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Medical History/Co Morbid Conditions

Discussion in 'Patient Data Repository & Treatment Review Project' started by Cort, Jun 4, 2010.

  1. Cort

    Cort Phoenix Rising Founder

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    From questionnaires provided by various researchers. Please provide suggestions below the researchers questions - please do not edit researchers questions directly. Thanks

    Co-Morbid Conditions

    Hartz

    9. Check any of the following diseases or conditions that have been diagnosed by any physician you have seen.
    Chronic fatigue syndrome □ yes □ no
    Premenstrual syndrome □ yes □ no
    Fibromyalgia □ yes □ no
    Myofascial syndrome □ yes □ no
    Irritable bowel syndrome □ yes □ no
    Interstitial cystitis □ yes □ no

    Jason

    70d. Have any of your family members been diagnosed with Chronic Fatigue Syndrome or Myalgic Encephalomyelitis?
     Yes  No

    If yes, please list their relation to you and current age

    82. Do you have any medical illness (es) that might be causing your symptoms?

     Yes  No (Skip to Question 83)

    82a. What medical illnesses do you have? Illness name(s) and year it began:

    82b. For which of these conditions are you currently receiving treatment?

    85. Have you ever been diagnosed and/or treated for any of the following:

    (Check all that apply and write year (s) experienced, years treated, and medication (if applicable) in the blank)

     Major depression
     Major depression with melancholic or psychotic features
     Bipolar disorder (Manic-depression)
     Anxiety
     Schizophrenia
     Eating disorder
     Substance abuse
     Multiple chemical sensitivities
     Fibromyalgia
     Allergies
     Other (Please specify)
     No diagnosis/treatment

    CAA BioBank

    Have you ever been told by a doctor or health care provider that you had any of the following conditions? (Please put a check by those that apply)

    The Cardiovascular System

    ___Heart murmur
    ___Angina
    ___Heart attack or failure in the past 5 years?
    ___High blood pressure
    ___Vascular disease in arms/legs
    ___Atypical chest pain
    ___Postural orthostactic tachycardia syndrome (POTS)
    ___Neurally mediated hypotension (NMH)
    ___Vasovagal syncope (fainting)
    ___Palpitations
    ___Other, specify _________dysautonomia_____________

    The Gastrointestinal System

    ___Peptic ulcer
    ___Hiatus hernia
    ___Hepatitis
    ___Hepatitis B
    ___Hepatitis C
    ___Gall bladder disease
    ___Liver disease
    ___Cirrhosis
    ___Pancreatitis
    ___Chronic pancreatitis
    ___Inflammatory bowel disease
    ___Irritable Bowel Syndrome
    ___Colitis
    ___Other, specify_______________________

    The Genitourinary System

    Nephritis
    Kidney disease
    Chronic renal failure
    Repeated urinary infection
    Kidney/bladder stones
    Vasectomy
    Blood/protein in urine
    Venereal disease
    D.E.S./son or daugher
    Yeast infections
    Dysuria (painful urination)
    Interstitial cystitis (painful bladder)
    Other, specify

    The Pulmonary System

    ___Pneumonia
    ___Was the pneunomia in the past 3 months?
    ___Pleurisy
    ___Asthma (as a child)
    ___Asthma (as an adult)
    ___Multiple chemical sensitivities (MCS)
    ___Bronchitis
    ___Emphysema
    ___Tuberculosis
    ___Silicosis
    ___Asbestosis
    ___Other, specify________________________

    The Nervous System

    ___Seizure disorders
    ___Epilepsy
    ___Migraine
    ___Other headache syndrome
    ___Multiple Sclerosis
    ___Neuritis
    ___Peripheral neuropathy
    ___Neuromuscular disease
    ___Head injury with loss of consciousness
    ___Head injury with residual neurologic deficits
    ___Bipolar disorder
    ___Schizophrenia
    ___Depression
    ___Major depressive disorder with psychotic features
    ___Major depressive disorder with melancholic features
    ___Anxiety
    ___Post traumatic stress disorder (PTSD)
    ___Organic brain disorders
    ___Anorexia nervosa within the past 5 years
    ___Bulemia within the past 5 years
    ___Sleep apnea
    ___Narcolepsy
    ___Restless leg syndrome
    ___Periodic limb movement
    ___Other, specify________dysthemia________________

    The Skin

    ___Hives
    ___Psoriasis
    ___Eczema
    ___Contact dermatitis
    ___Other allergic skin reactions ___
    Other, specify________________________

    Eyes

    ___Require glasses
    ___Glaucoma
    ___Cataracts
    ___Optic neuritis
    ___Eye infections
    ___Other, specify________________________

    Ear, Nose & Throat

    ___Chronic sinusitis
    ___Chronic rhinitis (runny nose)
    ___Impaired hearing
    ___Easy nasal bleeding
    ___Nasal allergies
    ___Tonsillectomy
    ___Hay fever
    ___Other, specify________________________

    The Blood

    ___Anemia
    ___AIDS
    ___Sickle cell
    ___Thalassemia
    ___Hemochromatosis
    ___Sepsis
    ___Was the sepsis in the past 3 months?
    ___Other, specify________________________

    Please tell us:

    Do you have problems with blood clotting or bleeding? ____ Yes ____ No
    Have you ever received someone else's blood? ____ Yes ____ No
    How many times have you received someone else's blood? ________
    When was your last transfusion (approximately)? _______ (month/year)
    Has anyone close to you every received a transfusion? ____ Yes ____ No

    The Musculoskeletal System

    Rheumatoid arthritis
    Other arthritis
    Fibromyalgia
    TMJ
    Lupus
    Back injury
    Low back syndrome
    Neck pain/injury
    Degenerative disc disease
    Sciatica/disc herniation
    Bone lesion/infections
    History of broken bones
    Other, specify


    The Endocrine System

    ___Hypoglycemia
    ___Diabetes
    ___Hypothyroidism
    ___Untreated hypothyroidism
    ___Thyroid disease/goiter
    ___Hypopituitarism
    ___Adrenal insuffiency
    ___Other endocrine disorder, specify

    General

    ___Cancer If yes, please write the type of cancer ______________________________
    ___Infectious Mononucleosis
    ___Lyme Disease
    ___Breast lumps
    ___Sjogren's syndrome
    ___Gout
    ___Hemorrhoids
    ___Hernia
    ___Dental/gum problems
    ___Adverse reactions to exposure to heat
    ___Frequent night sweats or fever
    ___Other, specify________________


    Treatment and Surgical procedures

    ___Organ or bone marrow transplantation
    ___Chemotherapy
    ___Radiation therapy of the brain, thorax, abdomen or pelvis

    Have you had any major surgeries?__ Yes __No If Yes, please write the type of major surgery or surgeries:_______________________________ _______________________________________ _______________________________________ Have any of these major surgeries been in the past 6 months? ____ Yes ____ No
    Have you had any minor surgeries?__ Yes __No If yes, please write the type of minor surgery or surgeries:_______________________________ _______________________________________ _______________________________________ Have any of these minor surgeries been in the past 3 months? ____ Yes ____ No


    Are you currently being treated with Ampligen for your CFS? ____ Yes ____ No
    Have you ever been treated with Ampligen for your CFS? ____ Yes ____ No
    Are you currently being treated with Isoprinosine for your CFS? ____ Yes ____ No
    Have you ever been treated with Isoprinosine for your CFS? ____ Yes ____ No
    Are you currently being treated with Kutapressin for your CFS? ____ Yes ____ No
    Have you ever been treated with Kutapressin for your CFS? ____ Yes ____ No
    Have you received any other treatment not mentioned above for your CFS? __ Yes ___No If yes, please write the specific treatment and let us know if treatment was helpful: ______________________________________

    ADDITIONS

    Temporomandibular joint disorder □ yes □ no
    Endometriosis □ yes □ no

    Depression/Anxiety - If you have been diagnosed with depression or anxiety was your diagnosis by a physician(s) that acknowledged your diagnosis of CFS or by another physician

    Insulin Resistance
    Frozen shoulder
    Morgellons
  2. Mithriel

    Mithriel Senior Member

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    Jason 85

    While many people may have been diagnosed with depression or anxiety by a doctor, this is often because the doctor thinks the symptoms of CFS are those of depression or anxiety.

    It would be useful to know if people felt it was an accurate diagnosis.

    Mithriel
  3. Cort

    Cort Phoenix Rising Founder

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    Good point, Mithriel. I added this to try and capture whether the depression/anxiety was a misdiagnosis of CFS.

    Depression/Anxiety - If you have been diagnosed with depression or anxiety was your diagnosis by a physician(s) that acknowledged your diagnosis of CFS or by another physician
  4. JT1024

    JT1024 Senior Member

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    Cort,

    I was reading a post by Gerwyn and it brought together (if I remember correctly) XMRV, the amygdala, anxiety, and depression. I was just trying to find it but I have limited time. It was quite interesting and I think Gerwyn and Kurt were going back and forth on some of it. Can't find the thread right now but if I do, I edit this post with the link.

    ~ JT
  5. Cort

    Cort Phoenix Rising Founder

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    Yes it is interesting (and yes they're going at it again :)). Thanks - an interesting idea for sure.
  6. awol

    awol *****

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    added TMJ and endometriosis
  7. JT1024

    JT1024 Senior Member

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    Cort,

    Is anyone going to be playing with the formatting of these questions? I see opportunities where certain questions/conditions could be presented or grouped better.

    I can do some of that if you would like me to! ~ JT
  8. Cort

    Cort Phoenix Rising Founder

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    Have at it JT :)
  9. JT1024

    JT1024 Senior Member

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    I already played with it....can you tell?
  10. rhiannon

    rhiannon

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    Is it at all possible to be comprehensive about all the possible co-morbidities? I think open ended questions would be better as the list here makes assumptions about possible associations. eg What illnesses have you had? What surgery have you had? What illnesses has your family had?

    It's also difficult to answer some questions, eg diagnoses by a doctor. I was misdiagnosed with lupus so i would be reluctant to put that down. On the other hand, I know that i've suffered night sweats but I haven't had a diagnosis of it.
  11. awol

    awol *****

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    I agree with rhiannon,

    I think the best way is to list the various common comorbidities and known associations, and then ask if physician diagnosed or self-diagnosed. No doctor has ever bothered to tell me I have PMS for example, but I know I do. Also, it would be relevant to know which ones predate CFS.

    Then, after the list of common co-morbidities, two questions could be added: 1) Do you have another condition or conditions not listed above? Please list: 2) Have you ever been mis-diagnosed with another condition?
  12. taniaaust1

    taniaaust1 Senior Member

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    Sth Australia
    There is one rare CFS co-morphid condition which it would be doubtful to get a doctors diagnoses for. That being Morgellons. Its been found that many with Morgellons actually have CFS with it, there is a strong association with CFS in ones with it (it also has an association with lyme disease). When i was hanging about the Morgellon's sites, there was many with CFS there with this even stranger condition. (Morgellon's is one of the rarer things ive had with the CFIDS). The CDC are currently investigating Morgellons http://www.cdc.gov/unexplaineddermopathy/

    http://en.wikipedia.org/wiki/Morgellons

    "William T. Harvey, director of the MRF medical advisory board, claimed in 2007 that Morgellons patients exhibit laboratory findings including increased levels of inflammatory cytokines, increased insulin, and antibodies to three bacterial pathogens, but did not provide evidence for these claims.[38] Many Morgellons patients have symptoms that are also consistent with chronic fatigue syndrome, depression, obsessive–compulsive disorder, and attention deficit disorder.[39] Rhonda Casey, chief of pediatrics at OSU Medical Center, while working with the OSU-CHS for the Investigation of Morgellons Disease, stated that her Morgellons patients looked ill with neurological symptoms, which included confusion, difficulty walking and controlling their feet (foot drop), and a sagging mouth when speaking.[14] "

    Ive suggested Insulin resistance as there is a subgroup of CFSers who have metabolic-X with it and hence have this issue. Also suggested frozen shoulder be put in as I seem to currently have that injury and on chatting on main board it seems many here have it too.. frozen shoulder is said to have an autoimmune component to that developing. (Many said frozen shoulders are connected with FM but right now i dont have any FM at all..havent had it for a while, thou i have done so in the past).
  13. Cort

    Cort Phoenix Rising Founder

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    I've heard of CFS with Morgellon's. Thanks JT - I don't know what's changed but it does look better :)

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