Invisible Illness Awareness Week 2016: Our Voices Need to Be Heard
Never heard of Invisible Illness Awareness Week? You're not alone. Jody Smith sheds a little light to make it more visible
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Midnight friends

Discussion in 'Connective Tissue Disorders/Ehlers-Danlos Syndrome' started by Allyson, May 17, 2014.

  1. Allyson

    Allyson

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  2. alex3619

    alex3619 Senior Member

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    I was a subject, along with quite a few others, in a study that ended a year or two back on using Second Life as a social media for ME patients. It can work, but its not for everyone. However if you look at PR, and what we do here, there are thousands who benefit from social media all the time. We just finished agreeing at our last SL meeting that the internet has changed everything for us. Many of us are very aware of it.

    With a proliferation of social media we have many choices. If someone is looking to connect with people and is house bound, or even bed bound, this is a minor miracle.
     
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  3. Allyson

    Allyson

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    well

    Well said Alex!

    Ally
     
  4. WillowJ

    WillowJ คภภเє ɠรค๓թєl

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    cool para from that article:

     
  5. Allyson

    Allyson

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    great thanks WillowJ !

    Virtual High 5 !

    ALLY
     
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