Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
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#MEAction petition: Stop GET trials, stop MAGENTA ("PACE for children") ***UK deadline 12th March***

Discussion in 'Petitions' started by Sasha, Sep 12, 2016.

  1. slysaint

    slysaint Senior Member

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    Just found this very emotional account about Lynn Gilderdale that I hadn't read before from 2006.
    "
    For years many doctors dismissed ME, also known as Chronic Fatigue Syndrome, as 'yuppie flu'. But last month a coroner gave ME as the official cause of death for the first time in the UK - raising hope among campaigners that the condition is about to be taken seriously at last.

    Here, Kay Gilderdale tells Gill Swain the heartrending story of her daughter, Lynn, 28, who was struck down by the illness 14 years ago..."

    http://www.hetalternatief.org/Lynn Gilderdale 2006 189.htm

    If anyone wants to know why we are so 'militant', get them to read this.
     
  2. user9876

    user9876 Senior Member

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    I think you are right.
     
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  3. Esther12

    Esther12 Senior Member

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    They did say this:

    And this was in a summary:

    To me it looks like they deliberately gave bold quotes to be taken out of context.
     
  4. AndyPR

    AndyPR Senior Member

  5. AndyPR

    AndyPR Senior Member

    Luther Blissett likes this.
  6. Jenny TipsforME

    Jenny TipsforME Senior Member

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    Bristol
    We are doing a thing for ME Awareness month Missing More After Graded Exercise Therapy (#MissingMoreGET)

    The idea is to tie in a bit with Millions Missing: Some people are missing more of normal life unnecessarily because they were given bad advice to do graded exercise (or assumed exercise was good and weren't advised to be careful).

    We're going to post blog posts from www.stopGET.org and have them scheduled throughout May.

    Instructions if you want to write something new for it are here:
    View image on Twitter
    [​IMG]

    Follow
    [​IMG]#stopGET Campaign @stopGETteam

    #MissingMoreGET
    Share your story of graded exercise therapy for #MEawarenessmonth see http://www.stopget.org/2017/04/missing-more-after-graded-exercise-therapy/ … #pwme#MillionsMissing

    http://www.stopget.org/2017/04/missing-more-after-graded-exercise-therapy/

    We can also reblog relevant blog posts you've already written.

    Input welcome from anywhere in the world and all ages, especially examples of child GET.
     
  7. AndyPR

    AndyPR Senior Member

  8. AndyPR

    AndyPR Senior Member

    Luther Blissett likes this.
  9. AndyPR

    AndyPR Senior Member

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  10. AndyPR

    AndyPR Senior Member

  11. AndyPR

    AndyPR Senior Member

  12. AndyPR

    AndyPR Senior Member

    mango likes this.
  13. AndyPR

    AndyPR Senior Member

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