MEA hear back from NICE about the identity of ‘topic experts’ | 13 August 2017

[Countrygirl]

I think the tymes trust report around 200 cases they have helped with but very few go very far. I've only heard of about 3 where children were taken and I'm not even sure there.

These are, of course, only the known figures, those who contacted Tymes/JC. The majority won't even be aware that the charity exists. JC said that recently the number of cases are escalating and she had about six in one week alone.

 

[user9876]

@charles shepherd

One suggestion that @Lucibee made on twitter is for ME charities to set up their own alternative NICE review committee.

https://twitter.com/i/web/status/897514313501601793

Seems like a good idea especially if you could get some top experts, perhaps someone involve in the IoM report?

 

[Keela Too]

Interesting thread on Twitter and one of the NICE twitter accounts was engaging, and suggested that our concerns could be logged with an email:

https://twitter.com/i/web/status/898200213541793792

 

[Keela Too]

They are happy for the the message to be shared too:

https://twitter.com/i/web/status/898203416454991872

 

[Keela Too]

I've thought about this and given it its own thread here: http://forums.phoenixrising.me/inde...sked-for-patient-concerns-to-be-logged.53547/

 

[Keela Too]

I'll put up the response soon, but it may interest folk to know that my MP asked a question or two on my behalf, and apparently there were no PACE Trial authors amongst the "topic experts" consulted for CG53.

@charles shepherd @Jonathan Edwards

 

[Jonathan Edwards]

I'll put up the response soon, but it may interest folk to know that my MP asked a question or two on my behalf, and apparently there were no PACE Trial authors amongst the "topic experts" consulted for CG53.

@charles shepherd @Jonathan Edwards

Fair enough but of course neither Esther Crawley nor Simon Wessely were authors.

 

[Keela Too]

Fair enough but of course neither Esther Crawley nor Simon Wessely were authors.

Indeed... it feels a bit like some of those reasoning tests we did in primary school... if Jane is wearing a blue cardigan, and sitting beside the boy with white hair, who is sitting opposite the girl with the curl, then who was it told the teacher fibs?

 

[Chrisb]

if Jane is wearing a blue cardigan

Was Jane preparing for a career even in those days?

 

[Jonathan Edwards]

Indeed... it feels a bit like some of those reasoning tests we did in primary school... if Jane is wearing a blue cardigan, and sitting beside the boy with white hair, who is sitting opposite the girl with the curl, then who was it told the teacher fibs?

well put

 

[Large Donner]

Indeed... it feels a bit like some of those reasoning tests we did in primary school... if Jane is wearing a blue cardigan, and sitting beside the boy with white hair, who is sitting opposite the girl with the curl, then who was it told the teacher fibs?

Ah, there is an objective test for this. Whomever has the blue tongue when requested to stick it out is the fibber.

If you went to Primary school when I did then there's a blackboard rubber heading your way if you are the fibber.

 

[Countrygirl]

If you went to Primary school when I did then there's a blackboard rubber heading your way if you are the fibber.

Ah! Those were the days!

I was the one who threw said blackboard rubber...........,not at a primary school child but a 15 year old swinging on his chair in the back row (again!) and not paying me my due attention as I explained quadratic equations.

Unfortunately, my aim wasn't true: it missed him......................and flew through the window.

My classroom was three stories up.

Thanks for the memory!