Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
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Media coverage of Matthees PACE recovery reanalysis: post links here

Discussion in 'General ME/CFS News' started by Sasha, Sep 21, 2016.

  1. Sasha

    Sasha Fine, thank you

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    ahimsa, leela, PennyIA and 28 others like this.
  2. Tom Kindlon

    Tom Kindlon Senior Member

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    He's on BBC Bristol
     
    leela, mango, MEMum and 22 others like this.
  3. soti

    soti Senior Member

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    Yogi, Roseblossom, mango and 15 others like this.
  4. mfairma

    mfairma Senior Member

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    On the NYMag piece, it's weird to see the tide turning, while the quality of coverage remains poor. It feels dirty, having opinion shifting in our favor, while real understanding remains largely so abysmally low. The understanding will no doubt come, in short or long, it's just a weird transition.
     
    Joh, leela, soti and 2 others like this.
  5. taniaaust1

    taniaaust1 Senior Member

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    Sth Australia
    lol that has to be probably my most favourite quote in this article.
     
    lemonworld, leela, Mel9 and 17 others like this.
  6. Sasha

    Sasha Fine, thank you

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  7. Valentijn

    Valentijn Senior Member

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    I'm absolutely loving these headlines :love:
     
    leela, Luther Blissett, Mel9 and 7 others like this.
  8. Cheshire

    Cheshire Senior Member

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    Moving the Goal Posts to Catch the Ball and Other Hazards of A Chronic Fatigue Syndrome Treatment Trial

    http://www.patientpov.org/chronic-f...ards-chronic-fatigue-syndrome-treatment-trial
     
  9. CFS_for_19_years

    CFS_for_19_years Hoarder of biscuits

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    PACE: Grossly Exaggerated by Jennie Spotila
    http://occupyme.net/2016/09/21/pace-grossly-exaggerated
     
  10. CFS_for_19_years

    CFS_for_19_years Hoarder of biscuits

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    The PACE Study Results Exposed as Meaningless and Harmful
    http://www.thefacultylounge.org/201...sults-exposed-as-meaningless-and-harmful.html

     
  11. CFS_for_19_years

    CFS_for_19_years Hoarder of biscuits

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    leela, Luther Blissett, actup and 8 others like this.
  12. Yogi

    Yogi Senior Member

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    There are alot of people outside ME community including health journalists retweeting this.

    Check out PACE trial live feed.

    https://twitter.com/search?f=tweets&vertical=default&q=pace trial&src=typd

    Please RT if you can to encourage this to further snowball







     
    Last edited: Sep 22, 2016
  13. CFS_for_19_years

    CFS_for_19_years Hoarder of biscuits

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    At least one doctor got the message:
     
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  14. Dolphin

    Dolphin Senior Member

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    BIOWORLD TODAY TM
    THE DAILY BIOPHARMACEUTICAL NEWS SOURCE
    BIOTECH’S MOST RESPECTED NEWS SOURCE FOR MORE THAN 20 YEARS
    SEPTEMBER 23 , 2016
    VOLUME 27, NO. 185

     
  15. AndyPR

    AndyPR Senior Member

    Lukewarm reception from AfME, which I don't suppose should surprise us.

    https://www.actionforme.org.uk/news/preliminary-analysis-of-newly-released-pace-data
     
  16. aimossy

    aimossy Senior Member

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    @Dolphin is there a link available to that news re NICE?
     
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  17. Sidereal

    Sidereal Senior Member

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    AfME piece is beyond disgusting.
     
  18. Sidereal

    Sidereal Senior Member

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  19. JohnCB

    JohnCB Immoderate

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  20. sarah darwins

    sarah darwins I told you I was ill

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    What's all this "new evidence" stuff from NICE (and, of course, AfME)?

    It's not really new evidence, is it. More like suppressed data which demonstrates that the existing 'evidence' base was a sham, as many people have been saying for years. That's rather an important distinction, especially in terms of consequences for those involved (which maybe answers my original question).
     

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