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MEA website poll for December: Change in health status over the past year

Discussion in 'General ME/CFS Discussion' started by charles shepherd, Dec 1, 2016.

  1. charles shepherd

    charles shepherd Senior Member

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    MEA website poll for December:

    Change in health status over the past year

    This month's MEA website poll is asking about your overall state of health compared to this time last year

    Overseas votes are welcome in this poll

    Vote on the home page (middle column) of the MEA website:

    http://www.meassociation.org.uk
    Current voting:
    Overall, how is your state of health and disability compared to this time last year?
    Recovered (0%, 0 Votes)
    Almost recovered (0%, 0 Votes)
    Much better (0%, 0 Votes)
    A bit better (0%, 0 Votes)
    Much the same (55%, 6 Votes)
    A bit worse (27%, 3 Votes)
    Much worse (18%, 2 Votes)
    Total Voters: 11
     
    Last edited: Dec 1, 2016
  2. duncan

    duncan Senior Member

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    Quick observation: This isn't balanced, if you assume "much the same" = unchanged. You have four for improvement, and only two for worsening.
     
  3. MeSci

    MeSci ME/CFS since 1995; activity level 6?

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    Also, it says 'heath' instead of 'health'!
     
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  4. slysaint

    slysaint Senior Member

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    Ted is dead
     
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  5. TiredSam

    TiredSam The wise nematode hibernates

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    Much worse then.
     
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  6. charles shepherd

    charles shepherd Senior Member

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    Thanks for spotting the typo - corrected
     
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  7. MeSci

    MeSci ME/CFS since 1995; activity level 6?

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    Not per my screen.
     
  8. worldbackwards

    worldbackwards A unique snowflake

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    Given that everyone's clearly getting worse and no one's getting better, I'd say it isn't making too much difference.
     
  9. daisybell

    daisybell Senior Member

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    I agree!
    Plus, what are the options for 'balancing' it out - nearly dead and ???
    I think that it covers most eventualities - I put a bit worse... which is true but depressing to acknowledge.
     
  10. charles shepherd

    charles shepherd Senior Member

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    I have corrected it here on PR

    Tony (who is normally around 24/7) will have to make the correction on the MEA website

    Unfortunately, Tony has had to take some urgent compassionate leave - so it will take longer to get the website corrected
     
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  11. worldbackwards

    worldbackwards A unique snowflake

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    [​IMG]
     
  12. charles shepherd

    charles shepherd Senior Member

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    We have to keep the answers very short in these MEA website polls due to the tool that we use

    I produced what I thought was a list of simple short options that cover the whole range of health status

    There is no intention to try and produce a result that favours any one direction

    If there is a clear simple further answer that needs inserting into the 'getting worse' section then we can consider inserting it

    But I feel quite happy with the Q and A as it is

    CS
     
  13. charles shepherd

    charles shepherd Senior Member

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    • Current status - Again, overseas votes are welcome:

      Overall, how is your state of health and disability compared to this time last year?
      • Recovered (2%, 1 Votes)

      • Almost recovered (0%, 0 Votes)

      • Much better (2%, 1 Votes)

      • A bit better (11%, 6 Votes)

      • Much the same (23%, 13 Votes)

      • A bit worse (39%, 22 Votes)

      • Much worse (23%, 13 Votes)


        Total Voters: 56
     
  14. lansbergen

    lansbergen Senior Member

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    Lately my improvement accelerated. So I voted much better.
     
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  15. duncan

    duncan Senior Member

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    Practically speaking, you are likely correct. Potentially, however, a bias is introduced. To avoid the potential, perhaps it should be balanced. But it's not my call, and I could be wrong.

    Edited to add: What does "almost recovered" mean, and how does one differentiate it from "much better"? More importantly, what value-add does it provide? If it has to do with granularity, then I'd again suggest another qualifier - whatever that might be - on the other side of "much the same", by virtue of the same argument.
     
    Last edited: Dec 1, 2016
  16. purrsian

    purrsian Senior Member

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    I would interpret the categories with reference to those CFS scales out of 100. If you were at 30 last year and are now a 50+, that would represent a great improvement but could still be far from "almost recovered". If one was already starting at 50+, then the almost recovered and much better categories could overlap.
     
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  17. taniaaust1

    taniaaust1

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    how are you meant to balance out that poll more though.. have dead for a selection for those of us to type who have died and been buried, to balance out the recovered.

    I think its a good poll with all the different options represented in it.

    Interesting results though so far and not what I expected . I too have worsened a little in past year. (id thought most would put the same or a little better).
     
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  18. taniaaust1

    taniaaust1

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    For myself almost recovered I'd take it to mean someone who has been able to go back to work full time but has to spend weekends resting so they can go back to work again in the coming week or someone who is back working part time.

    much better would be a big improvement in my ME/CFS status.. eg a jump from 30% to 50% or 60% I'd call a big improvement. Still not able to work but a big improvement
     
  19. hellytheelephant

    hellytheelephant Senior Member

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    A large proportion of the 'much worse' will be too sick to be using the computer.
     
  20. trishrhymes

    trishrhymes Save PR. Sack the President of the Board.

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    Given that it's a poll which will give an indication of the direction of many people's illness, I think it's fine, and the result should be interesting.

    It's not meant to be a scientific study. For that there would have to be a proper sampling method and a more complex measure, for example asking people at two time points a year apart where they were on a valid scale, or even to wear an actometer for a year to demonstrate how their activity levels change.

    The poll could possibly provide the impetus for someone to do such a study...

    And the poll might provide ammunition to challenge the idea I'm sure I've come across in reading about ME that suggests most patients gradually improve over time.
     
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