Discussion in 'General ME/CFS Discussion' started by charles shepherd, Jan 5, 2015.
An important report was published in the USA just before Christmas that was designed to a) identify research gaps in ME/CFS, b) identify methodological and scientific weaknesses, c) suggest research needs, and d) move the field forward through an unbiased, evidence-based assessment of a complex public health issue.
The report was published as part of the Pathways to Prevention programme of the National Institutes of Health (NIH), and was produced by a panel of independent academics – none of whom had ‘history’ in ME/CFS. What they came up with could have worldwide repercussions for the way ME/CFS is researched in the future.
Here, DR CHARLES SHEPHERD, medical adviser to The ME Association, summarises the key findings of the draft executive summary and considers where we might go from here.
Edit - Just me being blind again, nothing to see here, etc...
Thanks, @charles shepherd. A lot of us are working on responses to P2P (I took a break from writing mine to look at your thread!).
Does the MEA plan to submit its comments to the NIH? I really hope it will! We all need to be making that point about money.
The link is in the first post.
Yes, we will be sending in a modified version of this, and adding some meat to the bone where necessary, as a response
Can you remind us of the date by which submissions have to be made?
Deadline for response: 16 January.
The NIH response instructions are to "please reference the corresponding line number of the report", and submit your comments via firstname.lastname@example.org or postal mail to:
Office of Disease Prevention
National Institutes of Health
ATTN: Paris A. Watson
6100 Executive Boulevard, Suite 2B03
Bethesda, MD 20892
Thanks Sasha - this is the website link if anyone requires more details on the submission of comments to NIH:
You can also try a Google Site Search
Separate names with a comma.