Fluge & Mella's pre-trial study highlights life-changing potential of rituximab
Sasha gives the background and Simon gives the interpretation of the latest study from Haukeland, published today...
Discuss the article on the Forums.

Meniere's Disease

Discussion in 'Detox: Methylation; B12; Glutathione; Chelation' started by Red04, Nov 21, 2012.

  1. Red04

    Red04 Senior Member

    Messages:
    178
    Likes:
    80
    Anyone on here cross diagnosed or misdiagnosed with Meniere's Disease?

    I have a close friend with vertigo, tinnitus, electric shock sensation, severe allergies, headaches, muscle pain, and he has recently received a Meniere's Disease diagnosis.

    I searched around this forum and not much on Meniere's. It isn't much of a disease, more of a syndrome. All of those are b12 symptoms as well. However, he doesn't have the sever fatigue or mental/depression or immune symptoms that seem to be prevalent here. I was wondering if anyone has a similar case. I think he could get some relief with methylation protocols, but he isn't what I would call a textbook case for rich or freddd's protocol. I was going to recommend the methylation panel, but wanted to check on others before I mentioned it.
     
  2. arx

    arx Senior Member

    Messages:
    532
    Likes:
    152
    I think all of us face different symptoms, and you should not think of things being in the 'textbook' category. The list of symptoms which Fred has described is very comprehensive, affecting so many processes. Read here:
    http://forums.phoenixrising.me/index.php?threads/active-b12-protocol-basics.10138/page-2#post-182716

    I myself had electric shock sensations and tinnitus as a major symptom.Now,after months on Fred's protocol,tinnitus is almost gone. Electric shock sensations have decreased in intensity,but come back again very strongly with certain supplements.I feel varying sensations,ranging from twitching to buzzing to stinging/tingling to electric shock like sensations to pain.
    I do face issues with many supplements like adb12 and carnitine.My symptoms intensify ten fold while on them.
    But all I want to convey is that B12 might help with the two symptoms I have mentioned.

    Has he had a B12 serum test done?
     
  3. arx

    arx Senior Member

    Messages:
    532
    Likes:
    152
  4. MARIETRELAWNEY

    MARIETRELAWNEY

    Messages:
    5
    Likes:
    2
     
  5. MARIETRELAWNEY

    MARIETRELAWNEY

    Messages:
    5
    Likes:
    2
    I've had menieres for 50 years - got terrible medical care and finally learned to do my own research, etc. It involves vertigo, hearing loss (later,) aural fullness ,and many peripheral symptoms. Most Drs and online sites say it is a disease without a known cause or much successful treatment and most of what they say is just plain wrong. With research patients realize that it has multiple causes and so various treatments help different people. I only recently realized I also have CFS and see that there are many overlapping symptoms. However, the central feature of menieres is that excess fluid builds up in the inner ear, resulting in vertigo and progressive hearing loss. It does need to be diagnosed tho, because if the symptoms don't resolve on their own, it can become disabling. There are a lot of treatments that can reduce or even stop the symptoms and progression if you study and track down your case. The most helpful source I have found is meniereshelp.com (the site is scrambled, but the info is really good and if you get one of his books, it's clear....he had it and has been gathering info on the various causes and treatments for a long time. A lot of good research is going on.....I never had the spinning vertigo myself, but "drop attacks" and continual disequilibrium. To have it checked out, he should see an Otologist rather than an ENT, who will usually know less. One last tip - 2/3s of menieres folk have allergies and migraines. A Jennifer Derebery MD at the House Ear Clinic is doing the work on menieres and allergies...she found that It takes less of an allergic response to cause the vertigo in menieres, so normal testing does not always find the allergens. That's what happened to me so I tried her method - intradermal testing - and it worked. GOOD LUCK to him - hope he doesn't have it!
     
  6. Johnmac

    Johnmac Senior Member

    Messages:
    626
    Likes:
    344
    Cambodia
    I had mild Meniere's (which is in my family) about 20 years ago. I concomitantly had raging ankylosing spondylitis, & this I cured with herbs & by going off grains, especially gluten grains. The Meniere's vanished as well.

    As Meniere's is autoimmune, the possible mechanism was via improving leaky gut - of which gluten is a cause.
     
  7. Countrygirl

    Countrygirl ᗩᑎᑎIᙓ ᘜᔕᗩᙏᑭᙓᒪ

    Messages:
    1,762
    Likes:
    5,457
    UK
    I have Meniere's and ME and the latter caused the former. Uncontrolled erratic BP and sudden massive changes in BP, especially when standing caused damage to the vestibular system and resulted in Meniere's disease. The symptoms are very different to me however and personally I don't understand how the two could be confused.
     
  8. MARIETRELAWNEY

    MARIETRELAWNEY

    Messages:
    5
    Likes:
    2
    I've had Menieres a long time, and later developed CFS. Menieres is probably caused by a number of different things which mess up the amount of endolymph in the inner ear - either there is too much fluid or it's not draining right. 2/3 s of people with Menieres have allergies and migraines. Western ear docs can diagnose it accurately; but I have met only one who would talk intelligently about it, because they don't know and they won't admit it. They'll tell you all kinds of shit and even do destructive surgeries. There's recent research into the vascular aspect as a cause and I think now that may be it for me, along with a dysfunctional stress response. There's a good site at meniereshelp - a collection of possible causes and treatments by a man who has it, but is asymtomatic now.
     
    Countrygirl likes this.

See more popular forum discussions.

Share This Page