Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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#MEAction Policy Change: ME, not ME/CFS

Discussion in 'Advocacy Projects' started by AndyPR, Jul 24, 2016.

  1. AndyPR

    AndyPR RIP PR :'(

    Read more on this change at http://www.meaction.net/2016/07/24/me-mecfs-cfs/
     
  2. Sasha

    Sasha Fine, thank you

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    Interesting decision (and look at their survey poll results!). The tricky thing is going to be to judge when you need to include the CFS bit to reach patients who are not yet aware that the CFS they've been diagnosed with is also called ME, or the wider public who aren't aware of the same thing (probably all of them).
     
    MEMum, JaimeS, Dolphin and 3 others like this.

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