Discussion in 'Phoenix Rising Articles' started by Mark, May 6, 2013.
Hi Sasha, thanks for the update! I am following her on Facebook
Thank you for helping me out with updates
The event outside The Parliament went overwhelming well. I called the event "Sheets and stories" - and the whole park was filled up by ME-patients used sheets, on which they had written their stories.
Massive statements that became very visible.
See them on the links that Sasha threw in
Congratulations - it never fails to amaze me what new stuff you think of to do! I'm glad it was such a success. I hope the event tomorrow where politicians view the sheets and artwork and can sign up to show their support goes well.
I wish I knew how to post links to individual Facebook messages but if you scroll down a bit you can see that a company has donated a weird sort of mobile lift/elevator for Maria to auction off to raise funds. It looks like quite a valuable piece of equipment so I hope it fetches a good price! You can see it both in action and folded up on her Facebook page (scroll down a bit for the photos):
41 patients funded now! Just continues to amaze me.
I'm going to show off now, Sasha, because I've learnt how to post links to individual messages:
But it's easy to do...
It's exactly the same as on this forum, and on Twitter...
You just click on the time stamp (i.e. the time/day/date) for the post that you are looking at.
On facebook it's at the top of each post, just under the title.
I´m sorry to not have time to update you, but am so thankful for your support!
Today my main goal is to get as many as possible to vote for MEandYou and enable us to win 100 000 NOK/$17 000 just by one click.
Sasha wrote about it today, and I really appreciate your votes. An animal protection organization has a lot of friends. Also a good cause, of course.
And, to your questions about how the meeting with the politicians went - I´m starting posting them individually to day in blogs.
One each day.
Starting with Erna Solberg, Prime Minister Candidat, that has supported us all through the campaign. More to come.
This for today: http://www.meyou.no/erna-solberg-meandyou/
The equivalent of 43 patients funded now, by the way!
Vote right now in the new contest for MEandYou to get $17,000 if you haven't already - see my signature. And there's a thread on it here:
The contest only opened yesterday and it closes on Saturday. We're winning but we need every vote. Pile in and tell your friends!
Jorgen Jelstad just tweeted from the Invest in ME conference:
Jørgen Jelstad @DeBortgjemte7m
#InvestME Fluge/Mella will present data from their study on maintenance therapy with Rituximab in ME/CFS. Study is finished.
Thread is here:
MEandYou has just reached the 47-patient mark! Amazing.
Maria says on her Facebook page that she's extending the campaign by four days til Sunday 9 June because she's got some things to finish off. That's dedication!
Maria just posted this question on her Facebook page:
"On Thursday I'm off to Haukeland University Hospital to hand over the fund raised to Fluge and Mella. Something you want me to say from you?"
If you'd like to say something, that's the place to post it!
You can also try a Google Site Search
Separate names with a comma.