If only more of them would say 'we don't know' or 'we can't do anything more for you with conventional medicine' perhaps this diagnosis would be easier to manage psychologically. There is no 'magic bullet'. We can only help in some ways with symptom relief. Psychology is no cure etc. etc. Of course, 'they' are fearful of doing that, but it is essentially what happens in other chronic conditions like MS, Cancer etc. For 'us' though it might be seen to be counter-productive, that 'we' would 'give-up' and not fight. Personally, the opposite is true, in my own case and in that of others who live with a better recognised neurological condition with whom I associate regularly. Acceptance is not surrender. It lets you get on with your life. It allows you perspective. Oh it can be devastating initially, but after years of thinking it was my fault I wasn't getting better - the realisation that 'modern medicine' and neurology and immunology were not infallible was quite liberating; for me and my family. Off now to run a marathon. But Seriously, I hope you get my point.