Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Mikes EU Marathons for Invest In ME

Discussion in 'Fundraising' started by Mike Harley, Oct 12, 2016.

  1. Mike Harley

    Mike Harley

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    hi folks

    Luxembourg (Number 11) was pretty brutal but got around in the end...

    http://www.mikeseumarathons.eu/luxembourg.html

    Over £700 raised from this one and now it's on to Vilnius (Lithuania) for the next race on Sept 10th.

    I'll be doing a rare UK race next Sunday in Frome. It's a hilly half marathon that should help with my training for the 3 autumn marathons coming up.

    If anyone lives locally and would like to come along to meet that would be great. I'll be there with my big flag and hopefully you can get your mug in the local paper with me.

    Kicks off at 10am, more details here: http://fromehalfmarathon.co.uk/, if you're coming then let me know on https://www.facebook.com/mikeseumarathons/

    Catch up soon

    Mike
    https://www.justgiving.com/fundraising/mikeseumarathons
     
  2. Jo Best

    Jo Best Senior Member

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    AndyPR, Joh, *GG* and 3 others like this.
  3. Mike Harley

    Mike Harley

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    Hi all.

    Quick update....

    I managed to get some good exposure for ME research in Lithuania this week. An interview I did with a journalist attached to the marathon made it to Lithuania's biggest newspaper and online news site:

    http://sportas.lrytas.lt/startai/20...--dvyliktoji-ambicingo-brito-stotele-2265594/

    Lithuania patient interview to follow this weekend which I'll post soon.

    Also I'll be running Bridgwater (Somerset) Half Marathon on Sunday at 11am. If anyone would like to cheer me on and come for a chat then it would be great to see you.

    Info here: https://www.facebook.com/events/215...ed_story_type":"117","action_history":"null"}

    Thanks

    Mike
     
  4. cornwall13

    cornwall13

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    Jo Best, Joh, mango and 3 others like this.
  5. Mike Harley

    Mike Harley

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    Evening all.

    Here's my interview with Aleksas, an ME sufferer in Lithuania about his life with the illness and what it's like there as a patient.

    http://www.mikeseumarathons.eu/lithuania.html

    Please all RT and generally share the hell out of it. I'd love to help him raise awareness and maybe find other patients there he can talk to.


    https://www.facebook.com/mikeseumarathons/

    If you'd like to sponsor me for the race in Vilnius on Sunday and help fund Invest In ME's research projects to find a cure then I'm over at www.justgiving.com/mikeseumarathons

    Thanks

    Mike
     
    ScottTriGuy, Jo Best, AndyPR and 5 others like this.
  6. Jo Best

    Jo Best Senior Member

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    Personal Best in Lithuania! :woot: :balloons: :thumbsup:
    Well done Mike and thanks so much for all you're doing for people with ME. :hug:

     
    ScottTriGuy, AndyPR, Helen and 4 others like this.
  7. Mike Harley

    Mike Harley

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    Hi All

    Number 12 of 28 is done.

    Race report here for anyone who is interested.

    [​IMG]

    Really happy with how Lithuania went with the national press coverage, patient interview and support from their Football Association and Vilnius Marathon. Over £1K in for Invest In ME's research projects too.

    http://www.mikeseumarathons.eu/vilnius-lithuania-sept-2017.html

    Total currently at £8175

    Next up is Amsterdam on Oct 15th. Will post links to my interviews with patients and ME groups soon.

    Thanks for your support

    Mike
     
    Last edited: Sep 13, 2017
  8. Little Bluestem

    Little Bluestem All Good Things Must Come to an End

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    Congratulations on your new personal best! :trophy::beer::cookie:
     
    ahimsa, Mike Harley, Esther12 and 4 others like this.
  9. Mike Harley

    Mike Harley

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    Hi folks

    Ahead of my next race in Amsterdam, I've interviewed 3 people in the Netherlands for their take on life with ME there.

    http://www.mikeseumarathons.eu/netherlands.html

    Working on a press release for the media there and looking forward to meeting Rob Wijbenga from ME Centraal and The Global ME Chronicle when I'm over there.

    Mike
     
    ahimsa, Valentijn, Helen and 8 others like this.
  10. Jo Best

    Jo Best Senior Member

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  11. Jo Best

    Jo Best Senior Member

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  12. Jo Best

    Jo Best Senior Member

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    A third of the way to your fundraising target on your birthday Mike :balloons::balloons::balloons:
    https://www.justgiving.com/fundraising/mikeseumarathons
    Hope you had a great day!

     
  13. Mike Harley

    Mike Harley

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    ScottTriGuy, Comet, BurnA and 5 others like this.
  14. Joh

    Joh Inactivist

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    Hi @Mike Harley,

    I wrote a short article about Mikes's EU Marathons for the monthly ME/CFS-update of The German Association of ME/CFS. In German, sorry. ;)

    Also linked to @Grigor's article about the campaign and quoted the headline, that I loved (Mike Harley is running for our lives). :)

    https://www.mecfs.de/mecfs-update-112017/
     
    ScottTriGuy and Jo Best like this.
  15. Mike Harley

    Mike Harley

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    Thanks @Joh that's really kind of you! I'll find out if I've made it through the ballot for Berlin next week. With a bit of luck I'll be running in Germany next September :)
     
    Joh likes this.
  16. Joh

    Joh Inactivist

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    Yay! :balloons: I used to live in Berlin, but sadly had to move back home to my parents to be cared for. But I'll cheer you on from afar. And would love to help with contacting interview partners or translating if needed. I'm also in contact with Juli (she's awesome!). :)
     
    Mike Harley likes this.
  17. Mike Harley

    Mike Harley

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  18. Mike Harley

    Mike Harley

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    Just a quick one to say thanks for supporting me this year everyone.

    I hope you were able to have pleasant pain-free Christmasses and hope that 2018 is a better year.

    Looking forward to making more friends next year and hopefully adding to the £9.6K we have for Invest In ME's biomedical research projects.

    [​IMG]

    (15) Malta (Malta) - Sun Feb 25th
    (16) Vienna (Austria) - Sun Apr 22nd
    (17) Copenhagen (Denmark) - Sun May 13th
    (18) Tallinn (Estonia) - Sun Sept 9th
    (19) Sofia (Bulgaria) - Sun Oct 14th

    I'm injured at the moment with minor calf tears but hope to be back ready for Malta

    Catch up soon

    Mike

    www.justgiving.com/mikeseumarathons
    www.mikeseumarathons.eu
    www.facebook.com/mikeseumarathons
    @mikeseumaras
     
    ScottTriGuy likes this.
  19. cornwall13

    cornwall13

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    Mike is doing a fantastic job raising money and awareness. If you could even just like his facebook page or share his facebook posts that would be great.
     
    ScottTriGuy likes this.
  20. Mike Harley

    Mike Harley

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    Joh and ScottTriGuy like this.

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