Choline on the Brain? A Guide to Choline in Chronic Fatigue Syndrome
http://phoenixrising.me/research-2/the-brain-in-chronic-fatigue-syndrome-mecfs/choline-on-the-brain-a-guide-to-choline-in-chronic-fatigue-syndrome-by-cort-johnson-aug-2005
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MEA website poll for January 2016: GP management of ME/CFS

Discussion in 'General ME/CFS Discussion' started by charles shepherd, Jan 4, 2016.

  1. charles shepherd

    charles shepherd Senior Member

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    MEA website poll for January 2016 on GP management

    Vote via the home page on the MEA website: www.meassociation.org.uk

    NB: This poll is for UK residents only as it relates to NHS service provsion

    Votes so far:

    The MEA Quick Survey

    • How do you rate the management of your ME/CFS that is provided by your usual NHS GP?
      • Excellent (4%, 2 Votes)

      • Good (12%, 6 Votes)

      • Fair (2%, 1 Votes)

      • Mixed - good and bad (21%, 11 Votes)

      • Poor (15%, 8 Votes)

      • Dreadful (29%, 15 Votes)

      • I don't have a GP (0%, 0 Votes)
     
    Valentijn, Scarecrow, Aurator and 4 others like this.
  2. MeSci

    MeSci ME/CFS since 1995; activity level 6?

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    Cornwall, UK
    Is it possible to correct the spelling error in the last option in the poll (which is not shown above - it is 'I have no contact with my GP re: MC/CFS'?
     
    sarah darwins likes this.
  3. charles shepherd

    charles shepherd Senior Member

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    Thanks for spotting the typo - it will be corrected asop!

    CS
     
    jimells and TiredSam like this.
  4. Sasha

    Sasha Fine, thank you

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    I'd like to have answered this but couldn't. The question for me was, "relative to what"? All our GPs seem able to do within the NHS is prescribe stuff for sleep, mood and pain. And that's it. i've had to bring info about OI to my GP myself, and he's referred me on. He wants to do well for me but ME is a complex, multisystem disease and it's well beyond the scope of a GP to deal with it: and even the "specialist" centres don't seem to test for OI as standard (it's a long time since I went to mine, though).

    So is that excellent treatment, or rubbish treatment? Or somewhere in between?

    I'd be curious to know what the new, biomedically focused centre in Norfolk will be offering ME patients.
     
  5. charles shepherd

    charles shepherd Senior Member

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    I take your point but we have to keep the question and answers as short as possible - mainly because the tools we use for this home page website section mean that the question has to fit into 90 characters maximum and we can only use up to 9 very short answers

    I think you could answer by ticking either fair (if he's doing the best he can) or mixed - good and bad (if he's doing the best he can but sometimes doesn't do what is best through lack of knowledge)


    C
     
  6. Aurator

    Aurator Senior Member

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    I think the survey's a good idea, for all its brevity.

    Of course the results will not be taken seriously in the places that matter. Not only will the probably modest total of votes lead people to believe (justifiably perhaps) that they represent the views of only a small number of PwME, but it will probably be argued (less justifiably) that the people who vote in polls conducted by ME charities represent the viewpoint of the more aggrieved, or at least disappointed, sections of the ME community, whose viewpoint is inevitably going to tend towards the negative.
     

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