New era for ME/CFS research as top cytokine study attracts media headlines
The immune systems of patients who have recently developed ME/CFS look markedly different from those who have been ill for much longer, according to a major new study from Drs. Ian Lipkin and Mady Hornig at Columbia University. This shift in immune function hadn’t been seen before.
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Memorial Thread: M.E. HERO’'s gone but never forgotten.

Discussion in 'General ME/CFS Discussion' started by allyb, May 12, 2013.

  1. beaker

    beaker CFS/ME 1986

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    Peace Tom H. Thank you for your courage and work on behalf of all of us. I'm sorry you could not fight any longer.
    We shall go on !
    God Bless.
     
    allyb and Kati like this.
  2. dannybex

    dannybex Senior Member

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    allyb and beaker like this.
  3. dannybex

    dannybex Senior Member

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    allyb likes this.
  4. allyb

    allyb Senior Member

    M.E Hero...................gone but NEVER forgotten. 25th September Rich Van Konynenburg

    I can never forget this day last year.... It was my 50th birthday..........our community was rocked, we lost a true warrior; a gentleman and an M.E. pioneer. At the time I never wrote a thing.... I was numb but I took great comfort in reading all the wonderful tributes to Rich Van Konynenburg; a man I had admired greatly from afar. So many people had a story to tell of their relationship with Rich and what he had done for them. Rich's wife Diana was so gracious in sharing with and involving our community. When I had this idea to start the thread Alex and I had spoke many times about the unfillable void left by his passing. One year on I still read his old posts and watch his video presentations and it's so hard to believe he's gone. I know for sure I will not be alone in this.....

    Sending love and warmth to Diana, Rich's family and everyone here who had the good fortune to know this incredible gentleman..........

    [​IMG]
     

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  5. John H Wolfe

    John H Wolfe Senior Member

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    I gather today is the 1st anniversary of his death - seemed like a good guy who did some invaluable work in our cause. RIP
     
  6. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Yes, today is the anniversary of Rich's death. I am sad. I miss him so much. :cry: There is no one remotely like him.

    Very best wishes to his wife Diana and to the rest of his family.

    Sushi
     
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  7. Helen

    Helen Senior Member

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    Thanks Sushi for expressing this so well.
    I agree, and I admit there hasn´t been a day without thinking of Rich since he passed away. I am looking forward seeing someone doing a scientific study, evaluating his simplified methylation protocol. So far I haven´t seen anything contradictionary to Rich´s theory; that there is a glutathione depletion due to genetics as a necessary factor in ME/CFS. Not a sufficient factor though, but necessary.

    Helen
     
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  8. Sammy

    Sammy

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    Very sad day indeed. It has been exacterly 1 year, the only reason I came online today. Sadly missed.
     
    Little Bluestem likes this.
  9. Allyson

    Allyson *****

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    Yes he was indeed wonderful and is sadly missed by all of us who benefited from his generous and thoughtful contributions.

    Best wishes to all his family who will have sad memories.


    Ally
     
    Nielk likes this.
  10. Radio

    Radio *****

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    Thank you Rich van Konyenburg for everything you have done for this forum...RIP.
     
    beaker and rosie26 like this.
  11. Tammy

    Tammy Senior Member

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    EDDIE BAUER.....................Leader of CFS site on Yahoo...........one of a kind can't even begin to describe Eddie...........he passed about four years ago. Shine on you crazy diamond.:angel: You are SO loved.
     
    allyb, beaker, alex3619 and 1 other person like this.

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