1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Can You Come for a Visit? My ME/CFS Says No
My daughter and son-in-law just had a baby last week. We are thrilled. But we won't be able to see the baby or hold her any time soon. We won't be able to take over little gifts or help out with housework or babysitting.
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MEandYou and Rituximab: Dr Maria Gjerpe’s Fundraising Marathon Update

Discussion in 'Phoenix Rising Articles' started by Mark, May 6, 2013.

  1. Nico

    Nico Senior Member

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  2. Maria Gjerpe

    Maria Gjerpe

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    Oslo, Norway
    Thank you for helping me out with updates :)

    The event outside The Parliament went overwhelming well. I called the event "Sheets and stories" - and the whole park was filled up by ME-patients used sheets, on which they had written their stories.

    Massive statements that became very visible.

    See them on the links that Sasha threw in :)

    Facebook: http://on.fb.me/18IdmW6
    Newspaper: http://bit.ly/10TmHCF
     
    Sasha, snowathlete and Bob like this.
  3. Bob

    Bob

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    Maria Gjerpe, Sasha and snowathlete like this.
  4. Sasha

    Sasha Fine, thank you

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    Congratulations - it never fails to amaze me what new stuff you think of to do! I'm glad it was such a success. I hope the event tomorrow where politicians view the sheets and artwork and can sign up to show their support goes well.
     
  5. Sasha

    Sasha Fine, thank you

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    I wish I knew how to post links to individual Facebook messages but if you scroll down a bit you can see that a company has donated a weird sort of mobile lift/elevator for Maria to auction off to raise funds. It looks like quite a valuable piece of equipment so I hope it fetches a good price! You can see it both in action and folded up on her Facebook page (scroll down a bit for the photos):

    https://www.facebook.com/MEYOU.no

    41 patients funded now! Just continues to amaze me.
     
    snowathlete and Bob like this.
  6. Bob

    Bob

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    I'm going to show off now, Sasha, because I've learnt how to post links to individual messages:
    https://www.facebook.com/photo.php?....129283587230831.28348.125662110926312&type=1
    https://www.facebook.com/photo.php?....129283587230831.28348.125662110926312&type=1

    But it's easy to do...
    It's exactly the same as on this forum, and on Twitter...
    You just click on the time stamp (i.e. the time/day/date) for the post that you are looking at.
    On facebook it's at the top of each post, just under the title.
     
    Maria Gjerpe likes this.
  7. Sasha

    Sasha Fine, thank you

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    Doh! o_O
     
    Maria Gjerpe likes this.
  8. Bob

    Bob

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    :)


    .
     
    Maria Gjerpe likes this.
  9. Maria Gjerpe

    Maria Gjerpe

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    Oslo, Norway
    I´m sorry to not have time to update you, but am so thankful for your support!
    Today my main goal is to get as many as possible to vote for MEandYou and enable us to win 100 000 NOK/$17 000 just by one click.

    Sasha wrote about it today, and I really appreciate your votes. An animal protection organization has a lot of friends. Also a good cause, of course.

    Anyways: http://forums.phoenixrising.me/inde...-win-17-000-for-meandyou-by-sat-1-june.23446/
     
    Bob likes this.
  10. Maria Gjerpe

    Maria Gjerpe

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    Oslo, Norway
    And, to your questions about how the meeting with the politicians went - I´m starting posting them individually to day in blogs.
    One each day.
    Starting with Erna Solberg, Prime Minister Candidat, that has supported us all through the campaign. More to come.

    This for today: http://www.meyou.no/erna-solberg-meandyou/
     
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  11. Sasha

    Sasha Fine, thank you

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    snowathlete and Bob like this.
  12. Sasha

    Sasha Fine, thank you

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    Valentijn likes this.
  13. Sasha

    Sasha Fine, thank you

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    MEandYou has just reached the 47-patient mark! Amazing. :thumbsup:

    Maria says on her Facebook page that she's extending the campaign by four days til Sunday 9 June because she's got some things to finish off. That's dedication!
     
    Bob likes this.
  14. Sasha

    Sasha Fine, thank you

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    Maria just posted this question on her Facebook page:

    https://www.facebook.com/MEYOU.no/posts/203903639768825

    "On Thursday I'm off to Haukeland University Hospital to hand over the fund raised to Fluge and Mella. Something you want me to say from you?"

    If you'd like to say something, that's the place to post it!
     

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