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Mikes EU Marathons for Invest In ME

Discussion in 'Fundraising' started by Mike Harley, Oct 12, 2016.

  1. Jo Best

    Jo Best Senior Member

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    Please could everyone supporting Mike in UK (or access to the BBC website) view and share this link to the late evening BBC Look East TV news report on the Invest in ME Research Centre of Excellence and rituximab trial -
    http://www.bbc.co.uk/iplayer/episode/b08bbztq/look-east-late-news-26012017

    It is on youtube in two parts - the full report in the early evening news, and the studio interview of Prof Simon Carding (shout if you need the links) - but if you can access the BBC site then it will help show the level of public interest in this research. BBC Look East covers a large region in UK but it would be good to make national news. Thanks :)
     
    Mike Harley and Esther12 like this.
  2. Esther12

    Esther12 Senior Member

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    I don't have a TV licence... but the thought was there!
     
  3. Jo Best

    Jo Best Senior Member

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    Haha! Do they know you haven't got a TV licence when you go to the website?
     
  4. Esther12

    Esther12 Senior Member

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    Well, they ask... I'm fearful of lying to the all powerful BBC!
     
    Jo Best likes this.
  5. AndyPR

    AndyPR Senior Member

    Tell them you are me, I've got a licence ;)
     
    Esther12 likes this.
  6. Mike Harley

    Mike Harley

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    Bristol
    Hi all.

    Hope you're all ok. I'm 5 weekends away from running number 10; Barcelona Marathon.

    Just posting my interviews with 3 very courageous Spanish ME patients here.

    Not happy reading and fairly typical of much of Europe but I'm going to do everything I can to share their stories with the media over in Spain and the health authorities. If I can get just one person to understand what ME is and how it affects people there then this will be worthwhile.

    http://www.mikeseumarathons.eu/spain.html

    I'll be meeting a couple of them in Barcelona if they're well enough, hopefully we can do something to help.

    Thanks

    Mike
     
    Binkie4, dangermouse, Laelia and 9 others like this.
  7. Joh

    Joh Inactivist

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    Germany
    Thank you so much for everything, Mike! :trophy::trophy::trophy:I heard you like beer (in your video), here's a traditional German Altbier for you to relax after your training. :beer:
     
    Last edited: Jan 30, 2017
    dangermouse, Aroa, Comet and 3 others like this.
  8. Mike Harley

    Mike Harley

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    Ah thanks! Not had a beer in 2017 yet so very gratefully received :)
     
    dangermouse, Aroa, Comet and 5 others like this.
  9. ScottTriGuy

    ScottTriGuy Stop the harm. Start the research and treatment.

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    Absolutely heart breaking stories. It never fails to shock me just how much harm physicians do to ME patients.

    Thank you @Mike Harley for all that you're doing.
     
    Binkie4, Aroa, Mike Harley and 4 others like this.
  10. Jo Best

    Jo Best Senior Member

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    Invest in ME Research posted yesterday on facebook that the charity has revamped the web page for Mike's EU Marathons slightly. They wrote,
     
  11. Jo Best

    Jo Best Senior Member

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    rosie26, Aroa, mango and 5 others like this.
  12. Jo Best

    Jo Best Senior Member

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    ETA: Link to post on facebook - https://www.facebook.com/MillionsMissingCanada/posts/398179053877156:0

    The charity invited the Canadian Minister for Health Jane Philpott and the Canadian National Research Council to London for the 2017 Invest in ME International Conference events.

     
    Last edited: Mar 7, 2017
    rosie26, Comet, Aroa and 2 others like this.
  13. cornwall13

    cornwall13

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  14. Mike Harley

    Mike Harley

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    Hi everyone.

    So Barcelona went well and I've now ticked off 10 out of the 28 marathons!

    Here's my report from last weekend: http://www.mikeseumarathons.eu/barcelona-spain-march-2017.html

    We raised £1K on this race for Invest In ME. The ME in Spain blog had over 6,000 views and we met with patients from two different ME support groups in Spain to help raise awareness there.

    I'm doing Luxembourg next on May 27th and would like to try to find at least one patient there to interview.

    By my calculations there should be 2000 ME/CFS patients there, it'll be hard to track one down but if anyone knows of anyone, I'd love to talk to them.

    Thanks for all your support.

    Mike
     
  15. mango

    mango Senior Member

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    @Mike Harley, you're amazing! :balloons: Thank you so soo much! Best of luck, have fun! :)
     
    Aroa, Joh, Mike Harley and 5 others like this.
  16. dangermouse

    dangermouse Senior Member

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    @Mike Harley very very well done you and thank you sooooooo very much, you are a star :hug:
     
    rosie26, Aroa, Joh and 6 others like this.
  17. Mike Harley

    Mike Harley

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    The lovely runner folk over at UKRunchat featured my challenge and Invest In ME this week on their 'Charity Focus'

    They posted on Instagram (10,000 followers) and 3 times today on Twitter (50,000 followers), that's a decent bit of awareness and I've had some nice messages from runners with family who have ME.

    IMG-20170321-WA0000.jpg

    They've been really supportive of the challenge and could prove valuable when Runners World and the other big sports mags come calling in a couple of years.

    Mike
     
  18. ScottTriGuy

    ScottTriGuy Stop the harm. Start the research and treatment.

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    Good for you Mike - thank you for all the effort you put in and the funds and awareness you are raising.

    Maybe one day I, and others from the community, will be able to toe the start line with you.

    We're getting closer to that happening.
     
    rosie26, Jo Best, Aroa and 7 others like this.
  19. Mike Harley

    Mike Harley

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    Hi All.

    My next race (number 11 of 28) is in Luxembourg on May 27th.

    I've interviewed a lady called Katja who is one of an estimated 2000 people with ME living there.

    Here's what she told me.....

    http://www.mikeseumarathons.eu/luxembourg.html

    It's a tough read, she's had an awful time but I'm hoping we can get enough views from sharing that someone else from Luxembourg will emerge who she can talk to.

    Please feel free to share etc.

    Thanks

    Mike
     
  20. Jo Best

    Jo Best Senior Member

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    Just read this update on the Pre-Conference evening dinner by IiME Research in their Facebook group:

     

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