The Call for Opposition: Challenging the P2P and IOM Processes
In our second article on how to react to the publication of the draft P2P report, Gabby Klein provides her view of why she and a large group of advocates and patients are continuing their protest of the government’s ongoing control and manipulation of our disease via their processes...
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Mikovits seminar at Cornell Friday, Feb. 5, 2010

Discussion in 'Media, Interviews, Blogs, Talks, Events about XMRV' started by Advocate, Jan 29, 2010.

  1. _Kim_

    _Kim_ Guest

    Scroll back CG, Advocate announced that the lecture is NOT open to the public a few posts before yours.
     
  2. Countrygirl

    Countrygirl Senior Member

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    QUOTE]
    Thanks, Kim. I did...I'm just being an optimist! Someone might just know.....okay.......so nobody does. :tear: I'll put my optimism to bed.
     
  3. Esther12

    Esther12 Senior Member

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    It's the unpublished data I want to know about!!

    Anyone going to slip on a white-coat and sneak in for us? A bugging opperation?
     
  4. parvofighter

    parvofighter Senior Member

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    Oh Puhleez

    I'm still in this crash, feeling brutal, but would feel worse if I didn't say something. Esther, what the SAM HILL were you thinking by writing something so inflammatory?:confused: Let me get this straight:

    1. We've been advised that the Cornell Mikovits talk is a private one, in which Dr Mikovits can openly discuss potentially unpublished XMRV materials. Private, so they can accelerate the science forward without premature disclosures.
    2. We're well aware that many people view these pages, and members of the public (i.e. us) have been discreetly asked to please not attend the Cornell talk, to allow science to progress. Surely you realize that scientific synergy is good for this patient community?
    3. You openly - no blatantly - post the following:
    Esther, shame on you for being so inflammatory. It is immaterial whether your post was a tasteless joke, an intentional goading of XMRV researchers, or just a male blonde moment. Your post gives all of us patients a bad name. Please shake your head. Consider that your post comes across as a bizarre, tasteless, and unprofessional "call to arms". And show a little insight and restraint. The last thing patients want to do is to alienate the very researchers who are pulling us out of the dark ages.

    Posting inflammatory and public comments on this forum that transparently encourage patients to flout the explicit, and very reasonable requests of the researchers that are most helping us patients is beyond bizarre -it's destructive. After all, you want CFS patients to get quality, evidence-based diagnostics and care. Don't you?:thumbsup:
     
  5. calzy

    calzy Senior Member

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    I recognize this as a crash (above) and hoping that you find relief soon...we've all been there.:worried:
     
  6. kurt

    kurt Senior Member

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    Esther,
    What you are suggesting would be against the rules of that presentation (and not very ethical) and any reports like that on this forum would have to be deleted.

    Parvofighter,
    The comment of Esther does not justify a personal attack. Please just comment on the problem and do not berate a person making a comment like that.

    Also, a personal opinion, I disagree about Esther's comment being inflammatory, it was maybe ill considered, that's all.
     
  7. Lily

    Lily *Believe*

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    Oh dear - When I read those earlier I thought Esther and Parvofighter were both kidding.......was I really that far off??? Seriously???? :confused::ashamed:
     
  8. usedtobeperkytina

    usedtobeperkytina Senior Member

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    inquiring minds want to know.

    Me thinks thou doth protest too much.

    Just relax.

    Tina
     
  9. Esther12

    Esther12 Senior Member

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    I was certainly kidding!

    I thought parvofighter was satirising my comments from another thread too (and doing a rather good job of it).

    I wasn't really encouraging CFS patients to set up a spy ring!
     

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