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MEA Question Time in Kingston, Surrey - Saturday 3rd October

charles shepherd

Senior Member
Messages
2,239
MEA Question Time in Kingston Surrey on Saturday 3rd October

More details here:
http://www.meassociation.org.uk/201...kingston-upon-thames-tomorrow-3-october-2015/

Free admission
Ample car parking
Wheelchair friendly venue
School open from 1pm; School canteen open from 1.15pm

Panel members:

Amolak Bansal (St Helier Hospital - immunologist who is carrying out MEA funded research and is involved with the proposed UK Rituximab trial)
Jane Colby (Tymes Trust - Children and Education)
Sue Luscombe (Dietitian - MEA adviser on diet, nutrition)
Charles Shepherd (Hon Medical Adviser, MEA)

The school is a short walk from Kingston Railway Station if you are coming by train. Google map:https://www.google.co.uk/maps/place...2!3m1!1s0x48760be853d6e577:0x184ba7e2d3ef8141


Questions are welcome to individual members of the Panel on their specific areas of expertise, as well as questions covering any aspect of ME/CFS:

Clinical - Management - Research - Benefits - Media - Political etc.......

Some of the current 'hot topics' that we are dealing with at the MEA are listed below and might form the basis of a question...........

DWP BENEFITS

Problems with PIP are now becoming more common than ESA
Changeover from DLA to PIP
ESA: Possible changes to WRAG Group
Maximus taking over medical assessments from Atos
Providing supportive medical evidence

MANAGEMENT

Meetings and correspondence with NICE and NHS England regarding revision of the NICE guideline on ME/CFS
MEA Management Report on CBT, GET and Pacing

PARLIAMENTARY

APPG on ME has been reformed following the General Election in May

RESEARCH

ME Biobank at the Royal Free Hospital: release of blood samples to researchers
MEA Ramsay Research Fund: Mitochondrial research studies
Rituximab
UK Research Collaborative Conference in Newcastle

ME ASSOCIATION New literature:

Flu vaccine
Hormones, menopasue and research into female hormones
Guides to filling in the forms for ESA and PIP
New (2015) edition of the MEA Purple booklet

MEA Website: www.meassociation.org.uk
MEA online shop: http://www.meassociation.org.uk/shop/
MEA Facebook: https://www.facebook.com/ME-Association.../timeline/
ME Connect: 0844 576 5326 (10am-12 noon; 2pm - 4pm and 7pm - 9pm)