The power and pitfalls of omics part 2: epigenomics, transcriptomics and ME/CFS
Simon McGrath concludes his blog about the remarkable Prof George Davey Smith's smart ideas for understanding diseases, which may soon be applied to ME/CFS.
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#MEAction Launches One-Click Campaign For Llewellyn King's Call For An ME/CFS Congress Champion

Discussion in 'Action Alerts and Advocacy' started by Never Give Up, Jul 27, 2015.

  1. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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    It was very easy.

    http://www.meaction.net/2015/07/23/tell-congress-we-need-an-me-champion/

    Here's what they say about it:

    "Llewellyn King of The White House Chronicle, a long time supporter and fighter for ME patients, has written an article on The Hill’s “Congress Blog”.

    >Mr. King’s blog is a plea to members of congress, seeking a “champion” to take on the campaign for ME. The emphasis is on raising awareness about the devastation ME causes and to persuade HHS to fund research for a cure.

    With this in mind, MEadvocacy.org has created an easy one click letter for US citizens to send to their congressional representatives. It contains Llewellyn King’s full blog post.

    Help us reach every member of congress!

    Fill in your name and US address. Three letters will be instantly generated and sent to your two senators and house representative."
     
    Sushi, Sasha, Scarecrow and 2 others like this.
  2. *GG*

    *GG* Senior Member

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    Concord, NH
    Cool, will have to look at this more later.

    GG
     
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  3. Sasha

    Sasha Fine, thank you

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    Good thread! But to get it more attention, I wonder if you should mention what the advocacy is for in your title, @Never Give Up - I thought this thread was about a general mechanism for advocacy.

    What about '#MEAction launch one-click campaign for Llewellyn King's call for an ME/CFS congress champion' or something like that?
     
    Never Give Up likes this.
  4. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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    Great idea, but how do I edit the title?
     
    Sasha likes this.
  5. Sasha

    Sasha Fine, thank you

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    Click on the 'Thread tools' dropdown menu (just above your post) and choose 'Edit thread'.
     
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  6. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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    Thank you!
     
    Sasha likes this.
  7. Nielk

    Nielk

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    Last edited: Jul 29, 2015
    Sasha likes this.

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