1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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9th Invest in ME International ME Conference, 2014 - Part 1: Autoimmunity and ME
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Media Coverage of Dr. Alters NIH paper, post stories here

Discussion in 'Media, Interviews, Blogs, Talks, Events about XMRV' started by LJS, Aug 23, 2010.

  1. LJS

    LJS Insert Witty Comment Here

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    I will try and keep this post updated with the media coverage of the Dr. Lo & Alter NIH study. Please post any stories in this thread and I will update this post with them

    Medical Journals
    PNAS, Dr. Alter NIH\FDA Paper\Study: Detection of MLV-related virus gene sequences in blood of patients with chronic fatigue syndrome and healthy blood donors
    PNAS, comments on findings: Mouse retroviruses and chronic fatigue syndrome: Does X (or P) mark the spot?
    PNAS, editorial: Patients, patience, and the publication process
    Science: Second Paper Supports Viral Link to Chronic Fatigue Syndrome (A Must Read!)
    Science: New XMRV Paper Looks Good, Skeptics Admit—Yet Doubts Linger

    NIH Teleconference
    Initial Press Release from NIH: http://www.nih.gov/news/health/aug2010/cc-23.htm
    Julius recorded the whole NIH teleconference (THANKS!) and Dolphin then uploaded the files to the web
    Hosted on yousendit.com:
    Part 1: https://www.yousendit.com/download/aHlTQk13Mm1ENlN4dnc9PQ
    Part 2: https://www.yousendit.com/download/aHlTQk13TXZPSHl4dnc9PQ
    Hosted on Mediafire.com:
    Part 1: http://www.mediafire.com/?6phy8fyxxj4mhy9
    Part 2: http://www.mediafire.com/?40esxfnjflnyzhz
    A typed transcript of the teleconference can be found on WPI's website (click here)

    NIH, FDA, & CDC Information Pages
    Q&A on Dr. Alter's Paper
    CDC XMRV Q&A Page
    NIH News article: Viruses Found in Chronic Fatigue Syndrome Patients (8/30)

    Dedicated ME-CFS & Neuro-immune Disease Organizations \ Blogs
    Age of Autism: The Whittemore-Peterson Institute - A Light in the Darkness (XMRV Update!!!)
    CFIDS: Another Turn of the Retrovirus Kaleidoscope
    CFIDS: Comparison of Published XMRV and Murine Leukemia-Related Virus (MLV) Studies in Patients with CFS
    CFIDS: A Pictorial Essay to Describe XMRV, MLVs and Gammaretroviruses
    CFIDS: FollowUp FAQs to the Study by Lo, Alter et al.
    CFS Central: THE FDA/NIH/Harvard “XMRV” Study: The Same Thing, Only Different
    CFS Patient Advocate: XMRV = MLV-like variant
    CFS Patient Advocate: The second most important day in ME/CFS
    The ME Association (UK): ME Association summary and statement on results of the new retroviral study
    Phoenix Rising Blogs: Four Viruses! Alter Paper Confirms Retroviral Activity in CFS

    Mainstream Media
    8/23
    WSJ: Study Finds Retroviruses in Chronic Fatigue Sufferers
    Washington Post: New evidence that virus may cause chronic fatigue
    Washington Post: Mouse virus link to chronic fatigue is studied (AP)
    Washington Post: Chronic fatigue study points to retrovirus
    NYtimes: Study Links Chronic Fatigue to Virus Class
    Bloomberg: Chronic Fatigue Linked to Mouse Virus in U.S. Government Study
    US News & World Report: More Evidence Mouse Virus Plays Role in Chronic Fatigue Syndrome
    Reuters: New mouse virus found in chronic fatigue patients
    NPR: Scientists Find Traces Of Virus In Chronic Fatigue Patients
    CNN: New evidence linking mouse virus and chronic fatigue
    i09 (gawker): Further proof that chronic fatigue syndrome is linked to viruses
    LA Times: Study reignites debate over virus' role in chronic fatigue
    8/24
    Daily Mail (UK): Chronic fatigue syndrome 'may be caused by mouse-related virus'
    WSJ: PNAS Paper on Virus-Chronic Fatigue Syndrome Link Has Its Own Story
    NPR Marketplace: Private funds helped push Chronic Fatigue research (Story at 10min 50 sec in downloaded show mp3)
    8/25
    WSJ: Does X (the Virus, That Is) Mark the Spot in Chronic Fatigue Syndrome?
    8/26
    The Birmingham News: Virus associated with chronic fatigue syndrome, according to research by NIH, FDA
    WSJ: Betting on X — As in XMRV — With a Big-Ticket Research Center

    Specialty Sites: Health \ Magazines \ Other
    About.com: NIH/FDA Study Confirms: XMRV Tied to Chronic Fatigue Syndrome
    Discover: Chronic Fatigue Debate Goes on: New Study Links the Syndrome to a Virus
    Emory Health Now Blog: A family of troublemakers known as XMRV
    Health Central: FDA/NIH Study Finds Evidence of Retrovirus in Chronic Fatigue Syndrome
    New Scientist: Virus link with chronic fatigue syndrome resurfaces
    ProHealth: A Historical Watershed in the Study of ME/CFS and Associated Illnesses
    Psychology Today: MLV Joins XMRV As The Latest Unproven Cause of Chronic Fatigue Syndrome
    Psychology Today: XMRV Virus Confirmed in CFS
    TheScientist: Q&A: (Randy Schekman, editor in chief of PNAS) Why I delayed XMRV paper
    Scientific American: New research linking chronic fatigue syndrome to retrovirus is released after being held by journal
    Virology Blog: PMRV joins XMRV as possible etiologic agent of chronic fatigue syndrome (9/9)
    WebMD: Virus Linked to Chronic Fatigue Syndrome

    WPI Responses
    YouTube Video: Annette congratulates Alter and Lo
    YouTube Video: Judy Mikovits reacts to the Lo/Alter paper
    Statement on XMRV/Chronic Fatigue Syndrome, Positive replication study confirms WPI’s findings
  2. urbantravels

    urbantravels disjecta membra

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    Please be alert, folks, to the fact that all we will see at first is a straight regurgitation of the press release, and that will probably re-appear in many venues before actual reporting starts to show up.
  3. Nina

    Nina Senior Member

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  4. LJS

    LJS Insert Witty Comment Here

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  5. shannah

    shannah Senior Member

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  6. urbantravels

    urbantravels disjecta membra

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  7. leaves

    leaves Senior Member

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  8. WithHope

    WithHope

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    From the NY Times:"Dr. Alter was quick to note that its not at all proven that a retrovirus causes chronic fatigue syndrome. Instead, such an infection could result from underlying problems with the immune system."

    Has this possibility been explored and or discounted before? Anyone out there with scientific understanding love to hear your thoughts...

    I find this prospect really worrying!
  9. thefrug

    thefrug

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  10. mojoey

    mojoey Senior Member

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  11. asleep

    asleep Senior Member

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    The first few comments on the WSJ piece are classic denialist. If anyone is able to post a reasoned comment there, it might help drown out the madness.
  12. VillageLife

    VillageLife Senior Member

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  13. bettine

    bettine

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    Utrecht (Netherlands)
  14. LJS

    LJS Insert Witty Comment Here

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    Thank you to everyone for the great links, good stuff!
  15. muffin

    muffin Senior Member

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    NAIL the morons on WSJ. Stupid, nasty comments. Sounds to me like the CDC morons and other idiots.
  16. Rrrr

    Rrrr Senior Member

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    Telebriefing is available to listen NOW: 5 pm EST

    I am listening to it now! "For replay, dial 1-866-373-4990 and enter passcode 5711"
  17. VillageLife

    VillageLife Senior Member

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  18. Jemal

    Jemal Senior Member

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  19. urbantravels

    urbantravels disjecta membra

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    That's the AP story, and will appear in a lot of outlets.
  20. Jemal

    Jemal Senior Member

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    Ah, ok...
    I tipped a few papers and websites in my country as well. Lets get the news out :)

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