Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Members of Congress are coming together in a single voice to stand for ME/CFS. Will your Representat

Discussion in 'Action Alerts and Advocacy' started by Emily Taylor, Mar 9, 2018.

  1. Emily Taylor

    Emily Taylor

    Los Angeles, CA
    This week, SMCI staff and Board of Directors traveled to Washington DC and got results!

    Congresswomen Ana Eshoo and Zoe Lofgren are leading other members of congress in a letter and appropriations request for ME/CFS. Read the full letter and committee report language here. In brief, the proposed effort:

    (1) Supports continuation of the $5.4 million ME/CFS funding for the Centers for Disease Control’s (CDC),

    (2) Encourages CDC to resolve ME/CFS case definition issues and expand its efforts to educate health care providers,

    (3) Recommends that NIH create a strategic plan for ME/CFS research and increase the amount and types of funding,

    (4) Urges the Department of Health and Human Services to devise a multi-year strategic plan. The sign-on letter states that the increases in NIH’s budget affords NIH the opportunity and ability to increase funding to better reflect the ME/CFS disease burden.

    This action is a joint effort between #MEAction and the Solve ME/CFS Initiative.

    Use our easy form to send a message to your member of congress and ask them to join the effort today – *deadline is March 14*!
    Last edited by a moderator: Mar 9, 2018
    jeff_w, arboretum, alkt and 3 others like this.

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