Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
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#MEAction Policy Change: ME, not ME/CFS

Discussion in 'Advocacy Projects' started by AndyPR, Jul 24, 2016.

  1. AndyPR

    AndyPR Senior Member

    Read more on this change at http://www.meaction.net/2016/07/24/me-mecfs-cfs/
     
  2. Sasha

    Sasha Fine, thank you

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    Interesting decision (and look at their survey poll results!). The tricky thing is going to be to judge when you need to include the CFS bit to reach patients who are not yet aware that the CFS they've been diagnosed with is also called ME, or the wider public who aren't aware of the same thing (probably all of them).
     
    MEMum, JaimeS, Dolphin and 3 others like this.

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