The 12th Invest in ME Conference, Part 1
OverTheHills presents the first article in a series of three about the recent 12th Invest In ME international Conference (IIMEC12) in London.
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Medscape: CFS: Wrong Name, Real Illness

Discussion in 'General ME/CFS News' started by Countrygirl, Jan 8, 2015.

  1. Countrygirl

    Countrygirl Senior Member

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    http://www.medscape.com/viewarticle/837577_2?src=stfbHappy

    To read the whole article, you can log in for free.

    Chronic Fatigue Syndrome: Wrong Name, Real Illness


    For clinicians, the first step is to recognize that the condition is real.


     
    Last edited: Jan 8, 2015
    Little Bluestem, SOC, ahimsa and 33 others like this.
  2. daisybell

    daisybell Senior Member

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    This is far and away the best article I have seen on ME/CFS on Medscape.... It's made my day!
     
    Ritto, Dolphin, WillowJ and 5 others like this.
  3. Sidereal

    Sidereal Senior Member

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    Shockingly good article in a mainstream publication.
     
    Dolphin, WillowJ, NK17 and 7 others like this.
  4. Bob

    Bob

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    Wow, that's an incredibly comprehensive and very well researched article.
    To borrow @Sidereal's phrase (i can't think of a better description), it is indeed "shockingly good"!
     
    Last edited: Jan 10, 2015
    Sean, NK17, Never Give Up and 3 others like this.
  5. Wally

    Wally Senior Member

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    I met Miriam Tucker (author of the 1/8/2015 Medscape Article) in Washington D.C. last January, where she attended both the Press Conference with Llewelynn King, Andy Kogelnick and Ryan Prior, as well as the IOM public meeting. In talking to her, I came away thinking she has a sharp mind, writes well and seems to be very intrigued by the science and politics behind the ME (CFS) story.

    Here is a little more information about Miriam if you are not already familiar with who she is.
    - Website: http://www.miriametucker.com/
    - LinkedIn Profile: https://www.linkedin.com/in/miriametucker
    [​IMG][​IMG]- Twitter: https://twitter.com/MiriamETucker
    Here are two other articles where Miriam Tucker has written about ME/CFS.
    (Discussion of the "Chronic Fatigue: NIH Literature Review Faulted" Article can be found on the PR Forum at http://forums.phoenixrising.me/inde...-review-for-me-cfs-faulted.33760/#post-522528).

    1) 10/17/2014 - Medscape
    "Chronic Fatigue: NIH Literature Review Faulted" See, http://www.medscape.com/viewarticle/833428

    2) 1/30/2014 - NPR
    "Does Chronic Fatigue Syndrome Need A New Name?" See,
    http://www.npr.org/blogs/health/2014/01/29/268219979/does-chronic-fatigue-syndrome-need-a-new-name
     
  6. Sidereal

    Sidereal Senior Member

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    Unfortunately, every two-bit village MD thinks he knows better:

    socio-psychologic entity :vomit:
     
    zzz and GracieJ like this.
  7. alex3619

    alex3619 Senior Member

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    Not just "socio-psychological" but the "true cause of this socio-psychologic entity". My but I would love to see the dictionary used, because the definition of "true" will in no way lead to a conclusion that its a socio-psychologic entity, but that such claims should be suspect. Now, if I were to argue that the unfounded belief that its a socio-psychologic entity is in fact a socio-psychologic entity .... ;-) Is it then possible that belief in the Truth of something like this is delusional?
     
    MeSci, GracieJ, Never Give Up and 2 others like this.
  8. Roy S

    Roy S former DC ME/CFS lobbyist

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    From the Medscape article:

    "A caveat about ME/CFS treatment: use of both cognitive-behavioral therapy and graded exercise is highly controversial. The widely publicized 2011 PACE trial suggested that both modalities were beneficial,[24] but those findings are rejected by most in the ME/CFScommunity, who cite numerous study flaws, including the patient selection criteria. The PACE trial was partly funded by the UK government agency that distributes disability benefits, and several of the investigators had ties to the insurance industry."
     
    Paging Master Weasel...
     
    zzz, MeSci, jimells and 8 others like this.
  9. Gemini

    Gemini Senior Member

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    Antares in NYC likes this.
  10. Gondwanaland

    Gondwanaland Senior Member

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    Of course they don't want to go back to school to study biochem, physiology and immunity :devil:
     
    MeSci and SOC like this.
  11. Antares in NYC

    Antares in NYC Senior Member

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    Wow! Just wow!
    It takes some brass gonads to attack scientists researching the biological causes of ME/CFS, and in the same breath claim some "socio-psychologic entity" as the "true cause" of the syndrome, of course without offering any proof or reference.

    In my years battling ME/CFS, it was the general practitioners that dished the most abuse, and the ones that immediately wrote the prescriptions for antidepressants without even making eye contact.
     
    Last edited: Jan 9, 2015
    Wildcat, SDSue, MeSci and 3 others like this.
  12. halcyon

    halcyon Senior Member

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    This is exactly the kind of coverage we need. I'm quite frankly shocked to see it on Medscape. She even mentioned Dr. Chia's research. :thumbsup:

    I sent the author an email thanking her. I'd encourage others to do so if they have the energy. Her email address is listed on her web page.
     
    Never Give Up, SOC, beaker and 6 others like this.
  13. Antares in NYC

    Antares in NYC Senior Member

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    THIS!
     
    NK17 likes this.
  14. NK17

    NK17 Senior Member

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    I'm double speechless because of this truly well researched and written article and because of ME complementary brain fog today.

    Now we need to start to make some noise, bang on doors and cry for help in funding Dr. Davis' biomedical research.

    We really need to become visible because there is so much that words can do, but nothing beats an image of a severely ill person ...
     
  15. NK17

    NK17 Senior Member

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    Ditto, done.
     
    Never Give Up, beaker and Bob like this.
  16. daisybell

    daisybell Senior Member

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    Me too.
     
    Never Give Up, beaker and Bob like this.
  17. NK17

    NK17 Senior Member

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    @halcyon, @Antares in NYC and @daisybell I've recieved a very nice reply from Miriam Tucker to my thank you note via e-mail.

    FYI and for anybody who might be on Twitter this is her handle:
    Miriam E Tucker@MiriamETucker she is worth being followed and encouraged to continue writing and reporting on ME ;).
     
    catly, Bob, Antares in NYC and 4 others like this.
  18. Sean

    Sean Senior Member

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    Done. :thumbsup:
     
  19. daisybell

    daisybell Senior Member

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    I also received a very nice reply from her.. She said "I truly hope my article can help bridge the gap between what patients are experiencing and what physicians think and do with regard to this illness."
    I'm a fan!
     
    MeSci, catly, GracieJ and 7 others like this.
  20. daisybell

    daisybell Senior Member

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    Nice to see that this is still the most popular article on Medscape at the moment! Over 100 comments, and most are very supportive.... :thumbsup:
     

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