahoo group:

    "Dr. Mikovits XMRV Lecture Summary at UCLA

    She's been addressing the problem of other labs/people not being
    able to find the XMRV by teaching them on how to do it. She is breaking
    up the disease into 2 parts. 1) the virus 2) the individual's DNA. She
    is not sure if this is the only virus in CFS patients, when in fact she
    has seen people with 2 and 3 virus's. She has identified 6 types of
    defects in a persons DNA that makes them susceptible to the disease and
    other diseases. She believes that a combination of AIDS drugs can
    potentially cure a CFS patient. When asked about what type of doctor
    should administer the AIDS drugs, she responded; an AIDS doctor. I
    guess that there can be severe consequences, including liver failure.
    Which is probably why she was presenting to AIDS doctors. She also
    asked that they (UCLA) seriously consider clinical trials.

    I felt that the UCLA doctors were receptive. There were several
    questions and comments that were neutral to positive."
     
  13. citybug

    citybug Senior Member

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    Dr. M talks also to patients Oct 17 at NJ conference on home page. Thanks Daffodil.
     
  14. August59

    August59 Daughters High School Graduation

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    Thanks Daffodil

    I knew someone had to at least pick up on something that came out of the seminar. The title to the seminar raised a little bit of speculation about more than one virus ("Does it take Two to Tango"). The need for more than one virus, plus glitches in one's DNA would go along way in explaining why we are all a little different and why we have healthy controls that are XMRV+.

    Didn't Dr. Mikovits indicate in her initial findings that CFS patients had upwards of 20 - 30 viruses compared to healthy controls having only 8 - 10? On top of that you can then throw in Lymes (and etc...) bacterial infections. I can certainly see the anti-viral cocktails and/or anti-viral/antibiotic cocktails even playing a big part. I hope that the multiple viral assays are coming along well!!

    If she can talk UCLA into starting "clinical trials" would be a great boost for us right now and I would hope get the ball rolling at a lot more institutions.

    Thanks again
     
  15. urbantravels

    urbantravels disjecta membra

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    Clinical trials at UCLA would be a DREAM COME TRUE for this Angeleno!!
     
  16. Daffodil

    Daffodil Senior Member

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    i'm really upset about us always being grouped together with AIDS. i know its dumb to feel that way. i probably shouldnt even type it.
     
  17. Berthe

    Berthe Senior Member

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    Dear Daffodil,
    I understand your concern. If I'm to choose between XMRV being a sister of HTLV/Leukemia or brother of HIV/Aids, I'd rather tell people the first. It's because the damned connotation Aids has. On the other hand it's probably the best way to express the severity of the disease. First there is nothing, only something in your head and then all of a sudden it's linked to Aids. Pretty heavy stuff.
    Despite the damned connotation I like the idea for Aidsspecialists to help us with the right medication. Actually I already found out where to go in my area for help. I'm waiting the testresults before I contact them. They mean hope to me.
    Btw, thank you for filling in the blanc with Judy's 'two to tango'. I wish you all the best.

    Love,
    Berthe

    http://www.onwilliglichaam.blogspot.com
     
  18. eric_s

    eric_s Senior Member

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    As far as i'm concerned, i don't mind. It helps us to be taken seriously and it brings us in touch with a group of doctors and researchers that are well funded, respected, have a lot of resources etc. And they already know a lot about HIV/AIDS, which might help us a lot, speeding things up. As soon as more facts about CFS are really established it will be clear to everyone that it's something different from HIV and also since probably around 7% of the population have XMRV, they can't marginalize us.
     
  19. Daffodil

    Daffodil Senior Member

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    true. plus atypical MS, autism, cancers will have it...

    everything just seems to upsetting....no cure....ARV's being so toxic...reading about all the deaths..... all the tissue damage from years of the disease...only to be topped off by researchers still debating contamination!

    its like there is never any good news for us
     
  20. Andrew

    Andrew Senior Member

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    CFS was once thought of a HIV-negative AIDs, or AIDS minor. Although there are differences, both groups suffer from an acquired immune deficiency.
     

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